I posted a few days ago trying to find a t3 source but haven't had any replies. I only have about a month and a half supply so I am starting to get concerned. Could you please PRIVATE MESSAGE me with any sources you use. I am looking to buy tiromel.
Many thanks
Chloe
I am sorry to state that T3 seems to be in very short supply and one person in particular selling T3 from abroad there was a report in their local newspaper that there was an arrest and assume it was her and the stocks were removed. I don't have further information.
Some suppliers who stated that they could or would supply, have taken members monies and not supplied T3. Also they've ignored requests for information about why the person hasn't received any.
If a member can help you today with an authentic supplier they will respond by a Private Message.
You may need to consider getting private prescription via Thyroid specialist.
But that would be unlikely to get you Timorel
German T3 Thybon Henning 20mcg x 100 tablets is 31 Euro prescription only
Oh dear! Is it really that bad? Im also I'm running out, with no supplier now. I definitely can't afford to get a private prescription. Levo is out of the question, I can't go back to those nightmarish symptoms ~ I was only just getting better! What a desperate state of affairs! 😰 x
I am in the same boat as you!! I cannot afford a private prescription. Fingers crossed we can lay our hands on some.
Chloe
If you are in the UK, make an appointment to see your local Mamapea1 Member of Parliament (as TUK have had a meeting In the House of Lords and talked to Lord Hunt who is very interested and I believe it is also ongoing. There are also other Forums who joined one another as it is a desperate state now for anyone who cannot take levo.
Click on the link in the following links:-
thyroiduk.org.uk/tuk/newspa...
Thank you for your reply shaws. I have recently spoken to my surgery and they are not remotely interested in alternative meds. In fact they ring me regularly regarding a suppressed TSH on T3 only.
I'm sick of the whole thing tbh. They have no interest in my improved symptoms, or the improved results ~ lowered cholesterol etc. they firmly believe I should have taken the statins they prescribed...which I now don't need anyway!
There aren't any other surgeries to try ~ the other one is worse! I'm pleased about the progress that's happening, but I think it will take a while for my GP to take notice...if ever. I feel they would never endorse the high dose anyway.
They have offered me another endo appointment but I've done this many times over the years and endo says I've got ME, Rheumy says I've got Fibro, etc., etc. I've seen so many 'specialists' over the last 25 years. Hopefully a complete shake up is imminent ~ I live in hope. x
I made a mistake above and said GP above instead of Member of Parliament. I really do not know how people who are supposed to be 'experts' are actually quite ignorant about blood tests and their results.
These blood tests were introduced along with levothyroxine i.e. T4 alone.
T4 is a inactive hormone - it has to convert to T3. T3 (liothyronine) is the only Active Thyroid Hormone (as you know) so it puzzles me that they seem not to understand this). The following is from another hormone expert.
hormonerestoration.com/Thyr...
Have they checked both Free T4, Free T3 and thyroid antibodies? If not I'd get my own and follow the usual advice, i.e. the earliest blood draw, fasting (if taking thyroid hormones allow a gap of 24 hours). TUK have several private labs that do home pin-prick tests.
thyroiduk.org.uk/tuk/testin...
thyroiduk.org.uk/tuk/about_...
Thank you for the links shaws ~ their ignorance puzzles me too, but they will not be swayed, regardless of what info I provide, or the evidence of improved symptoms and cholesterol levels. It doesn't help my case that I have always been slim ~ apparently "I would be obese if I were hypo" 😕
Yet some symptoms have been with me all my life, worsening through my 20's and then thyroid was completely killed off by EBV/oral polio vax (with the highest antibodies they had ever seen, apparently) 25 years ago. This was the beginning of serious health problems.
High doses of T4 (300mcg) were useless, and I still felt poisoned on lower levels. I have only had improvements following Dr Lowes protocol this last year, and have increased to 100mcg of T3 (Tiromel) in that time, after getting vits/minerals optimal.
I have been a victim of the 'reference range endocrinology' for 25 years, and hence I'm pretty fed up with it all. I also had an undiagnosed B12 deficiency, (which has left me with problems) and my results had been extremely low for all that time ~ folate was always well below range, and yet I was never told! Only realised when I obtained copy of med notes! No wonder she didn't want me to have them ~ many are still 'missing'. GP says B12 has no connection with low folate!
When I had Vit D tested (on my daughters insistence ~ I had bone deformities) the level was 4 😰 All results blamed on my diet, which is not true! The pain, she says is somatic and all in my mind...and yes I have even seen the psychologist 😳.
Taken so many damaging prescription drugs years ago, that only served to worsen my condition, and was told "they work for everyone else!" I am now classed as a 'difficult patient'.
I thank various gods for finding this forum, and the advice/learning I have received ~ I dread to think where I would be without it. I am considering the DIO2 test to see if it provides anything I can push in front of GP, but she would probably ignore it.
Also it may not be whole story, even if positive, as I really feel my problem is cellular resistance. T3 has relieved me of so many symptoms ~ if only I'd had it from the start... Thank you so much for all the advice/links ~ it's very much appreciated. Sorry for the lengthy reply 😬 x
PS. MP is Nadhim Zahawi ~ he has no interest in his 'minions' ~ nor I in him. lol!
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