finger and thumb pain: A long shot I fear, but I... - Thyroid UK

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finger and thumb pain

Quinc profile image
19 Replies

A long shot I fear, but I wonder if anybody has experienced anything similar. For the past 3/4 months I have been experiencing pain (but only occasionally) in one finger and my thumb on one hand. It’s very specific, between two knuckles of the finger and low on the thumb towards the wrist. It hurts but only for a while. The doctor simply told me he had no Idea what’s wrong as they is not redness, swelling or bone deformation. Most peculiar and somewhat worrying. Might this be some bizarre side effect of Hashimoto’s? I am on 50 micrograms of Levo 4 days a week, 75 mg 3 days (that I spread throughout the day as I find I have some reactions) …. Might anyone else have suffered similar?

Many thanks

Q

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Quinc
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19 Replies
TiggerMe profile image
TiggerMeAmbassador

Possibly carpal tunnel which is certainly linked to hypothyroidism, you are on a very small dose I would be surprised if it is enough, which brand do you take as it could be you are intolerant to the excipients rather than the hormone?

Quinc profile image
Quinc in reply toTiggerMe

thanks ….

The chemist changed brands about a year ago … currently Crescent (that also contains lactose) … no reasons for change offered!

TiggerMe profile image
TiggerMeAmbassador in reply toQuinc

Relatively new brand which I've not read much about, suggest you get a full thyroid panel with vit's and min's if GP unwilling and post up your results, being on a low dose is often worse than not being on any at all!

thyroiduk.org/testing/priva...

SlowDragon profile image
SlowDragonAmbassador

That’s a very low dose of levothyroxine, especially for a bloke

What are your most recent thyroid results

You need TSH, Ft4 and Ft3 tested together

Plus vitamin D, folate, B12 and ferritin

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Test day after a 50mcg dose

Which brand is 50mcg

Which brand is 75mcg …..or is it 50mcg plus 25mcg

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

SlowDragon profile image
SlowDragonAmbassador

Guidelines of dose Levo by weight

approx how much do you weigh in kilo

Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or somewhere near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)

cks.nice.org.uk/topics/hypo...

bnf.nice.org.uk/drugs/levot...

nhs.uk/medicines/levothyrox...

Adults usually start with a dose between 50 micrograms and 100 micrograms taken once a day. This may be increased gradually over a few weeks to between 100 micrograms and 200 micrograms taken once a day.

Some people need a bit less than guidelines, some a bit more

TSH should always be below 2 on levothyroxine

gponline.com/endocrinology-...

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

Comprehensive list of references for needing LOW TSH on levothyroxine

healthunlocked.com/thyroidu....

onlinelibrary.wiley.com/doi...

If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).

sciencedirect.com/science/a...

The optimal daily dose in overt hypothyroidism is 1·5–1·8 μg per kg of bodyweight, rounded to the nearest 25 μg.

SlowDragon profile image
SlowDragonAmbassador

presumably dose was increased to 50mcg and 75mcg on alternate days after test a year ago

healthunlocked.com/thyroidu...

Bloods should be retested 2-3 months after increased

And retested again another 2-3 months later

ALWAYS test early morning and last dose 24 hours before test

Thousands of U.K. patients have to test privately to make progress

Hedgeree profile image
Hedgeree

Hi Quince,

When I first read your post I thought of Trigger Thumb? Does your thumb ever get stuck in a bent position?

I believe it's due to a problem with the tendons and inflammation.

Regenallotment profile image
RegenallotmentAmbassador

For me it’s described by tendonitis, RSI from weeding, knitting handing out sheafs of papers to students all do it to me. I’ve lost my pinch capacity. The opposable thumb strength.

Rest from the antagonist activity and optimal thyroid replacement definitely help.

humanbean profile image
humanbean

I had wrist pain some years ago. I bought a wrist brace or splint (I can't remember what it was actually called) that kept my wrist completely rigid. I found that wearing it in bed gave my wrist the rest it needed to heal.

Is there any chance you could find something to keep your fingers still to see if it helps you?

The other thing that occurs to me is that perhaps it is an early indication of rheumatoid arthritis. I'm sure I've read that the fingers and thumb being affected is often the first sign.

nightingale-56 profile image
nightingale-56

Quinc I get this in my thumb and am pretty sure it is rheumatoid arthritis. Something my Mum and Nan also had, so guess it is a family thing. Worse when the weather is wet.

Quinc I went to my doctor with the same. I said … great! Now I’m getting arthritis in top of everything else and this long list of Hashis symptoms.

He said - “is it how your are holding your phone when you text?”

Now, being very accustomed to doctors not understanding just how Hashis affects us and how our symptoms are “real” and blah blah blah… I was about to push back …

Then I paused and realized … it was definitely how I was holding my phone.

So - sounds like yours might be in a different place or worse than mine… but just something to consider.

As the old joke goes:

I went to the doctor and said “Hey doc, it hurts when I do this.”

The doctor replied, “So don’t do that!”

Quinc profile image
Quinc in reply toFallingInReverse

🤣thanks … I’ll keep a closer watch over my actions now!

cyberbarn profile image
cyberbarn

Don't forget Hickam's Dictum: Patients can have as many diseases as they damn well please! I had to fight to get my GP to refer me to rheumatology when I started getting pain in my hands. I was eventually diagnosed with another autoimmune disease, psoriatic arthritis.

So it is worth having a chat about any new pain.

Quinc profile image
Quinc in reply tocyberbarn

Thanks … yes, seems pointless (not painless) to ignore new symptoms

Bertwills profile image
Bertwills

I had something similar for sometime until I went for specialist physiotherapy. It’s likely to be a form of De Quervain’s syndrome. The extra moisture that hypothyroid bodies hold on to swells tendons & then the rub as the pass through the joint. There are specific exercises which you’ll find online or you could ask for a referral to a physio . Educate your GP too. I couldn’t believe how effective the exercises were after 18 months of pain. It’s a common problem for hypos.

Quinc profile image
Quinc in reply toBertwills

Gosh - never come across that before. Wonder how they tested for it?

Bertwills profile image
Bertwills

if you google De Quervain’s tendonitis you will find lots of info hopefully including the simple exercises to improve the situation. Supports etc don’t tackle the underlying problem, give it a go, nothing to lose.

Lottyplum profile image
Lottyplum

Trigger finger/thumb? I had trigger thumb+cortisone injection sorted it!

Quinc profile image
Quinc in reply toLottyplum

Thanks … I’ll go to see doc again (to follow up on a blood test to see if there’s anything untoward) ..… better prepared

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