So wondering if you good people could give me some pointers. I have been on levo over a year now. I have got my dosage up from 50mg to 125mg Accord. Now having done 3 private blood tests (and c a couple of GP tests) although my TSH is down my T3 is also down on what it was. I am still experiencing hypo symptoms and it feels to me that my next course of action should be to add T3 to the mix, so looking for validation on that and recommended approach. I am not looking to go through the GP (very much still looks at TSH).
All tests done first thing, stopping all dosing 24 hrs before.
Also I am taking vit D+K, B complex, Magnesium, Zinc,Fish Oil, L-Glutamine
All help gratefully received
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StanleyThyroid
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Thank you, my results from end of last year are above. Specifically I am taking high dose Vitamin D 10,000 iu (I went from 4,000 post this result). I am not sure if the other levels are optimal (will post second image below)
To be honest I have seen a fair few clinicians in my years of managing my intolerances and I would say that only the Oxford professor who diagnosed my gluten intolerance 25 years ago has actually helped. It was only through a chance encounter that I was advised to check out my thyroid 18 months ago. (The last food allergy specialist I saw, who also is a university lecturer, advised me that my brain fog was due to a lack of carbs from following a keto diet🥺)
That said I do wanted to go the right way here so keen to accept recommendations and thanks for your inputs.
Roseway Labs is a place to buy T3 in the UK. But you need a prescription so they offer a very reasonable prescribing service for less than £40. As @TiggerMe says, they talk to you on the phone and review a set of bloods you provide in advance and then they write you a prescription with repeats on it and you can draw it down from the lab as you need it.
I've been using it for some time now and am very happy with it. You don't get advice as such, they just make sure you know what you are doing, why and what your aims are. They keep an eye on you by asking you to book another phone consult now and then. I'm due one soon I think.
It gives me peace of mind. My meds aren't going to get lost in customs or post. I can't be scammed. There's continuity of supply. The medications they supply cost more than the Tiromel we might find in Greece or Turkey, but it's good stuff. T3 is Thybon Henning from Germany.
Ft4 is top of range and FT3 only 24% through range so conversion appears to be an issue.
You can email info@thyroiduk.org for a list of T3 friendly Endo's/doctors. Pick a couple and start a new post asking for feedback via PM only. Remember some doctors offer virtual appointments that can widen the area you look for, also Roseway pharmacy prescribing service.
Plenty of us do it. I've been on self sourced T3 since December. I think there are a number of pluses, you dont have a long wait for an NHS Endo, who might not be T3 friendly. Or might not agree that you need it.
You dont have to worry about keeping your TSH in range just to please them, you dont have to stay undermedicated, ditto. You dont have to worry about the NHS deciding T3 is too expensive and removing your prescription. Or GP's being difficult about ongoing prescribing.
Yes self sourcing can be a pain as obviously its an added expense, although Tiromel isnt expensive. You are at the mercy of global supply issues and this can be a problem as suppliers can come and go but if you ask for sources on the forum to be sent via a private message, then I'm sure you'll get suggestions.
I absolutely agree but the bottom line is that T3 is, in extremis, a life saving treatment. Patients should not be left to trawl the world to source it when it can be produced relatively cheaply....it's a scandal of monumental proportion.
We are fortunate in that we understand T3 so can source it and correctly use it to self medicate.
But, how many are quietly suffering and dying behind closed doors because they do not have the knowledge to dig themselves out of a miserable thyroid hole.
It's not rocket science yet the NHS are failing in their basic philosophy....First Do No Harm!
They are causing untold harm....and I for one, in years gone by, nearly didn't make it to this point until I discovered that I need a supraphysiological dose of T3.
My GP thought I was killing myself....conversely, I was keeping myself alive!
There needs to be a level playing field for every thyroid patient!
Its your choice if you want to self source but be aware that there are scammers in this group, so if you get a personal message suggesting a source you should always run that by an admin who can give you any feedback we have about the source.
We cannot self source T3 in the UK it is prescription only.
However we can buy from private sources abroad which obviously comes with possible problems of reliability of supply.
It is legal to import T3 for personal use
You could post giving details of your medical condition and treatment. Ask for sources which, if offered, can then be checked with Admin who are generally aware of scams and the like.
I would suggest you first follow Jaydee's advice and find a T3 friendly medic (NHS or private)...that suggestion comes from someone who self medicates and is aware of possible (long term) problems eg lack of supply, supply during hospital visits or care home stay.
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Beta blockers, Levo, T3, High Cortisol, Hashis
T3 or just stick with t4
t3
t3
Update: GP Reducing Levo - TSH Low / T4 / T3 in range
