Borderline results but feel dreadful! - Thyroid UK

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Borderline results but feel dreadful!

KRex profile image
KRex
15 Replies

Hi everyone,

I would love some advice!

I went to my doctors as ever since having my youngest child (nearly 4 years ago) I haven’t ever felt back to normal. I keep going back to GP (see a different one each time unfortunately) and feel slightly fobbed off. Last GP tested thyroid and hormone levels. All other bloods came back normal.

TSH was 4.5

T4 was 13

So just borderline results so they want to retest in 6 months.

But I feel dreadful and have done for years.

- feel so exhausted I could cry

- constant sore throats

- numbness in my hands and forearms

- really heavy and prolonged periods

- weight gain no matter how well I eat and a nice puffy face!

- headaches

- dry itchy skin and eyes

- cold all the time

- generally feel I am about 90 years old when I’m actually 37!

Any advice on if there is anything else I can do rather than just wait? I am so so fed up of feeling awful!

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KRex profile image
KRex
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15 Replies
Buddy195 profile image
Buddy195Administrator

Welcome to the forum K Rex

So we can offer better advice, it’s best to have blood test results (with ranges in brackets) for FT3 in addition to TSH and FT4.

Also extremely useful are thyroid antibody tests (to see if your thyroid is struggling from an auto immune condition, eg Hashimotos) and key vitamin tests (ferritin, folate, vitamins D and B12)

If your GP is unable to complete all the above (eg if TSH is within range, some surgeries may not be able to access FT4 and FT3 tests), you could look to do this privately, as many forum members do, for a better picture of your thyroid health:

thyroiduk.org/help-and-supp...

TSH should always be under 2, with many members feeling best with this significantly under 1. Your thyroid is certainly struggling; hence your adverse symptoms.

I would definitely look to check your antibodies, key vitamins & FT3. Medichecks have 20% off their advanced thyroid test this month, so may be worth a look.

What time of day was your blood draw? TSH highest early morning, so make sure you get earliest blood draw (ie before 9am) - this is a patient to patient tip (& not one shared by GP practices).

KRex profile image
KRex in reply to Buddy195

Thank you so much for your reply!

It was about 11ish I had the bloods done. They didn’t check any vitamin levels - just t4, TSH, iron and the other standard things like blood cells.

As my other results are normal and thyroid borderline they have basically said there is nothing wrong, but aren’t prepared to look at other causes if my symptoms either.

To be honest I felt they were trying to suggest it was either all in my head, or I am depressed (which I don’t feel I am - just fed up of feeling rubbish!)

I will look in to private bloods - what do people then do with the results?? I’m worried about getting in to a battle with my GP!

Buddy195 profile image
Buddy195Administrator in reply to KRex

I suggest you complete a private test and then copy results in a new post on the forum so members can offer you better advice. Remember to complete the blood draw before 9am.

I, like many members here, have become an advocate for my own health. I give a copy of my private blood test to my GP and (with thanks to advice from this forum) managed to argue my case for optimal medication.

McPammy profile image
McPammy

My private only endocrinologist explained to me that anything above 2.5 for a TSH result and you’ll be having symptoms of under active thyroid. NHS range is too wide.

KRex profile image
KRex in reply to McPammy

That’s interesting - GP felt I couldn’t have symptoms due to thyroid at these levels! But they are also not happy to investigate what else could be making me feel so rubbish!

McPammy profile image
McPammy in reply to KRex

You probably need more levothyroxine. I’d have your T3 checked also. Maybe you might have to chose a private option for that though as lots of GP’s won’t test but it’s worth a try to request it.

TiggerMe profile image
TiggerMe in reply to McPammy

Yet to be diagnosed

McPammy profile image
McPammy in reply to TiggerMe

Sorry should have read more carefully. 👍😀

TiggerMe profile image
TiggerMe

What time was your blood draw? It could be that by having one taken before 9am would show that your TSH is high enough to start treatment.... they have a nasty habit of testing in the afternoon when TSH has dropped!

KRex profile image
KRex in reply to TiggerMe

It was about 11ish i think.

I think I will get some private bloods done and see what they say!

TiggerMe profile image
TiggerMe in reply to KRex

It drops quite rapidly after 9am and with a fT4 of 14 (I'm guessing this is on the 12-22 range) you are showing all the classic signs that your thyroid is struggling and I'm afraid getting the usual fob off that most of us have been through

Get your results up once you've got them and we are all here to guide you 🤗

SlowDragon profile image
SlowDragonAdministrator

Your TSH strongly suggests your thyroid is struggling

Recommend you get FULL thyroid and vitamin testing

Just TSH and Ft4 is inadequate

ALWAYS test thyroid early morning ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Has GP ever tested thyroid antibodies?

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

Please add any vitamin results

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

KRex profile image
KRex in reply to SlowDragon

This is really helpful thank you 😊

They only did T4 and TSH - iron levels and then the standard things like wbc and blood sugars.

I am going to book private bloods - if they show an issue do people tend to go back to GP? I’m worried he thinks I’m making it all up!

SlowDragon profile image
SlowDragonAdministrator in reply to KRex

Come back with new post once you get results

Are you currently taking any vitamin supplements

Stop anything that contains biotin 5-7 days before any blood test as biotin can falsely affect test results

examples of results

Medichecks

healthunlocked.com/search/p...

Blue horizon

healthunlocked.com/search/p...

Struggling thyroid tends to result in low vitamin levels due to low stomach acid

Low vitamin levels tend to lower TSH (all GP incorrectly looks at)

Autoimmune thyroid disease often starts after pregnancy

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

serenfach profile image
serenfach

If you lived elsewhere, you would be diagnosed. The following countries - USA, Germany, Switzerland, Austria, Norway, Sweden, and Belgium have a upper limit for TSH between 2.5-3. Germany and Switzerland is 3.2 Anything above it is treatable hypothyroidism. We must have different metabolism from the rest of the world!

Many of us have been in the same position as you, and got the "its all in your head, here, have some anti depressants" when we are just sick and tired of being sick and tired. You are not alone.

Do a private test and then come back. This forum is so brilliant for advice and support, so just keep asking. We are here for you. Hug.

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