thyroid results need advice : had a test with... - Thyroid UK

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thyroid results need advice

elwins profile image
23 Replies

had a test with medichecks and need advice on my results.

TSH 0.61. Range 0.27-4.2Mu/L

Free T3. Range 3.3 - 3.1-6.8 pmol/L

Free thyroxine 20.5 range 12-22 pmol/L

Looking if these levels are good or should I be on a combination of t3/t4 instead of thyroxine.

Had underactive thyroid for nearly 70 years. Just had nerve tests done on my feet and legs but it is not neuropathy. Wants me to see a neurologist next, looking at Parkinson’s next.

Need advice from wonderful people on this site.

Vitamin levels are good.

Thanks

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elwins
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23 Replies
TiggerMe profile image
TiggerMe

Push to see an Endocrinologist and a trial of T3 🤗

elwins profile image
elwins in reply to TiggerMe

thanks for that advice much appreciated.

TiggerMe profile image
TiggerMe in reply to elwins

I can honestly say you have the worst conversion rates I have seen! Perfect results to push for a T3 trial

I don't know if Neurologists are wise to T3?

TSH 0.61 mIU/L (.27 - 4.2) 8.7%

Free T4 (fT4) 20.5 pmol/L (12 - 22) 85.0%

Free T3 (fT3) 3.3 pmol/L (3.1 - 6.8) 5.4%

T4:T3 Ratio 6.212 

elwins profile image
elwins in reply to TiggerMe

Thanks for that will do.

elwins profile image
elwins in reply to TiggerMe

yes vitamins are good. Thanks

elwins profile image
elwins in reply to TiggerMe

Thanks for being so helpful can you explain a bit more why you feel my conversion rates are the worst you have seen. Any help would be much appreciated. Thanks

TiggerMe profile image
TiggerMe in reply to elwins

With your ft4 at the top of the range and your fT3 right at the bottom shows that you aren't converting T4 (storage hormone) to the active/ useable fT3

Your ratio shows that you have 6 times more fT4 than fT3 when someone that converts well would have a much lower ratio

elwins profile image
elwins in reply to TiggerMe

thanks much appreciated, kind of you to reply.

TiggerMe profile image
TiggerMe in reply to elwins

I had similar results and was able to get an NHS referral and T3, they don't really have any other good options as they can't fob you off with more T4 when already top of the range 🤗

lindyloo2018 profile image
lindyloo2018 in reply to TiggerMe

Hello

I also have thyroid problems, my RA/immune system is attacking by thyroid but I am told all is ok at the moment because my thyroid is still working., I also have diabetes type 1 and use insulin.I have an endo appt in the next few months. any tips on what I should be asking them ? many thanks

text
TiggerMe profile image
TiggerMe in reply to lindyloo2018

So these results are with no hormone replacement?

How are you feeling? Your fT4 has been low in all of these results but I would imagine your TSH has risen due to low fT3 (the active hormone) as you thyroid function has diminished, I'd recommend getting a full thyroid panel done to see what is really going on. Have you any results for folate, ferritin, Vit D and B12?

lindyloo2018 profile image
lindyloo2018 in reply to TiggerMe

Hi, results below, no-one seems interested in my thyroid, not diabetes nor rheumatoid consultants.. any help you could give me would be great, shall I ask GP for full thyroid panel blood tests ?

text
TiggerMe profile image
TiggerMe in reply to lindyloo2018

(Ought to start your own post really as Elwins will be getting these replies)

Was the TSH of 7.64 taken pre 9am? With a result like that you should be asking you GP to start you on levothyroxine, chances are he will refuse until you have another test in 3 months that is also above range.... incredibly they won't do a full thyroid panel so you'd need to get a private one Monitor My Health is the cheapest (with TUK10 discount) if a finger prick one is doable, it's an NHS lab so they can't really argue with those results

SlowDragon profile image
SlowDragonAdministrator

was test done early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

are you still on only 50mcg

That’s only the standard STARTER dose

You say vitamin levels are good

Please add actual results and ranges

What vitamin supplements are you taking

Have you had thyroid antibodies tested for autoimmune thyroid disease

elwins profile image
elwins in reply to SlowDragon

Had a medichecks advanced well women blood test done, followed protocol re blood testing done.

Folate 8.76 ug/L

B12 active 117 pmol/L range 37.5-150

Vitamin d 79 nmol range 50-175

Still on 50 dose per day, taken at least 1 hour before breakfast. Dose reduced from 75 per day at my annual blood test.

Thanks for your help much appreciated.

SlowDragon profile image
SlowDragonAdministrator in reply to elwins

Folate low

No ferritin result?

Vitamin D better around 100nmol

what vitamin supplements are you taking

What was result on 75mcg

Did you feel better on higher dosage

elwins profile image
elwins in reply to SlowDragon

ferritin levels are 198 range 13-150 ug/L

Sorry forgot to include it.

Using Thorne basic B complex

Better by you mouth spray with K2 for vitamin D

All recommended to me on this site.

My feet felt better on higher dose, but was still having problems. but wondering if I am converting t3/t4 properly.

Thanks for help much appreciated.

SlowDragon profile image
SlowDragonAdministrator in reply to elwins

Looking like you need T3 prescribed alongside levothyroxine

Roughly where in U.K. are you

Here’s link for how to request Thyroid U.K.list of private Doctors but also list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

is your hypothyroidism autoimmune ie Hashimoto’s

Are you on gluten free and/or dairy free diet

elwins profile image
elwins in reply to SlowDragon

Thanks for reply, yes I am gluten free have been for several years, watch my dairy intake so I do not have too much. I live in Nottinghamshire. Thanks

SlowDragon profile image
SlowDragonAdministrator

you will probably be interested in this post by Lottyplum

healthunlocked.com/thyroidu...

And her previous post with thyroid and vitamin results

healthunlocked.com/thyroidu...

Lottyplum profile image
Lottyplum in reply to SlowDragon

Thankyou. I will sit down with a cuppa after I've been shopping. Got my pill cutter! Ready for T3 to drop thru my letterbox.😁

Bearo profile image
Bearo

Just for comparison: my FT4 is 62% through the range and my FT3 tracks about 10 points behind at 54% through its range (ok 8 points on that test). So I convert well - if my FT4 goes up my FT3 generally follows along behind, a bit lower.

But there is a big gap between your free levels. Even if you took more Levothyroxine and had FT4 at top of the range your FT3 would still be too low. That’s why adding Liothyronine would probably be better for you.

elwins profile image
elwins

thanks for that need to find a endocrinologist based in Nottingham but not having much luck, will keep looking might have to travel. But thanks.

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