Looking for source of T3 and NDT online without prescription

[anderschwan]

Hi everyone, I'm new, and desperate to find a way to order online. Can anyone please help with any advice or PM me with a link? I've taken an at home blood test and at the GP.

[Clutter]

Welcome to the forum, Anderschwan.

Why do you want both?

Please be aware that members are more likely to share sources with new members who provide some background. Please post your thyroid results and ranges and say how long you have been diagnosed and how much Levothyroxine you are taking.

[anderschwan in reply to Clutter]

Hi Clutter - thank you for replying. I have a previous post from a couple hours ago with my ranges

healthunlocked.com/thyroidu...

Sorry if I posted twice. The ranges are here from medichecks:

THYROID STIMULATING HORMONE 3.45 mIU/L 0.27 - 4.20

FREE THYROXINE 12.6 pmol/L 12.00 - 22.00

TOTAL THYROXINE(T4) 79.5 nmol/L 59.00 - 154.00

FREE T3 4.73 pmol/L 3.10 - 6.80

THYROGLOBULIN ANTIBODY 12.200 IU/mL 0.00 - 115.00

THYROID PEROXIDASE ANTIBODIES 12.6 IU/mL 0.00 - 34.00

I want to start with ordering T3/Levo to see if it helps. About 15 years ago I had a synthroid prescription from my American doctor, it didn't do a whole lot but things were under control. Then over time I stopped taking it - once I moved to the UK with hubby and had a child. Since then I've struggled to get a GP or NHS endocrinologist to take me seriously, especially since I've gained weight. I'm pretty time strapped and desperate to feel better, because I struggle to not fall asleep at my desk at work, fight brain fog, joint and muscle pain, feeling chills all the time, low temperature, puffy face, outright exhaustion really.

[Clutter in reply to anderschwan]

Anderschwan,

I didn't see your previous post. I still don't understand why you want NDT and T3?

If you start self-medicating you won't be able to get NHS treatment without stopping replacement. Your TSH is high in range and FT4 low in range so it probably won't be long before you qualify for treatment although it will be Levothyroxine.

[anderschwan in reply to Clutter]

Thank you Clutter - I'd like to start with just levothyroxine. I have been trying to find a doctor for a while now but don't know who to go to. My GP has done tests as well, and said I was in normal range. I wonder if I take the medichecks results to her, if she would consider them. I could fight to get the T3 on the NHS but I don't have a lot of free time to take off work to keep going back and making appointments. I might have to switch GP's or go private to get someone's advice. I just don't know what to do.

[Clutter in reply to anderschwan]

Anderschwan,

Why are you asking where to source NDT and T3 if you want Levothyroxine?

Your results are within range. NHS won't diagnose hypothyroidism until TSH is over range (the range that the GP practice uses) or FT4 is below range, again the range the practice uses.

Once you are diagnosed the NHS treatment will be Levothyroxine. Most GPs will not prescribe T3 without a NHS endo's recommendation and some CCGs and health authorities have banned prescribing of T3 as it is very expensive.

A private GP or endocrinologist might prescribe Levothyroxine privately as your TSH is >3.0 and FT4 low but there is no guarantee. Email [e-mail] if you would like a list of member recommended endocrinologists and private GPs.

How does your pituitary tumour affect you? Have you been told that it needs surgery or treatment?

[anderschwan in reply to Clutter]

Thank you Clutter - I think I'm already so confused I don't want to do this without some advice. All I have really are my results from medichecks - but I don't know what they mean. I'm not sure what could help me - so you've really highlighted this fact that I need to find a good doctor before just trying something out of desperation. I've emailed Louise so hopefully I will hear from her soon. I will go private as my GP is no help.

My pituitary tumor is my old unwanted friend I've been carrying for over 25 years. It's a benign microadenoma that causes an overproduction of prolactin. I've had several MRI's to monitor it, but take a prescription twice a week to manage symptoms, which include amenorrhea and lactation. Cabergoline is the name of the rx.

When it happened to me at 19, I thought I was pregnant, which was quite a scare as my then boyfriend had just run off with a friend of mine. Thankfully I was just a medical oddity.

Surgery isn't necessary as the tumor has shrunk from a "grape" size to a "pea" size - and hasn't grown. Even after being surgically removed, I would still have to take the medication.

I wonder if that could cause the high TSH. So I don't want to fiddle too much without advice.

My mother had thryoid disease, and part of it removed, which is why I suspected that my extreme fatigue and brain fog has to do with my thyroid. I have had synthroid offered by my American endo in the past, but that was so long ago.

[Clutter in reply to anderschwan]

Anderschwan,

I'm sorry for the 3rd degree but I wanted to establish you know what you are doing. Self-medicating can be a nightmare if you don't know what you are doing or what you are taking.

I asked about the pituitary tumour because it could secrete hormone which could make TSH high. However, it may have nothing to do with your TSH level because FT4 is low in range and that will cause high TSH.

Thyroid symptoms can precede abnormal thyroid bloods by months, sometimes years, but I would be wary about self medicating now in case it obscures something going on with the pituitary adenoma.

In the meantime supplementing 200mcg selenium will support thyroid some and you should ask your GP to check ferritin, vitamin D, B12 and folate which when deficient or low can cause fatigue and musculoskeletal pain similar to hypothyroid symptoms. Alternatively, Medichecks and BlueHorizon offer vitamin and mineral tests via thyroiduk.org.uk/tuk/testin...

[anderschwan in reply to Clutter]

Thank you for all your help - and sometimes we all need a sanity check, I really do appreciate you! I'll look into the supplements and further tests to see if it helps.