blood test results: hi. Had my first private... - Thyroid UK

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blood test results

Lottyplum profile image
11 Replies

hi. Had my first private thyroid blood test with Monitor My Health after GP reduced my Levo from 200 that I had been on for 40 yrs to 175 6 months ago and results are:

TSH: <0.01 (0.27-4.2 mU/L)

T4: 14.8 (12-22 pool/L)

T3: 3.4 (3.1-6.8 pool/L)

My T4 when on Levo 200 was usually 20-22. My TSH has been suppressed for many years and my previous medical centre before we moved house didn’t have a problem but there’s a problem at my new medical centre! The fire alarms go off when my results come in, with T3 result of course.

Thank you.

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Lottyplum
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SlowDragon profile image
SlowDragonAdministrator

Was test done early morning and last dose levothyroxine 24 hours before test

Which brand of levothyroxine are you currently taking

Take results to GP

Request 12.5mcg increase in levothyroxine (175mcg and 200mcg on alternate days

What vitamin supplements are you currently taking

request GP test vitamin D, folate, ferritin and B12 levels

Or test privately

Lottyplum profile image
Lottyplum in reply to SlowDragon

yes, did test early morning, tho took me a while to get enough blood in the vial+Monitor my Health didn’t say which level to use, so I did the top level!

The Levo is Almus for 100+150+Mercury for 25mgs.

I’m going to ring for an appt with the Dr I’ve had most contact with since they reduced my Levo as I’m sure the reduction was responsible for awful ‘IBS’ type pain that I couldn’t shift no matter how much water I drank or constipation aids I took. I am still constipated if I don’t take a magnesium formula I take at night which I get from the USA. I’d be in a mess if I didn’t have the product. Will be asking for another rise in my Levo as things still not working well. Thank you again.

Lottyplum profile image
Lottyplum in reply to SlowDragon

Vits I take are D3, K2-M57, Selenium,Zinc, Vit C, Quercitin Complex (Solgar), Magnesium (Chelated), B Complex/B12, Beta Glucan Complex (Solgar), Cod liver oil capsules.

SlowDragon profile image
SlowDragonAdministrator

FT4: 14.8 pmol/l (Range 12 - 22)

Ft4 only 28.00% through range

FT3: 3.4 pmol/l (Range 3.1 - 6.8)

Ft3 only 8.11% through range

helpful calculator for working out percentage through range

thyroid.dopiaza.org/

Most people when adequately treated will have Ft3 at least 50% through range

Assuming test done as recommended

Results show Ft4 is too low

Ft3 lower than Ft4 shows you are currently poor converter of Ft4 to Ft3

Next step is to get vitamins tested and improve to optimal

As you have Hashimoto’s are you on strictly gluten free diet or dairy free diet

Lottyplum profile image
Lottyplum in reply to SlowDragon

Thank you again for your helpful input. I’m doing my best to keep to a gf diet. It’s difficult when eating out but I’m gf when at home as I do cook from scratch+our daughter who is both gf and df gas been v helpful in guiding me through the pitfalls.

I did have a full Vit test done last Sept via 1st Endo I’ve ever seen at the local hospital. It did reveal I had low stomach acid so I now take digestive enzymes. Do you think I should test again? I also had DXA scan and I’ve no osteoporosis, thankfully. She said she would have GP put on my records to ignore the TSH Level but I wonder if they read my notes before having a fit!

Where would I be without Thyroid U.K.?! Big thank you.

SlowDragon profile image
SlowDragonAdministrator in reply to Lottyplum

likely to need to be back on 200mcg ……

or addition of T3 prescribed alongside 187.5mcg Levo (Alternate days 175mcg and 200mcg)

T3 can only be initiated via endocrinologist

Gluten free needs to be strictly gluten free

Worth trying dairy free too

Lottyplum profile image
Lottyplum in reply to SlowDragon

I just want to get back to normality on my usual 200mgs I was on for 40 years!! Thank you for your input.

pennyannie profile image
pennyannie

Hello Lottyplum :

We generally feel at our best when on T4 monotherapy once the T4 is up in the top quadrant of its range as this should then , in theory, convert to a decent level of T3 in around the mid/upper 5's. and around a 1/4 ratio T3/T4.

So as previously happy with a T4 reading at 20-22 -

your T3 was likely coming in, at around 5.50 making the a ratio of around 1/4 - T3/ T4.

Now with a T4 at just around 28% through the range your T3 is tracking behind at just 8% :

The TSH was originally introduced as a diagnostic tool to help confirm a diagnosis of hypothyroidism and was never intended to be used once the patient was taking any form of thyroid hormone replacement as then you must dose adjust and monitor on Free T3 and Free T4 levels.

No thyroid hormone replacement works well until your core strength vitamins and minerals, those of ferritin, folate, B12 and vitamin D at up and maintained at optimal levels and with a T3 so low in the range these essential co-factors may have fallen dramatically through the ranges compounding your health issues further.

Is there another doctor at this new surgery or a different surgery you could register with as this obsession with the TSH is not going to sit well with you long term.

Does this new doctor know you have Hashimoto's AI thyroid disease and have they seen your T3 and T4 readings and know how to read this blood test ?

Maybe s/he may realise they are out of their depth and suggest a referral to endocrinology ?

Thyroid UK - the charity who support this forum - thyroiduk.org - hold a list of patient to patient recommended thyroid specialists/ endos, both NHS and private, and this could offer you a name or two to be referred to :

Lottyplum profile image
Lottyplum in reply to pennyannie

hi. I only got my results from Monitor My Health today. Tried to ring surgery for specific GP but she has no appts so will have to ring again next week! For nearly 40 years I was generally ok on 200mgs, up near the higher end. After all the garbage I’ve gone through, generally due to GPs not listening to me and seeing the suppressed TSH it’s been a crazy and debilitating ride. One Endo who was telephoned by one GP who asked, “do I go by numbers or symptoms,” Endo said, “numbers!” I don’t want any old GP just to get an appt. So, will try again next week.

pennyannie profile image
pennyannie in reply to Lottyplum

Yes, of course I totally understand ;

pennyannie profile image
pennyannie in reply to Lottyplum

Meant to include this link yesterday - but you may already know of the work and research by Dr Izabella Wentz - thyroidpharmacist.com

and sorry for any typo's - I was a ' bit all over place ' part of yesterday and being dyslexic I need to stay focused and go one step at time.

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