Oh. No. Looks like here I go again.: Posted last... - Thyroid UK

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Oh. No. Looks like here I go again.

sheenah profile image
6 Replies

Posted last week. I am due to have vascular surgery in a few weeks - lost the ability to walk - major blockages in both groins. Lo and behold, the GP now wants to see me regarding thyroid levels. I am nearly 72 now!

I have been taking thyroid-S for years - no problems, but I think I would like to try T3 alone and see what happens. Do you need a prescription for Thybon Henning? Not planning any major changes this close to the Op, but a few years ago I heard there was a good endo working in the Taunton area. I am so fed up as this could all delay the op. Any advice would be very welcome.

Sheena X

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sheenah
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Buddy195 profile image
Buddy195Administrator

Sheenah, I would edit the title of your post to alert more members, eg ‘Endo recommendation in Taunton area’ or ‘advice on switching from Thyroid-S to T3’

Information on named practitioners and obtaining medication without prescription can only be relayed via private message, not discussed on the open forum. As such, admin will shortly close the post to replies.

sheenah profile image
sheenah in reply toBuddy195

Thank you very much. I have taken note of what you have advised and will let the forum know how I proceed!

Sheena X

SlowDragon profile image
SlowDragonAmbassador

Do you need a prescription for Thybon Henning?

Yes

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to getting T3 on NHS

thyroiduk.org/contact-us/ge...

sheenah profile image
sheenah in reply toSlowDragon

SlowDragon!! Thank you for your reply. I am so pleased you are still out there, sharing your wisdom on our forum!!

I had a phone call this morning from the specialist pre-op nurse -( whom I have complete faith in) enquiring after my health. She said there were 2 problems regarding my planned surgery - Firstly my lung function - why had I not had a review of my COPD symptoms for several years? I replied because the Doctors surgery had not called me for a review although I had asked. I do not have a mobile phone of my own - I share my husband's. They don't seem to like that. I am so NOT tech savvy. I don't have a microwave either.

This review is happening on Monday 3rd Feb, only because the anaesthetist at the hospital has prodded the surgery - and secondly Thyroid function. TSH is surpressed ( has been for a long time) and T3 and T4 are all over the place. She is aware that I take NDT but said would I take levo if that is what he suggested and I said I would (uncharacteristically) do whatever I was told. I will do what ever it takes to be able to walk again. We just take walking, bending, lifting for granted until suddenly (or gradually in my case) it isn't an option.

I am nearly 72 now, and would really like to spend whatever remains of my life in a stable and brain-fog-free condition. My husband is 76, and fortunately is in good health and fairly fit. I think I had best make enquiries regarding Endos etc in the weeks prior to the surgery so that I am ready to pounce when it is all over - but I would ALWAYS welcome your wisdom and advice, and sooo glad that you are still doing your stuff!!

With Very Best Wishes

Sheena X

SlowDragon profile image
SlowDragonAmbassador in reply tosheenah

If TSH has been suppressed a long time it may never rise

It would certainly be likely to take weeks/months to move

Many anaesthetists are ok about suppressed TSH PROVIDING Ft3 is not over range

Ft4 very unlikely over range on NDT

You will have to test TSH, Ft4 and Ft3 and give anaesthetist results and discuss

Ideally test vitamin levels too

Why there’s a time lag on TSH changing….and might not ever change if been suppressed long time

healthunlocked.com/thyroidu...

Why TSH is sluggish - mechanism called 'Hysteresis'.

healthunlocked.com/thyroidu....

starts at the end of the first reply from Tattybogle : " To understand why TSH stays suppressed for a long time after an episode of hyperthyroidism/ overmedication, (or ANY T3 use) has finished... "

and is continued in detail much further down in another reply from me : " CONTINUED HYSTERESIS ~ Why TSH remains lower for quite along while following episodes of hyperthyroidism / overmedication .... (or any T3 use) , it is due (at least partly) to a mechanism called 'Hysteresis'.

SlowDragon profile image
SlowDragonAmbassador in reply tosheenah

I will do what ever it takes to be able to walk again

Yes …..I am awaiting knee replacement…..so can empathise

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