A few weeks ago I had a thyroid uptake scan, as a result of an appointment with an endocrinologist at my local hospital. During the meeting I stressed I could not be given Iodine as part of this investigation, due to how extremely unwell it makes me. He agreed I could have the test using an alternative injection solution. (I'm really sorry but I can't remember the name of what it was that was used). I had the test, and I am awaiting a follow up appointment with the Endo department next month regarding the results of this.
In the meantime I saw an immunologist over something else, and during this meeting he said he could see my results from the scan. He said " my thyroid is working fine", but then said I have a "beefy thyroid". We both agreed I would take this up with my endocrinologist during my next appointment as this wasn't really his forte/speciality.
I may be getting ahead of myself here but I know my thyroid isn't working "normally", due to the symptoms I experience. Weight issues, hand tremors, extreme sweating, premature oesteoporosis, hair loss, extreme fatigue, insomnia, ravenous appetite, thin skin, numerous vitamin deficiencies, hypotension, low body temperature etc (they are just a few).
I know I should wait until my consultation but I can't help but wonder/worry is his ever going to be resolved? Ive suffered with this since I was 14, I am now 32. My symptoms became progressively worse over the years. I suffered horrific "attacks" of some description before my periods in my 20's, they were so horrific I had a hysterectomy to put an end to my monthly symptoms. I was able to identify progesterone was a culprit in this, it somehow caused my symptoms (I trialled his via hrt for a few years prior to my op, and it would kick off my "attack" symptoms). I never understood it at the time but I have researched it thoroughly and I've come to the conclusion that I could have been suffering from thyroid storms prior to my menses, but the weird thing was I physically looked like I was suffering with myxodema (hypothyroid symptoms). I have established that progesterone stimulates the thyroid gland, as does Iodine, we'll certainly in my case those two were/are like poison to me. Certainly if they don't stimulate the gland, then they are doing something to have caused/cause me problems.
My thyroid gland swells in two sites. When the upper is swollen I get hand tremors, sweats, insomnia, vision problems, hunger, extreme thirst etc. When the lower part swells I become extremely constipated, I feel cold, get loss of appetite etc.
My bloods always seem to be in range, I don't have antibodies, but I know from my last attack (or whatever they are) last year my TSH was much lower than what it normally is, again still in range.
I used to suffer with a lot of severe anxiety and agitation prior to my menses, not so much now, but it's still a symptom. Unfortunately the health professionals thought I was/am suffering from Anxiety Disorder but I have always been adamant that ALL my symptoms are as a result of a physical problem. Because they are.
I know I shouldn't but I have been worrying about this, worrying that the endo at my next appointment will he just send me away stating there is nothing wrong/nothing can be done? , but I simple cannot carry on being in this state of health.
Does anybody know of anything I can do? Where do I stand in a situation like this? Has anyone else experienced a situation similar to mine? I apologise if maybe these questions are premature considering I haven't had my follow up appointment yet but as it stands my worry is getting the better of me. I just want this resolved now more than anything.