Does anyone know Best online source for T3... - Thyroid UK

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Does anyone know Best online source for T3...

eyeshadow profile image
11 Replies

I would be extremely grateful if any of you could message me with any good/trusted online sources for T3...

Docs will only prescribe T4 levothyroxine which makes me feel horrendous!

Many thanks

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eyeshadow profile image
eyeshadow
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11 Replies
RedApple profile image
RedAppleAdministrator

Welcome to the forum eyeshadow.

'Docs will only prescribe T4 levothyroxine which makes me feel horrendous!'

Being on the wrong dose of any thyroid hormone replacement can make you feel horrendous 😊

What makes you think you need T3? Please tell us more. What dose of levothyroxine are you on? And what were your most recent thyroid test results?

Since you're asking for sources of T3 without prescription, please read this post healthunlocked.com/thyroidu...

eyeshadow profile image
eyeshadow in reply to RedApple

Hi , thanks for your reply.

I was told by my GP in 2010 that my TSH was high and so was prescribed Levothyroxine due to hypothyroid symptoms. I took this medication for approx 2 months and began to feel terrible so I stopped taking it.

I have suffered from depression and lethargy since my early teens and have always used exercise to alleviate these feelings. As far as I was concerned the tablets were not doing me any good whatsoever and they were like a toxic substance that was making me feel very uncomfortable.

I was diagnosed with insulin dependant type one diabetes 5 years ago and my Endo said that I should have continued my Levothyroxine medication and he alluded to the fact that this may have led to my T1D! I explained that the T4medication made me feel like crap etc and basically he is a brick wall and incredibly unhelpful to my overall health. My diagnosis of T1D was late and by the time the T1D diagnosis was made I had lost my eyesight and was also suffering from massive pain in my legs due to neuropathy. My lenses were surgically removed and replaced at Huddersfield royal infirmary yet my neuropathy remained. I was offered many different tablets for my pain yet none helped.

Recently one of my routine T1D blood tests at my clinic revealed high TSH levels again and the GP rang me to ask why I'm not taking Levo T4 to which I replied that once again this stuff makes me feel horrendous.

Having studied hypothyroidism online I have realised that maybe I don't have the ability to convert T4 to T3 and so maybe treatment with T3 could be a much better way to treat my high TSH. I realise that getting T3 from my GP will be a task and a half since they all think that T4 is the only way so to bypass the headache of dealing with GPs and Endos I would rather find the Liothronine online instead.

PurpleNails profile image
PurpleNailsAdministrator in reply to eyeshadow

Sometimes if nutrients aren’t optimal tolerating Levo is difficult. 

What brands have you tried? 

Some need to start off on extra low dose eg 25mcg & increase in smaller & slower increments. Eg 12.5mg every 2 month.  

Standard is 50mcg with 25mcg increases at 6 weekly testing & adjustments.  Some can tolerate higher dose and quicker increases others don’t.  

What dose have you started on? 

Do your tests results show consistently history of high FT4 and low FT3 despite optimal nutrients?  Because you might not have conversion problem, you might find if you can build to the right level of Levo your health is improved.

If you have any results post them.

eyeshadow profile image
eyeshadow in reply to PurpleNails

Thanks for your comments and I hope you are too hypo and in full realisation of my predicament...otherwise maybe you are not truly aware of the hypocrisy that is prevalent among the UK medical world...

is it almost like force-feeding poor subjects with poison! even though there is an alternative tablet which will probably work perfectly well without any side effects?

If T4 doesn't work it doesn't work...whatevr strength/brand/adminstration etc....

There is a load of evidence that suggests and explains that many people just don't have good results with Levothyroxine whereas treatment with Liothyronine can definitely improve symptoms immediately. You can see evidence that T3 works all over the internet yet there is still a baffling reluctance to accept this knowledge...

dtate2016 profile image
dtate2016 in reply to eyeshadow

Bravo, Encore, Bravo, Encore! If it doesn’t work it doesn’t work absolutely!

RedApple profile image
RedAppleAdministrator in reply to eyeshadow

I'm so sorry you've been through all this eyeshadow. The good news is that you have come to the right place to get help and support. Bear with us and members here will give you lots of excellent advice and guidance.

Before we can take this any further though, can you please clarify:

Are you on any levothyroxine at the moment?

If yes, what dose and for how long have you been on this dose?

If no, what dose/s have you previously been prescribed?

When was your most recent thyroid blood test? What was the result? We need actual numbers. If you don't have this information, you can contact your surgery to ask for it.

Do you know whether the cause of your hypothyroidism is automimmune? i.e. Have you had a positive thyroid antibody test?

eyeshadow profile image
eyeshadow in reply to RedApple

That's kind , thank you.

I'm not taking my 25 mg Levothyroxine cos as I said it just makes me ill... headaches, dizziness, tremors, irritability, nervousness, anxiety.

The GPs have changed the strength over the years yet nothing changes my negative reaction to the tablets. I have tried taking it at different times of the day before food , after food, etc etc etc...yet nothing makes Levothyroxine work for me.

I am very healthy as I say , I do exercise every day , aerobic, anaerobic, I eat well , don't drink don't smoke...

My latest labs were 36 TSH or as the nurse said over the phone "your TSH levels are very high...?

It's insane that they just WILL NOT consider prescribing Liothyronine. I truly don't understand what the problem is??? What I do understand is the cost difference of T3 and T4 but yet this in itself is so ridiculous and as far as I can tell it is just the UK and the NHS that has this problem with T3...

I can only go by what my GPs have said in the past as far as why I'm experiencing hypothyroid symptoms and that is auto-immunity.

One doc said that it's probably Hashimoto’s ...? whatever the hell that is...I just think that GPs are a joke tbh!

I am a type one diabetic so chances are that my hypothyroidism is an auto immune condition too.

I am so grateful to science that I have insulin at my disposal otherwise I would have died a few years ago. I am truly baffled to discover that bodybuilders abuse insulin and T3 for their vanity! I am not normally so judgemental yet sometimes things such as this really piss me off.

I am also very aware that bodybuilders also abuse T3 along with steroid usage. I have seen this online when I have been trying to buy T3.

I am not happy to have to basically treat myself for my conditions yet what choice do I have? GPs just don't have the time for me so I have no choice.

RedApple profile image
RedAppleAdministrator in reply to eyeshadow

A TSH of 36 is indeed high and indicates an urgent need for replacement thyroid hormone. Most people find that they feel like cr-p on too little levothyroxine, and are tempted, like you, to stop taking it. I know, I've done this myself.

However, you can't just jump into taking T3. It really doesn't work like that. Again, I've been there myself. Very few people can exist on T3 alone. Most people need at least some T4 alongside the T3.

You really do need to start taking the levothyroxine again, but not at the ridiculously low dose of 25mcg daily. That isn't enough for anyone and you'll feel awful because the dose is too low. Imagine if the only nourishment you consumed were to be one bagel a day. It wouldn't be too long before you started to suffer from malnutrition and felt dreadful. But it wouldn't be the actual bagel that caused you to be unwell. It would be too little food.

Once you have got onto a stable and sensible dose of levothyroxine, (typically that means getting onto a dose that gets your TSH down around 1), you would then be in a better position to decide whether, and how, to start introducing T3.

Recovering from hypothyroid state isn't something that happens in a short length of time. It typically takes several months as a minimum, to get to the right dose of thyroid hormone that makes you feel well. I'm absolutely not trying to discourage you from trying T3. I'm trying to emphasise how difficult it is for so many of us to get the right amount of the right thyroid hormones to allow us to have a reasonable quality of life.

There is no one size fits all, it's a long, long process of trial and error, with many downs and few ups until you get close to what works for you.

RedApple profile image
RedAppleAdministrator in reply to eyeshadow

In order to make an informed decision about whether or not you can convert T4 to T3, you need to have been on an appropriate dose of levothyroxine for a reasonable length of time (minimum 8 weeks). Then you need your TSH, FT4 and FT3 levels tested.

Because NHS does not usually test anything beyond TSH, many members here have taken control of their own thyroid testing by doing private tests. The best value baseline TSH, FT4 and FT3 test is this one monitormyhealth.org.uk/thyr...

Follow this link for discount codes and information on all the testing labs we use thyroiduk.org/help-and-supp...

eyeshadow profile image
eyeshadow in reply to RedApple

Thanks for this info very much appreciated :))

Regenallotment profile image
Regenallotment

I recommend reading Dr Peatfield’s book, he explains why some people can’t take some thyroid meds. I can’t take Accord, it makes me bubble and burp, Teva was OK but Aristo was better. It can be the brand, can be low vitamins, but ideally you would try getting up T4 before adding T3. I have DIo2 gene mutation too, had to do this. I get my T3 from Roseway Labs on private prescription. They are helpful 🌱

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