I have had my repeat bloods and everything has come back ‘satisfactory’. I know that doesn’t mean optimal but I also know I’m going to have a hard time convincing the doctor that! I had my free T4 and anti bodies tested at the hospital when I saw the consultant last week, I have requested a copy of the results which I don’t have yet as the doctors couldn’t tell me the actual levels.
My results are below:
TSH - 1.84 range 0.27-4.2
Vit. D - 67.5 >50 sufficient
B12 - 492 range 197-771
Ferritin - 35 range 12-233
Folate - 3.3 range 2.4-26.8
The only thing over range was my inorganic phosphate which was 1.52 range 0.8-1.5. Not sure this has any relevance to anything.
I will update with my other levels when I have them from the consultant. My question really is should I concentrate on getting my vitamins up to optimal levels?if so what do you recommend I take? This test was done fasted at 7.45am. The hospital test was done around 12pm and I had had my breakfast as I didn’t know I’d be having a blood test.
If my Free T4 still comes back low in range would that be a case for a ‘trial’ of Levo? My symptoms are worse than ever!
Thankyou
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Seashell8915
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I would be prepared to fight. I did for six years and went private.
2019 was diagnosed
This month my GP overturned diagnosis and I'm back to square one.
There's an interesting article on the thyroid UK website about TSH and related tests which GPs seem to use rather the a talking to patients.
The system does not support us and we are left to fight to be heard and treated with respect. In my experience I would find a specialist and get everything written in stone.
That’s what I’m thinking,I can’t go on like this! I just need to get all my research and evidence together to prove there really is something wrong with me!
Even then the NHS will fight or change a diagnosis because they don't listen to patients symptoms.
I.am seeing a specialist in November because yet again I'm fighting the BS TSH golden rule and they've sent me into symptoms I've not had for 4 years because a GP decided I have Graves instead. Cut.my meds by 50mcg in one go.
So broken my remission and now they won't reinstate because apparently my opinion (not lived experience and research) which I clearly got "off the Internet" is being argued by my practice.
It's cost me thousands to get back to health. My advice is find someone you trust and be prepared to pay.
Your B12 and folate levels have dropped rather a lot—particularly if you compare them to last November’s test results. That would suggest that you’ve got an issue with gut absorption. That could tie in with brewing hypothyroidism but you don’t as yet have the blood test results to fully back that up.
I had them checked last week but with the hospital not the doctors and the receptionist couldn’t see the results, I can’t get a phone call with the doctor until the 2nd September 🙄 so just waiting for the hospital to get my results to me.
I am having gut issues and I have a sigmoidoscopy booked for the beginning of September to investigate further. I also had a ct scan last week but won’t hear about that for around 2 weeks.
I’m guessing I’ll have to private test to check the levels myself as I don’t think I’ll get anywhere with the doctors.
What time of day was this test? Recommended time is 9am or earlier, fasting and no biotin supplements for 4-7 days before.
We really need to see the FT4 & Ft3 too to make a proper assessment.
Vitamin D should be around 100 - 150. Buy one that includes vit K2 to help it go to your bones. Some are available in oil or you can take it with an oily meal for better absorption. Many members like the ‘Better You’ range of mouth sprays that contain both bit D & K2. Use this calculator to work out how much to take to get your level to 100-150.grassrootshealth.net/projec...
my interpretation.
Ferritin should be around 90 - 100 for best use of thyroid hormone. Suggest increasing iron rich foods in diet and eating them often. Chicken livers, pate, red meat etc
Thankyou Jaydee1507, I’ll have a read through the articles.
The test was done at 7.45am fasted and I don’t take any supplements. I’m hoping I can get hold of my Ft4 soon but not sure who to contact at the hospital. They didn’t test my Ft3 I don’t think,only my anti bodies (which I don’t know the results as they are with my Ft4) I will update if I receive them
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)
Post discussing how biotin can affect test results
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
Post discussing just how long it can take to raise low ferritin
Thank you for your incredible patience while you have been awaiting the outcome of our ferritin reference range review. We conducted this with Inuvi lab, which has now changed the reference ranges to the following:
Females 18 ≤ age < 40. 30 to 180
Females 40 ≤ age < 50. 30 to 207
Females 50 ≤ age < 60. 30 to 264l
Females Age ≥ 60. 30 to 332
Males 18 ≤ age < 40 30 to 442
Males Age ≥ 40 30 to 518
The lower limits of 30 are by the NICE threshold of <30 for iron deficiency. Our review of Medichecks data has determined the upper limits. This retrospective study used a large dataset of blood test results from 25,425 healthy participants aged 18 to 97 over seven years. This is the most extensive study on ferritin reference ranges, and we hope to achieve journal publication so that these ranges can be applied more widely.
Thanks for all the info SlowDragon,you are very helpful! I will read through everything tonight and definitely start supplementing. I will start private testing as I know I’m not going to convince the doctors after these last results! I am not vegan or vegetarian and eat a healthy varied diet. I’m 34 and as far as I’m aware not starting the menopause.
I’m hoping the consultant rings tomorrow to discuss the T4 and antibody results. I will then hopefully know what my levels are.
I’m sure I saw both antibodies listed on the hospital sheet along with freeT4. I’m going to ring the hospital tomorrow until someone can give me my results.
I had a scan on my neck and thyroid in July, they found a nodule on the right side which they said looks benign. Also a raised lymph node on the same size which looks normal in appearance (this was all the information in my letter). I have had to contact medical records to get a copy of my scan report as no one seemed to want to give me it. So again I am just waiting for that to come through the post (I seem to be doing a lot of waiting to get results!) it will be interesting to see what else the report says.
I did have a coeliac test in November and that was negative so will definitely try gluten free. I have cut bread out so far but will more strict and go totally gluten free from now on.
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Increased anxiety…
Menopaused. Would starting HRT mean reducing NDT? Has anyone experience of this please?
I’m fine. Really?
Thyroidectomy or not? Thyroidmegaly and multi modular goiter. 
methinks it's time to add some T3......thoughts ?
