Following on from my post the other day, I've had my endo appt and also got the updated results. So on June 9th, my results were as follows:TSH 0.01 mIU/L (0.27 - 4.20) -6.6%
Free T4 (fT4) 15.4 pmol/L (11.0 - 25.0) 31.4%
Folate - Serum 4.1 ug/L (≥ 3.0)
Vitamin B12 (Total) 2000 nmol/L (180 - 900) 252.8%
Ferritin 34 ug/L (15 - 300) 6.7%
Potassium 3.9 mmol/L (3.5 - 5.3) 22.2%
Sodium 142 mmol/L (133 - 146) 69.2%
No FT3 results done or Cortisol which the endo also wanted checking, hence the additional tests before my appointment with him was rescheduled.
On July 27th my FT4 had dropped considerably and these were my results:
TSH 0.01 mIU/L (0.27 - 4.20) -6.6%
Free T4 (fT4) 9.7 pmol/L (11.0 - 25.0) -9.3%
Free T3 (fT3) 3.8 pmol/L (3.1 - 6.8) 18.9%
Potassium 3.8 mmol/L (3.5 - 5.3) 16.7%
Sodium 141 mmol/L (133 - 146) 61.5%
I'm lucky that my endo is actually quite good since I've moved. He seems to have a good grasp of endocrine conditions as a whole and not just a focused diabetes specialist like so many. He actually seems to understand more than most about Addisons and especially Hashimotos, we went through my blood work together, he was surprised and concerned with the sudden and considerable drop in my FT4 and he said from looking at the previous FT3 results that's dropped too but I forgot to write it down, and can't remember what it was. I know in Feb my T4 was dropped from 125mg to 100mg because I ended up in hospital when my BP flew up stupid high, i wnded up in a crisis, and had a real bad endo consult and while I was there, she basically told me I was making myself ill, and the ED physician hadn't helped by putting me on a HC drip (even though it helped bring my BP and pulse rate back down) she stopped it and sent me home! Haven't felt right since, in June I had a massive UTI that led to viral Meningitis. I was so ill it led to adult version of febrile convulsions, my speech went, I had no control over my bladder, my temp was through the roof and my BP through the floor. I don't remember the first 3 days of being in hospital at all, slivers from the evening of the 4th day and barely anything from the fifth. I couldn't even tell you what day I came home.
The June blood tests were taken BEFORE I became ill, and the one thing the endo pointed out today was if anything, they should've been higher than normal, when taken in July as I was still recovering, still not 100% and on sick day rules doses of my steroids. But they'd dropped and he couldn't say why.... 🙄 🤔
Hes put me back up to 125mg, split my T3 into two doses again -the stupid endo from Feb had put them into a single night time dose, the only time I split it since was the days prior to my look tests so as not to mess that up.
I'll have to dig out my Feb blood results just to see what the FT3/4 results were, see if they were higher than June's.
He wants me back in 6mths, full bloods before again, but I've also asked him to check my Vit D this time too.
Any advice greatly appreciated. Thank you everyone. 😊
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