Thyroid conversation tips: Hi, I posted in... - Thyroid UK

Thyroid UK

142,309 members167,676 posts

Thyroid conversation tips

Awwy profile image
Awwy
4 Replies

Hi,

I posted in another group with regards to fatigue and body pain/sensitivity. I was told to post in here to get some advice. I have mixed connective tissue disease rheumatoid arthritis.

1. I am not on any thyroid medication

2. 3 years ago I was diagnosed with hashimotos disease

3. I have been discharged and referred back to endocrologist twice in 2 years. Currently not with endocrologist.

My current results:

My free T3 and T4 were done in January 23. They have refused to do them since.

T3 - 4.04 pmol/L

T4 - 12.3 pmol/L

TSH 3.43 mU/L. Test done in September 24. Fasting 9am.

Taking advice given 2 years ago I've been working on improving my vitamins and mineral levels.

B12 - 247 nglL

Serum foliate - 21.27 uglL

Ferritin - 64 ug/L

D - 27.9nmol/L

So I know my vit D is dire. I've tried everything to keep it up but the max I get it to is 50 and then it drops. I'm taking D supplements.

Is my thyroid 'normal' like they keep telling me and I need to concentrate with rhuematologist or is there something here? I really don't know how to pick up conversation with GP on thyroid again.

Thank you

Written by
Awwy profile image
Awwy
To view profiles and participate in discussions please or .
Read more about...
4 Replies
SlowDragon profile image
SlowDragonAdministrator

How much vitamin D are you taking

You obviously need to increase the dose

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function of Hashimoto’s

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Suggest you try 3 or 4 sprays per day

Retest in 2-3 months

You may need higher dose

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Recipe ideas

bbc.co.uk/food/articles/mag...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Awwy profile image
Awwy in reply toSlowDragon

Vit D I was on 4 October 2024

Strivit-D3 20,000unit capsules (Strides Pharma UK Ltd) for 4 weeks.

Following that result and then back to my supplements which is 1.25 lup (cant make the symbol on back of pack its a multiviatmin). I'll get the Better you spray.

Serum b12.

I have had the celiac test it was negative. I am on an anti inflammatory diet. I've done a gluten free diet I've not noticed a difference.

Magnesium has helped me sleep take that too

SlowDragon profile image
SlowDragonAdministrator in reply toAwwy

Multivitamins NEVER recommended on here

Far too low a dose of vitamin D

Poorly absorbed ingredients

No wonder vitamin D is so low

SlowDragon profile image
SlowDragonAdministrator

What’s the range on B12

Is this serum B12 or active B12

Hashimoto’s and food intolerance

If not already on gluten free diet get coeliac blood test via GP

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten. Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

Recent research in China into food intolerances with Hashimoto’s

healthunlocked.com/thyroidu...

More interesting Chinese research on Hashimoto’s and leaky gut

nature.com/articles/s41598-...

Not what you're looking for?

You may also like...

24 hour urine thyroid versus blood thyroid results please help

I have had 2 thyroid panels done-1 blood , 1 urine. I thinks the blood shows normal thyroid...
tickeyland profile image

trying to understand thyroid results

hi i wounder if any one knows about results cause i'm lost right now with trying to work this out.8...

Private thyroid results

Hi new here GP has been ignoring my symptoms for the past 4 years and refused to look into them so...
Natalie84 profile image

Thyroid Hormones on T4:T3 - please help

Hi, all! I've been following this forum for quite some time, finding help within these pages -...
Shkmigmo profile image

Advice regarding Thyroid levels

Hi Could do with some advice regarding my thyroid test levels. I have Hashimoto's but am not...

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
Jaydee1507 profile image
Jaydee1507Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.