So sorry for yet more Qs... But I'd really love to hear from anyone who is successfully on NDT.
I have found recently that when I increase my NDT, my body responds well:
good bowel movements
less anxiety
less depression
more motivation
weight loss
higher body temp (36+)
and then, a few days/a week later, I am back to:
poor bowel movements
weight gain,
more anxiety
shivering
trembling
nausea after eating
feeling flu-like
thundering heart rate (for me raised heart rate is a hypo symptom)
lower body temps (35.8 and under)
I think 3 options are possible:-
1. I am not tolerating NDT, I should lower NDT dose
2. I have acclimatised to NDT and need to raise the dose
3. The T4 in the NDT is turning to rT3 and may continue to do so as I keep raising
4. Other??
I know these are not mutually exclusive, 1&3 and 3&2 could be possible in combination.
Relevant labs on 1 grain Armour:
rt3 22 (range 8-33)
T3 4.3 (3.2-6.3)
T4 10 (12-22)
TSH 8
I have retested for all thyroid labs again but still awaiting results 2 weeks later.
Today is my 31st birthday, I have been ill since I was 13. I know I have a lot to be thankful for, but I feel completely hopeless. I just cannot see a way out of this. I appreciate everyone's kind comments, please be extra nice to me if you feel so inclined - I feel very very low today.
edit: reply to kind advice given
Firstly - thanks for being so kind to me during my 31st pity (birthday) party. I appreciate it very much, it makes a difference when advice is given in a kind way 😊 and such good advice too.
Results just in from 26/08/2021 on 1.25grains of Armour, blood draw 18 hrs after last NDT dose:
Tsh 8.41
T4 11.8 (12-22)
T3 4.1 (3.1-6.8)
Rt3 - didn’t get it done. Sounds like it’s a useless metric anyway.
Vit d, b9, b12 and ferritin are pending.
The reason I hadn’t assumed it was due to needing more hormone medication is because I thought I was meant to increase by 1/2 grain every 3 weeks. But I’ve been having horrendous episodes of anxiety and hypo symptoms listed above just 7 days after an increase.
I recognise I am sorely undertreated. I will try to increase doses in response to symptoms returning, instead of lowering it. Wish me luck!