Hypothyroidism and infertility : Hi. I was... - Thyroid UK

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Hypothyroidism and infertility

Vickisophieunicorn profile image

Hi.

I was wondering if there is a connection between hypothyroidism and low lh FSH and estrogen/ progesterone/testosterone?

My GP is extremely unhelpful at explaining these things to me, my periods have stopped and my thyroid levels are low alongside my female hormones.

Is there a connection as in when I get my thyroid kicked back into gear is it possible my hormones will regulate again.

I have all the signs of hypothyroidism...weight gain totally unexplained, brain fog , sadness tiredness achy and generally feeling so so tired and miserable.

I have been on HRT before but this had severe mental health issues and didn't agree with me. I am not in my menopause confirmed via bloods.

I can't believe I went to Endocrinologist for 2 years and noone checked my thyroid was low! Only interested in my hormone levels at the time. I really want children so would like to get to the bottom of this.

I am on T3 only medication.

Any advise appreciated.

Thanks

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Vickisophieunicorn profile image
Vickisophieunicorn
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SlowDragon profile image
SlowDragonAdministrator

Do you have any recent thyroid and vitamin results

How much T3 are you currently taking

Always test thyroid levels early morning, ideally just before 9am

Day before test split T3 into 2 or 3 smaller doses spread through the day. Last dose approx 8-12 hours before test

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Do you have autoimmune thyroid disease, also called Hashimoto’s usually diagnosed by high thyroid antibodies

Are you on strictly gluten free diet or dairy free diet

Vickisophieunicorn profile image
Vickisophieunicorn in reply to SlowDragon

Yes on AIP diet currently so strictly free of those. Currently on 3x5mcg a day. I don't have hasimoto but I do have pots and eds and currently healing my gut. All my vitamins where good but my ferritin is slightly low so I take liver for this weekly. Yes I had my test done at 8.50am and already split my dose daily.

My test results recently where below for my thyroid. I hope this is ok to post. I don't currently have my vitamin bloods printed.

Thanks

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SlowDragon profile image
SlowDragonAdministrator in reply to Vickisophieunicorn

that’s a minuscule dose of T3

Typically if ONLY on T3 then daily dose would be between 40mcg -60mcg per day ….often as divided dose

3 x 5mcg T3 is the typical dose prescribed alongside almost full dose levothyroxine ……

Guidelines on dose levothyroxine when ONLY on levothyroxine is approx 1.6mcg levothyroxine per kilo of your weight per day

Some people need higher dose, some less

If T3 is added alongside levothyroxine to improve conversion rate, typically dose levothyroxine is reduced by 25mcg

Have you ever been on levothyroxine

If yes, how much was maximum dose and which brand

Approx how much do you weigh in kilo

vitamin D is too low

No folate or B12 results

No iron or ferritin

Would suspect they are all likely too low

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or T3

Do you have autoimmune thyroid disease also called Hashimoto’s usually diagnosed by high thyroid antibodies

 

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

greygoose profile image
greygoose

My GP is extremely unhelpful at explaining these things to me

I don't suppose your GP knows anything about it. They have very little education in thyroid.

Is there a connection as in when I get my thyroid kicked back into gear is it possible my hormones will regulate again.

Yes, absolutely, a very strong connection. And, yes, when thyroid hormone levels are optimal, other hormones should also go back to optimal.

I can't believe I went to Endocrinologist for 2 years and noone checked my thyroid

Oh, I can! As I said, they have very little education in thyroid. It should be the first thing they test for, and it's usually the last.

I am on T3 only medication.

Well, that might work for conception, but it might not help you take a pregnancy to term, because in the early months the baby will need your T4 to survive until he develops a thyroid of his own. There are varying opinions on whether T3 can cross the blood/placenta barrier, and no-one seems to know for sure. But, doubtful any endo that knows about pregnancy would be happy about that. They often take women off T3 when trying to conceive.

Vickisophieunicorn profile image
Vickisophieunicorn in reply to greygoose

Thanks for this information.very helpful. Would you suggest I should be on t4 and t3 if I become pregnant? I am so worried about this as I have alot to learn!

I have been messed around with my bowel for years and now endocrinology!

Thanks for your advice much appreciated!

greygoose profile image
greygoose in reply to Vickisophieunicorn

Yes, we all have a lot to learn when we start out on this journey. And we can only do it by reading a lot and asking questions on here. There are many questions and excellent answers on here about thyroid hormones and fertility. Try using the search button above. We start out thinking our doctors know what they're doing and that they have our best interests at heart. But, we soon find out that neither of these are true when it comes to thyroid. They don't know and they just don't care.

Sparklingsunshine profile image
Sparklingsunshine in reply to greygoose

And not just thyroid either, I would say most chronic conditions are often very poorly treated and supported. Doctors like to feel like heroes, if they can patch you up and make you good as new they're happy. But of course with long term chronic conditions it doesnt work like that. We're a nuisance and cost too much 😔

greygoose profile image
greygoose in reply to Sparklingsunshine

Very true - unfortunately!

SlowDragon profile image
SlowDragonAdministrator

low vitamin D

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Likely to need higher dose in winter than summer

Once with other vitamins via Medichecks or Blue horizon and once via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. 

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

Another member recommended this one recently

Vitamin D with k2

amazon.co.uk/Strength-Subli...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease 

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease 

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Great article by Dr Malcolm Kendrick on magnesium 

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

only add one supplement at a time

Wait at least 2 weeks before adding magnesium

Come back with new post once you get full thyroid and vitamin results

humanbean profile image
humanbean

Some links that may be helpful :

healthunlocked.com/thyroidu...

endocrine-abstracts.org/ea/...

In the above link click on the poster to expand it to full page.

Be aware that doctors think any woman on T3 is killing her baby, which is absolute nonsense. For women who've gone through pregnancy including some T3 in their dose or taking T3 alone, it can be hard to cope with the pressure from doctors to go onto T4 only apparently. But as long as you have enough T3 and feel well then T4 probably isn't an issue.

If I was going through pregnancy (I'm much too old !) I would want to feel well before I conceived.

You said earlier :

'Would you suggest I should be on t4 and t3 if I become pregnant?'

I'm afraid you are trying to put the cart before the horse with that question.

a) If your thyroid hormone levels and nutrient levels are not good you will find it hard to get pregnant at all.

b) If you did succeed in getting pregnant with poor levels of thyroid hormones and nutrients your chances of having a miscarriage would be much higher than it would be for a woman who was healthy or was well treated for any of her health problems.

c) What you should be trying to do is to get as healthy as possible before trying to conceive (whether that includes T4 or just T3 or both - you need to feel well). It increases your chances of having a positive outcome (conceiving, not miscarrying, and having a healthy pregnancy, labour, birth and baby.) It will also help your own health during and after pregnancy.

Most women are told that they should be taking folic acid before pregnancy. But what is rarely (if ever) mentioned is that folic acid isn't a good supplement for raising folate. Instead methylfolate is better.

Also low B12 can cause neural tube defects just like low folate can.

And finally, if B12 is low, taking folic acid or folate is not a good idea, at least to begin with, because it can cause all sorts of problems. Instead if both B12 and folate are low, start supplementing B12 , then a few days later add in a folate supplement.

You should read this link - what it says about pre-eclampsia will have relevance for having a healthy pregnancy too.

nutrition.bmj.com/content/5...

nature.com/articles/s41430-...

Good luck.

Vickisophieunicorn profile image
Vickisophieunicorn in reply to humanbean

Yes you are 100pc correct. I am not even entertaining getting pregnant until I feel much much much better. This has been ongoing for 2 years with my endocrinologist and only 2 years down the line was the thyroid issue arising dispite being piled with estrogen, told it was my fault because I was stressed, had an operation on my bowel, was not meditating, had too clean a diet (Aip diet), was told maybe my body wants some bad foods etc etc etc (I'm sure UV all heard this before). I have been on a mission for the last year with diet to get myself better not realising it was my thyroid making me sick.

For example all my stool sample where showing I was not digesting fat (linked to low t3). The minute I took T3 even at my low dose 1 week later I had terrible diahorria and in this was a tonne of kidney / gallstones etc all because I had no T3 therefore no bile production and was badly affectiny my liver and kidneys and gallbladder. I plan to do a cleanse when I get my thyroid in a good place as I have read that the flush (Andrew mortiz) can really really help the thyroid kick back in after being so taxed.

I am just upset that I assumed someone had checked my thyroid, not just my TSH! Now I think I'm just on such a low dose to get my body used to it that it has almost made me worse as I am exhausted!!

I have also heard fantastic reviews about the gaps diet for thyriod hormones and healing the gut.

I have spent 10 years having to fight for my bowel and elhers danlos syndrome, now iv got to start learning about this as I am now just so untrusting.

I have a good endo now privately Dr Wass who I hope can help me ! Iv heard nothing but good.

Iv also been recommended LDN but doing one thing at a time.

Thanks for help ☺️ much appreciated as I have such little knowledge on this

humanbean profile image
humanbean in reply to Vickisophieunicorn

only 2 years down the line was the thyroid issue arising dispite being piled with estrogen, told it was my fault because I was stressed, had an operation on my bowel, was not meditating, had too clean a diet (Aip diet), was told maybe my body wants some bad foods etc etc etc (I'm sure UV all heard this before).

I haven't heard all those before, to be honest. Not meditating is a cause of ill health? What a load of baloney. Ditto for "too clean a diet" or "wanting bad foods". The person who is saying these things to you is a sadistic, ignorant, lazy, waste of space. The only comment about diet I would make is :

a) eat enough

b) drink enough fluids

c) eat a good variety of foods

d) the diet must include enough healthy fats and oils (think of the fats and oils available to humans 200 years ago - no laboratories required)

e) the diet must include enough protein. Vegetarian/vegan diets must include a mix of proteins in order to get enough complete protein.

f) People with hypothyroidism can't digest food very well, and some carbohydrates in the diet are usually helpful.

g) Many hypos do well with a ruthless 100% gluten-free diet even though most of us aren't suffering from coeliac disease.

I plan to do a cleanse when I get my thyroid in a good place as I have read that the flush (Andrew mortiz) can really really help the thyroid kick back in after being so taxed.

Others may disagree with me, but I think that sounds like quackery. Clearly your body can get rid of kidney stones and gallstones without needing anything weird like a liver flush because you've mentioned it did so when you got prescribed some T3.

plantbasedu.com/the-liver-a...

Another point is that the thyroid doesn't regenerate. You could reduce inflammation with a good diet and optimal nutrient levels but you can't physically recreate a working thyroid if the original has been destroyed by immune system activity.

But you might find this encouraging :

healthunlocked.com/thyroidu...

I am just upset that I assumed someone had checked my thyroid, not just my TSH! Now I think I'm just on such a low dose to get my body used to it that it has almost made me worse as I am exhausted!!

Sorry, I haven't worked out your timeline for treatment.

"Official" info on initiation and titration of Levo can be found here :

cks.nice.org.uk/topics/hypo...

Doctors aren't obliged to follow it, but it is good ammunition for patients, particularly if the doctor keeps them under-medicated and doesn't test often enough while titrating their dose.

SlowDragon profile image
SlowDragonAdministrator

Before considering conception vitamin levels need to be tested and at optimal levels

By the time pregnancy is confirmed, if folate and/or B12 are low it’s too late to correct. A baby’s Neural tube forms extremely early in pregnancy

Test before starting any vitamin supplements

Both B12 and folate are Goldilocks vitamins during pregnancy. You don’t want too little or too much

Low iron/ferritin linked to higher incidence of miscarriage

Test thyroid and vitamin levels now

Suggest you consider adding 25mcg levothyroxine after test and retest in 6-8 weeks

Likely to need further increases in levothyroxine or T3 over coming months

Only ever change levothyroxine or T3, not both otherwise you can’t tell what’s helping/causing issues

Rare to find any endocrinologist who is happy to allow T3 alongside levothyroxine during pregnancy. Even rarer to allow just T3 in part because it’s so difficult to assess if dose is adequate

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