Hi all, hope you have been well and are continuing to enjoy the warm weather. 
Firstly I wanted to thank you all for all the kind and informative responses to my last post - honestly, finding this forum has been the best thing that could have ever happened to me on my thyroid journey. You are all a source of great comfort for me, particularly when it becomes difficult to cope. 💕
As you might know from reading my previous post, I had two endo appointments back to back on Monday and Tuesday respectively - the first being an NHS appointment, and the second being with my private endo. We all know how the first one went...but at least I have some T3 now. My private endo (being considerably more sensible in my opinion) acknowledged that it isn't unusual for my TSH to be suppressed given my health circumstances, and said that it would be wiser to focus on my T3, T4 and vitamin readings for more clarity, in addition to my female hormones as they might give better insight into the reasons for my symptoms. For what feels like the first time since having the thyroidectomy, my T3 and T4 are finally within range after having added 25mcg T3 to my 150mcg Levo for the last few months, although he did note that they are still quite low at the very bottom of the range, and could stand to be a bit higher.
This again is a bit unusual, considering just how much hormone I'm taking. I was also aware of this, and so I took it upon myself a couple of weeks ago to take a 3 hour long at-home lactulose breath test, to rule out any suspected SIBO that might be interfering with the uptake of my medicines, and nutrients from my food, along with potentially being the culprit for some of my more unpleasant symptoms, e.g. constant severe bloating, constipation, water retention etc. It came back that I had a resounding positive result (despite being told by the NHS multiple times over a year ago that it was "highly unlikely" that I could have it, so they refused to test it. Also, my NHS endo on Monday suggested that I should just take laxatives indefinitely to solve the gut problem and made it seem like it was somehow my fault for having a "sluggish bowel"...). Likely due in part to the SIBO, my vitamin levels are unsurprisingly low, despite eating a balanced diet. Again, the NHS has previously refused to test for them.
Here's what I suspect might have happened to start all of this (though of course, I'm not a doctor, so who really knows): I was sent home post-thyroidectomy with too low of a dose of Levo (and no T3) which I took for about 5 months before complaining to my GP of hypo symptoms, namely constipation. She then increased my dose after seeing from my bloods that I was indeed very hypo (TSH 10, I believe), but by then, the chronic constipation had already begun creating SIBO, which explained why nothing seemed to shift my symptoms. My thyroid continued to be poorly treated as well, making matters worse, and the bacterial overgrowth has been preventing me from being able to absorb anything properly, leading to low vitamins, poor thyroid function, and further exacerbating my symptoms. Just a big mess, really.
Currently I am waiting for my private endo (who is also overseeing my apparent gastrointestinal problems) to get back to me as far as antibiotics and instructions on how to get rid of the SIBO, and I have also been sent home with a long list of supplements to take until my SIBO clears (fingers crossed...) and I can start absorbing nutrients again. If the bacterial overgrowth isn't wholly responsible for my main symptoms, we will then start to look at my female hormones as well.
I really hope we're starting to get somewhere...this is all so long and draining, but it seems like I'm hopefully getting some answers now.
Should I tell GP I'm taking T3 on private prescription? 
Struggling teenager
Update: T3 usage & monitoring by NHS 
Going slow on T3 increases
Endo conclusion query
