Nodules: Hi I have quite a few thyroid nodules I... - Thyroid UK

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Nodules

jaina1 profile image
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Hi I have quite a few thyroid nodules I have had for years, and Iam looking for advice on herbs supplements that will help make them go, all my blood test have come back normal though ferritin low,

I heard of an ayurvedic herb that is meant to make them go but cannot find anybody in uk selling it.

I was on ribavarin in 2007 for hepatitis which I read can cause nodules

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jaina1
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greygoose profile image
greygoose

Are your nodules causing you any problems? Restricting your breathing or swallowing? If not, why bother about them? They're harmless and most people have them, thyroid problems or not. :)

Doodledoo2 profile image
Doodledoo2 in reply to greygoose

I feel that is not necessarily a comprehensive reply. I have Hashimotos and live in the US. When I was first diagnosed they gave me an ultrasound and were concerned one of my nodules was a “cold” nodule and could possibly be cancerous. I had it aspirated. Luckily not cancerous. I now get an ultrasound usually every 6 months to check on the size of the nodules. This has been going on for almost 20 years.

greygoose profile image
greygoose in reply to Doodledoo2

Well, I'm sorry my reply wasn't comprehensive enough for you. I'm not your doctor, I'm not obliged to give you comprehensive replies. Maybe someone else can do better.

jaina1 profile image
jaina1 in reply to greygoose

Thanks for your reply, one of them is pressing on my windpipe or something in there, it seems to go up and down, just wondering how i can keep inflamtion down apart from the obvious gluten etc

greygoose profile image
greygoose in reply to jaina1

OK, so this is really a question about inflammation. The usual thing with nodules is to have the thyroid removed. But, I think there's a new proceedure in Holland, but I know nothing about it. Maybe someone else will respond later in the day to talk about it.

But I'm not sure ayurvedic herbs are the answer. And I don't think there is any way of just making nodules go away. Otherwise, everyone would be using it, because most people have some nodules.

If I were you, I'd put your actual numbers in your post: results and ranges. Because just saying that your results are 'normal' is meaningless. :)

Poniesrfun profile image
Poniesrfun in reply to greygoose

Radiofrequency ablation (RFA) is becoming more popular. Up to recently, it was only available at private clinics (vs academic or cancer centers) and only done on tested benign nodules but at last October’s ThyCa conference there was talk of using it on small carcinomas. It’s non-surgical and done outpatient. I imagine in the UK you’d have to find a private clinic. christie.nhs.uk/media/klahz...

As I’ve heard it explained it is more precise than either alcohol or laser ablation. One caveat I’m aware of is the nodule has to be accessible (and viewable on ultrasound) so a nodule in the back of the thyroid might not be a candidate for ablation.

Patti in AZ

greygoose profile image
greygoose in reply to Poniesrfun

That's what I was thinking of! Thank you. I couldn't remember the name. :)

jaina1 profile image
jaina1 in reply to Poniesrfun

Thank you ys i have been looking into this and will try and get a refferal from my Dr.

jaina1 profile image
jaina1 in reply to greygoose

Thanks for your reply, I am not going to have thyroid removed. All my bloods come up within range, have had nodules for about 20 years, just had emough of them now. not on any meds

greygoose profile image
greygoose in reply to jaina1

No, I wasn't suggesting that you should. Just saying what normally happens.

PinkSkittles profile image
PinkSkittles in reply to greygoose

People are reducing their thyroid nodules. Iodine can shrink them. As can radio frequency ablation.

greygoose profile image
greygoose in reply to PinkSkittles

I think most people have got more sense than to take iodine. Not something I would recommend to anyone.

PinkSkittles profile image
PinkSkittles in reply to greygoose

If you do a 24 iodine urine loading test and it shows that you have an iodine deficiency it definitely makes sense to take iodine.

Furthermore people have shrunk their thyroid nodules and improved their thyroid function by taking iodine. The iodine facebook groups are full of such stories.

greygoose profile image
greygoose in reply to PinkSkittles

Yup, they sure are! And I wouldn't go on anyone of them. Been there, done that and avoid iodine like the plague!

Obviously if you are tested and found deficient then taking iodine is the best thing to do, but only under the supervision of an experienced practitioner. Iodine is not something to self-treat with. It doesn't improve thyroid function. In the early stages of supplementation it stimulates the thyroid to make more hormone, but if the gland is sick, that cannot last forever. Stimulation will just hasten its demise. And, in excess, iodine is anti-thyroid. It used to be used to treat Graves' before anti-thyroid drugs were invented.

PinkSkittles profile image
PinkSkittles in reply to greygoose

If we can self treat with thyroid hormones and learn the dos and donts we can do the same with iodine.

greygoose profile image
greygoose in reply to PinkSkittles

Well, I totally disagree with that. But, we'll just have to agree to differ.

PinkSkittles profile image
PinkSkittles in reply to greygoose

Yes there are so many different opinions with regards to how to treat health issues aren't there. I always come across opposing ways to treat things.

greygoose profile image
greygoose in reply to PinkSkittles

So do I, for a lot of things. But, having experienced iodine, I would like to force-feed it to the cretin that prescribed it for me, but I wouldn't recommend it to anyone else.

jaina1 profile image
jaina1 in reply to PinkSkittles

I cannot take iodine , it sends me crazy

radd profile image
radd

jaina1

Hepatitis meds have both a direct toxic effect on the thyroid gland as well as immunomodulatory influence involving lymphocytes (WBC’s). I read people who don’t recover from the meds side effects likely had thyroid antibodies previous which become heightened during med taking establishing Hashi -hypothyroidsm.

Therefore, I don’t think it’s the nodules you need to target but the immune system to help control further dysfunction. The aim is to reduce thyroid antibodies that for many people signify the extent of autoimmune attacks creating thyroid gland swelling, nodules and cysts . Have you been tested for TPOAb and TGAb?

I don’t know much about of ayurvedic herbs but Isabella Wentz wrote ‘The Root Cause’ offering great insight into ways of calming the (auto)immune response, and reducing direct inflammation created by the glands lymphatic infiltration and resulting systemic (auto)antibody mediated inflammation. General supplements often quoted to target Hashi inflammation are Vit D, fish oils and curcumin. Many forum members have also had success by adopting a gluten-free diet.

If you feel hypo, then having a deficiency of thyroid hormone can indirectly contribute to further autoimmune attacks. You are legally entitled to a copy of your thyroid hormone level test results which if you post here complete with ranges (numbers in brackets) members will comment on.

jaina1 profile image
jaina1 in reply to radd

Hi Thank you for your reply, and great info, I had TPO test but as everything else was in range do you think I should have TGAb, would my TSH go up if this was a problem?

I have started again on a gluten free diet,and will try and get "The Root Cause"

Will see if I can get my results to put on here, many thanks again

radd profile image
radd in reply to jaina1

jaina1,

A positive TPOAb or TGAb test offers a Hashi diagnosis but a negative test does not rule it out because thyroid antibody levels fluctuate. They also appear to fall as the immune system wears out after years of internal turmoil.

Rather than focusing on a diagnosis when you already have nodules if it were me I would assume a Hashi diagnosis and be following protocols to discourage further autoimmune dysregulation as explained above.

If you are symptomatic, your thyroid hormone levels results will be useful in determining if thyroid hormone replacement meds are required but they only offer half the picture, as a dysregulating immune system and nutrient/iron deficiencies can make you feel very unwell also. Therefore, your herb might be renowned for modulating the immune system and helping to shrink nodules, etc but you might require the whole package to achieve/maintain well being.

jaina1 profile image
jaina1 in reply to radd

thanks for your reply, I will look into hashi protocol. I took my temperature this morning , it was 35.8 it is normally 36.6 around that , please do you know if this means thyroid is struggling more?

radd profile image
radd in reply to jaina1

jaina1,

Thermo-dysregulation is common in thyroid disorders. We not only need adequate thyroid hormone levels but for them to be working effectively for good heat production/conservation in the thermogenic tissues. They govern activity in BAT regarding non-shivering thermogenesis but I remember internal shivering with an awfully painful coldnesss in a very hot bath, and that type of coldness can never be alleviated until thyroid hormones are working effectively.

This takes time with optimised cofactors such as nutrients and controlled levels of thyroid antibodies. Research shows hypothalamic T3 to influence sympathetic stimulation of BAT and thermogenesi and once my thyroid meds were right I started experiencing better temp control and thankfully the inner shivering has never returned.

The hypothalamus neurons have some control over temperature regulation (and general homeostasis) by influencing many other hormones affecting appetite, growth, sleep (melatonin from pineal gland), etc and controlling the pituitary that in turn controls our thyroid gland (which influences our cells basal metabolic rate), and adrenals, so there is a lot that can go wrong in any of these glands or neurotransmitter activity centres.

In order to function well the hypothalamus needs it’s own supply of fuel, and adequate levels of dopamine, etc. Both serotonin and dopamine require adequate levels of B vits, etc, so you may find working towards optimising thyroid hormones and nutrients helps to regulate many other hormones and neurotransmitters that will eventually regulate your temperature better.

jaina1 profile image
jaina1 in reply to radd

Thank you for your reply, I am not on any meds and my Dr says i am fine I will get TGAb tested privately if I can find someone who will do it seperately, would you suggest I see a functional practioner? as it is all so complicated and do not understandhow everything works. Can you recommend anyone please, I am in Devon

jaina1 profile image
jaina1 in reply to radd

This is my last thyroid test, also have full blood count dont know if that would help,

I would be very grateful of any advice as to other tests i should get, am looking for TGAb. (I get very anxious, feel the cold, thinning hair,tender breasts, get very breathless)

Your result is 4 FT3 levels normal (normal range 3.1 - 6.8 pmol/L)

Your result is 17.2 FT4 levels normal (normal range 12 - 22 pmol/L)

Your result is 0.39 TSH levels normal (normal range 0.27 - 4.2 mU/L)

my ferritin is 29ug (13-150)

Folate mine was 15.1 (2.1)

My B12 was high, over 1000 but cannot find exact result at the moment

07/02/2024 Negative (10 IU/mL) You have normal levels of TPO antibodies. If your thyroid tests show a subclinical hypothyroid pattern, this suggests that you have a lower chance of developing an underactive thyroid in the future. If you have already been diagnosed with an underactive thyroid, this result does not indicate whether or not this condition is caused by an autoimmune disease affecting the thyroid. Up to 1 in 10 people with an autoimmune underactive thyroid condition have normal levels of TPO antibodies.

PinkSkittles profile image
PinkSkittles

Which ayruvedic herb are you looking for?

jaina1 profile image
jaina1 in reply to PinkSkittles

kalanche dalge montana

jaina1 profile image
jaina1 in reply to PinkSkittles

sorry it is Kanchanar guggal not the kalanche dalge

jaina1 profile image
jaina1 in reply to jaina1

planetayurveda.com › library › kanchanar-guggulu

PinkSkittles profile image
PinkSkittles in reply to jaina1

I think I've bought this in England let me check.

jaina1 profile image
jaina1 in reply to PinkSkittles

Thank you do you know did it help?

PinkSkittles profile image
PinkSkittles in reply to jaina1

I just checked yes I did buy it in 2019. The website is german and they dont ship to england anymore as we are not in the EU. I took x3 per day for 3 months and it didnt improve my symptoms.

I just googled it and it is available in england.

jaina1 profile image
jaina1 in reply to PinkSkittles

Thank you, think it was the cream I was trying to get for topical application

PinkSkittles profile image
PinkSkittles in reply to jaina1

Oh Ive never seen cream. Any reason why you want cream?

jaina1 profile image
jaina1 in reply to PinkSkittles

I wish I could remember where I read it but it suggested that it worked really well at ,making nodules go

PinkSkittles profile image
PinkSkittles

Iodine can shrink them. I'd recommend joining a few iodine facebook groups. There are also one or two nhs trusts which do radio frequency ablation to reduce them.

I'll also post a link below with some more recommendations.

PinkSkittles profile image
PinkSkittles in reply to PinkSkittles

forefronthealth.com/how-to-...

helvella profile image
helvellaAdministratorThyroid UK in reply to PinkSkittles

I am confused. You have just been pointing people towards iodine supplementation.

Then link to a page which says:

Supplementing iodine can actually make your thyroid condition much, much worse.

PinkSkittles profile image
PinkSkittles in reply to helvella

And it also says if you are deficient then you need it.

helvella profile image
helvellaAdministratorThyroid UK in reply to PinkSkittles

But says:

Iodine deficiency must be confirmed through a 24 hour urine collection test.

Not a loading test as you suggested.

PinkSkittles profile image
PinkSkittles in reply to helvella

I guess that's different points of view. Some people believe that an iodine urine loading test is best but this article suggests a different test.

jaina1 profile image
jaina1 in reply to PinkSkittles

Thank you, have tried iodine, it sends me crazy and very hyper. thanks for other info

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