Feeling ill for months now doctors refused bloods months ago as he said they were fine last July had results back today but I can only find my Serum TSH level 0.34mU/l (0.27-4.20). Also VitaminD is 25(OH ) of 25 -50 I have lots of other blood tests done I’ve been to weak to stand up but they seem ok B12 is saying high but that’s normal for me as I get injections every 3 months hope somebody can guide me thanks
Feeling dreadful : Feeling ill for months now... - Thyroid UK
If vitamin D is below 75nmol it’s too low
If Vitamin D is below 50nmol your GP should prescribe 1600iu vitamin D daily for 6 months
If vitamin D is below 25nmol you should be prescribed LOADING dose vitamin D. That’s 300,000iu in total over 6-8 weeks
NHS Guidelines on dose vitamin D required
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly via NHS
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7
It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average
Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol
Government recommends everyone supplement October to April
Taking too much vitamin D is not a good idea
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
Vitamin K2 mk7
2 good videos on magnesium
Vitamin D and Covid
Notice how much vitamin D many of these medics are taking
Suggest you get FULL thyroid and vitamins tested after you finish loading vitamin D prescription
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
List of private testing options
Medichecks Thyroid plus antibodies and vitamins
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
Thriva also offer just vitamin testing
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
Hi thanks for the reply I haven't been given a prescription and I asked for a thyroid full test and I haven't had one so should I ask for vit D test and is the serum Tsh level out so I can email and say I've been so unwell for months Thanks for replying x
When was vitamin D last tested?
Please add photo of results
This week I'll add now ty
25OHD is the name of the test. Your actual result is 32nmol/L as shown one line up from the bottom of the report.
Some CCGs class Vit D deficiency as <30, some as <25. Whichever is appropriate to your CCG you are not far above deficiency, most certainly in the "Insufficiency" category.
So your vitamin D result is 32nmol
GP should prescribe 1600iu per day for minimum of 6 months
Likely to be better to self supplement at higher amount yourself
Better You vitamin D mouth spray works well
Suggest you get the one that includes vitamin K2
One spray = 1000iu
Start on 2-3 sprays per day
Retest in 8-10 weeks
Thanks I will look to buy one now I'd be lost without this forum your all so kind ty ps do you know my serum TSH is that low or high or can't say without full result
Low vitamin levels tend to lower TSH
On levothyroxine we frequently have low TSH
Most important results are ALWAYS Ft3....followed by Ft4
Many people on levothyroxine need addition of T3 prescribed alongside levothyroxine if Ft3 is too low
First step is to get all four vitamins tested and optimal by supplementing
This should improve conversion of Ft4 to Ft3
Frequently Essential to always get same brand levothyroxine at each prescription
If you have autoimmune thyroid disease also called Hashimoto’s diagnosed by high thyroid antibodies then likely to need to be on strictly gluten free diet
But get coeliac blood test done before cutting gluten out
Thanks very much I've just orderd the spray with k2 I will let you know how I get on Thanks for your help .
Looking at previous posts I can see you have had coeliac blood test few years ago (negative)
Have you been strictly gluten free since that test .....if not...strongly recommend trialing strictly gluten free diet
Yes that was negative test I was reading about this im also on blood thinners now Edoxaban I think it's called was on wafrin but couldn't stabilise it but my gp s aren't interested everything you ask is covid twice I've said aches weakness straight away im told this .
Only 5% of Hashimoto’s patients are coeliac, but over 80% of Hashimoto’s patients find strictly gluten free gluten free diet helps or is absolutely essential.
It’s ALWAYS worth trying strictly gluten free diet....minimum 3-6 months
I'm goin to have a look at gluten free now I'm getting desperate to be honest I'm not even living at the moment I'm existing day to day gluten free is all new but I will look now ty Charmain
So that’s nothing that contains wheat, barley or rye
Lots of gluten free options available
If toasting gluten free bread, you need separate toaster.
Good Morning ,thanks for this advice im goin change my asda shop now online and try this plus my vit D arrives lunch time I'm goin ring my private health as well now last nite I took 200 mg of thyroxine and no change ty kind regards Charmain
You should NOT ever increase levothyroxine without getting full thyroid testing done
Maximum dose increase should only ever be 25mcg
It takes minimum of 6-8 weeks for each dose increase in levothyroxine to have full effect
Strongly recommend staying on 150mcg levothyroxine
Always ensure you get same brand of levothyroxine
Getting all four vitamins optimal
Then retest thyroid levels via Monitor My Health
Always test as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
Looking at previous posts you are on 150mcg levothyroxine?
Do you always get same brand of levothyroxine
Absolutely essential to regularly retest vitamin D, folate, ferritin and B12
Plus Ft4 and ft3
All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
Low vitamin levels suggests thyroid is not correctly treated
Sometimes brands are changing im on activa North star it says on box ty
Northstar 50mcg and 100mcg tablets are Accord brand
25mcg Northstar is Teva brand
Teva brand upsets many people
Accord used to be called Activis. When it’s name changed in theory tablets remained identical.....but there are a few members on here who have noticed difference and reacted badly
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