Hello all - My diagnosis of Hashimotos was approx 3 years ago and by the end of the first year of adjusting dose of Levo I felt reasonably well and I know my TSH was below 1 at that stage because it had been 0.02 when I was taking 125 Levo and GP dropped it to 100 which I wasn't happy with as I felt really well at 125. Unable to fight the GP's decision I continued on the 100 Levo but asked for blood tests last Feb as I was starting to have niggly symptoms. GP insisted I was 'normal' and refused to adjust the meds. A couple of weeks ago my symptoms had become so bad I couldn't function so asked for bloods to be taken to look at Thyroid (and diabetes because that hadn't been checked for over a year either). GP called me on Tuesday because blood results showed, in the words of the GP, 'dangerously high' triglyceride levels, and very high Red Blood Count, Hematocrit and Hemoglobin so she wanted my permission to refer me to Cardiology (I had stents around 8 years ago following several non-stemi heart attacks). I asked what the Thyroid results were and she said they hadn't done them (or the vitamins that I also specifically asked for). GP did agree that I should go back and take more blood for Thyroid results.
Results are
TSH 1.62 mu/l (range 0.38-5.33)
Serum Free T3 pmol/L 4.7 (range 4.0-6.6)
Serum Free T4 12.8 pmol/L with no range given
Serum Total 25-OH Vitamin D 27 nmol/L
I have received a text this morning saying I need to go to the chemist and take 1000IU per day of vitamin D but no mention of talking about the Thyroid and my symptoms (which are brain fog, itchy skin, sleep problems, anxiety, short temper, achy joints, permanently tearful, shortness of breath, tummy pain, constipation)
With all that in mind should I call the surgery and insist on a conversation about my Thyroid or wait for the cardiology appointment in case all my symptoms are down to other things and not Thyroid?
Any help or advice gratefully received
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Emmastace
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At 1.62 your TSH is too high so a dose increase would help a bit. That said, your FT3 is low at 27% of it's range so ideally long term you need to be thinking about how you are going to get some T3 added. Even working on vitamin levels which you likely need to do won't be enough to help.
Are they going to run the other vitamin levels?
1000 D3 won't be enough to bring your levels up to where they need to be at 100. Use this calc to work out what you need to take and go buy some D3 with K2. The NHS do not get our levels to optimal. grassrootshealth.net/projec...
Thank you. I haven't tried gluten free but I have been very careful and cut down on gluten where I can. I asked for full vitamins but they only did D and B12. B12 result was 307 ng/L (range 145-914)
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)
Thorne currently difficult to find at reasonable price, should be around £20 - iherb.com might have some
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and continue separate B12
Thank you. GP called me not long after I posted here and apologized for not realizing how low the Vit D level was and had looked back and seen I was prescribed it back in 2021 so said she would write a new script. I have just picked it up and it says it is 15 Fultium-d3 20000u caps with one to be taken twice a week for 7 weeks while I was there I picked up over the counter vit D to carry on taking after the script stuff finishes
The results were picked up from my online account. Yes the thyroid results were from blood taken before 9am and I hadn't taken Levo that morning so more or less 24 hours since last dose. For some reason my historic results have disappeared from my online record so I will ask the surgery to get them for me including the ranges so I can look back at what they were.
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