No thyroxine

I wrote a post a little while ago and thankyou for the replies I received. My daughter who is 27 and has congenital hypothyroidism has now been sectioned. They have stopped her thyroxine for the last week, would not let her see an endocrinologist at 2 hospitals despite being told she would. Her results for a endocrine tumour were ' lost ' at one hospital, repeated at the recent hospital then not given. She has been put on rispiredone today which can lower thyroid function even more and should not be given to anyone with an adrenal tumour. After taking her blood results there yesterday showing her dosage and what has been happening with her tsh, t3, t4 levels yesterday I was assured she would be given thyroxine today but they won't give it to her. She told me last week she was going to die in hospital and I have no way of helping her now she's been sectioned. She has never had any previous mental health problems until they began giving her pain relief last weekend and she collapsed then her mental health deteriorated rapidly.

We have received appalling care from the nhs since a complaint was made, Inc the care of my 14 yr old daughter after a car accident.

30 Replies

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shawsAdministrator

3 years ago

My God, you are in some nightmare and you have my sympathy what with the worry about your daughter not having any medication plus being sectioned.

It is not the first time that people have been diagnosed with a mental health condition, when the actual problem was either undiagnosed hypothyroidism or too low a dose.

There was the case of another Mother's daughter being removed so I am going to search and try and find some details, including the person who assisted in helping.

For them not to give your daughter thyroid hormones is completely inhumane - no other word for it and you are completely helpless.

Our brains need the active hormone T3 and if your daughter's free T3 is too low that may be giving her symptoms if she has been prescribed levothyroxine alone. Some of us cannot convert it sufficiently to T3.

Regards

roubyroo

in reply to shaws

Thankyou, there is a phone no and I will ring tomorrow For advice. At the mental health meeting to decide if my daughter should be sectioned they brought up my daughters complaint to St Thomas. It felt slightly threatening but I said this would proceed. After the car accident we were in last year they left my 13 yr old daughter in a room on her own for nearly 4 hours before they did a ct scan (I'd been airlifted to a different hospital ) so she was alone and strapped to a spinal board, they wouldn't let her go to the toilet, she was told off because shes scared of needles and she received no help from 2 hospitals at a later date for breathing problems and her lips turning blue (she said she felt her chest had been shattered in the accident) and despite a nurse later saying she needed physio for whiplash she wrote it up as ' stress ' and no treatment.She has constant back pain and numbness and now the same in her hands. She won't go to a Dr now

I can't even begin to describe the numerous things they've done but I'm sure they had a good laugh sending me home on public transport which took 4 hrs with a dislocated fractured shoulder, back factures and a rib I broke the morning they discharged me.

in reply to roubyroo

You and your family's treatment has been/is a nightmare. Where has compassion gone? Do they actually know what compassion is for a start? For a frightened child of 14 who'd been in an accident and you would expect some supportive person to look after her particularly if no parents/family members had been able to get there initially. You, yourself were in no state and particularly being in a different hospital and must have been terribly worried for her.

They are very quick to write 'stress' 'anxiety etc which is then on your medical notes and the next person who looks at them automatically assumes that's the case. Your daughter would have been traumatised after such an accident as you would have too, particularly worrying about her and am sorry she is still suffering. Maybe there would be a kind specialist who could take a look at her as she still has her life ahead of her and we should have confidence in hospitals but I must admit, most on here have lost that somewhere along the line.

I wish you success and please write another post informing us of the latest news and updates.

Also, you can write in your profile your history/trials and tribulations so other members can read it.

Best wishes

Has your older daughter only been on levothyroxine since birth? Can you get a print-out from the GP of her latest blood test results and post them on a new question? We are entitled to them. Why I ask is that she might have been underdosed for along time as some doctors keep our TSH 'in range' instead of low or suppressed and you can slowly deteriorate.

Particularly as she's never had a thyroid gland a dose of T3 to her T4 might have been an improvement. Most times if you've been in a state of health for a long time you take that as being 'normal' as you've known nothing else, when in fact it may be due to undertreatment.

Your younger daughter should also have a full thyroid function test as it runs in the family particularly after her accident as sometimes our thyroid gland gets damaged with whiplash etc. If her thyroid hormones are low it can also cause pains/aches/discomfort as well as being unwell. Also get Vitamin B12, Vit D, iron, ferritin and folate tested. Many of us are deficient and lack of these can cause problems too.

hormonerestoration.com/Thyr...

Hi, I emailed ken hind and rang his wife but no reply from either. Rang a few solicitors but not interested

I have emailed the clinical director of the hospital and he says he can't discuss my daughters health with me. I went to the unit today to see my daughter and still no thyroxine given. Spoke to the nurse and apparently she dosent need thyroxine after 27 yrs and this was decided by a trainee /junior Dr who dosent know her medical history and hasn't consulted an endocrinologist.

I'm blocked at every turn as usual but I will see my MP next.

Thank you for replying to me everyone. It was pretty horrific getting up at 5 am to find that she d tried to cut her throat and wrists. it wasn't a conscious decision as there was something pretty awful going on with her body. I'd measured her heart rate and bp the night before and they were way too high and she kept saying she didn't feel right but her mental state was normal at that tim.

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