Hi all, I'm new to this forum and to thyroid stuff, and I'd really appreciate some opinions... (And I'm sorry this is long, but I don't really know what may or may not be significant, so I'm including lots of stuff!)...
I went to my GP about a month ago because I had had a couple of months of feeling *really terrible*. I haven't been feeling actually *well* for a long time, but I developed a lot of new or more extreme symptoms, including:
- Extreme tiredness/exhaustion
- Rapidly worsening joint pain (I have arthritis, but the pain has got much worse, especially in my legs/ankles and wrists) and feeling like I have been run over
- Pins and needles in my hands, wrists, ankles and feet, and weird twitchy feelings in my legs and groin
- Finger-tips going numb
- Feeling very cold
- Constant nausea (but no actual sickness)
- Constipation/feeling bloated and blocked
- Blinding headaches
- Breathlessness on very mild exercise
- Feeling a bit drunk - blurry and unsteady
I have also had some long-standing symptoms:
- Constant thirst
- Dry skin
- Night-time sore throat (every night, usually gone by morning) and chronically inflamed sinuses
And there are other weirder symptoms too, like going numb up the right hand side of my scalp behind my ear and onto the top of my skull (!).
Luckily, my GP has taken me reasonably seriously, and has tested me for various things over the past couple of years, and ran an extensive set of blood tests recently. These showed the following low or borderline results:
TSH 4.1 (range 0.2-4.0)
fT4 11.8 (range 11.0-22.6)
T perioxidase antib 45 (28.0-60.0)
ferritin 16 (15.0-290.0)
vitamin D low (I've lost the print-out, but the GP has told me to take supplements)
cholesterol slightly high: 4.6 (target <4) and LDL 2.7 (target <2)
I have had previous thyroid tests that showed a TSH of 4.5 (Mar 2011) and 7.1 (Mar 2005) and my fT4 has been "at the low end of normal" (words of another GP in our group practice). My fT3 has never been tested.
I have had quite a lot of investigations over the years, so other problems have been ruled out - e.g.: mammogram normal; not diabetic; liver function fine; MRI of sinuses clear; sleep apnoea ruled out; allergy tests show only a few sensitivities, but not to main daily possible allergens (e.g. to hamsters but not dogs!)... I know at least some of these docs think I am a hyperchondriac, but I also know something is *wrong*... It actually feels like my body is slowing breaking down.
My situation now is that I am on iron and vit D supplements (only for 3 weeks so far), and I have repeat blood tests due in about 10 days. At this point, my GP will decide what to do - whether to treat me for hypothyroidism.
There has also been some talk of a trial of levothyroxine if my test results are similar to what they seem to have been - i.e. 'borderline' rather than clearly hypo. But I get the feeling the GP isn't keen, so I want to prepare myself and form my own opinion...
I'd be interested to hear other people's experiences and opinions. Particularly, I'm wondering:
- Do I sound hypothyroid to you, based on my symptoms and/or test results?
- Do people think a trial sounds like a good idea?
- Are there any reasons why I *shouldn't* have a trial?
- Is it worth pushing for (a) a fT3 test and/or (b) a referral to an endo? And if so, any tips for how to get these?!
Thanks in advance to anyone who feels they'd like to comment...