feeling under medicated/hypo: hello I feel very... - Thyroid UK

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feeling under medicated/hypo

Sakura_ profile image
21 Replies

hello I feel very under medicated right now if anyone can please help it would be much appreciated

I have

cold hands and feet even though I am sitting next to an electric heater which is on all day

tiredness

low mood

hair loss

weight gain

I was diagnosed hypothyroid in 2013 thank you

tsh 6.7 range 0.27 - 4.2

free t4 13 range 12.0 - 22.0

free t3 2.6 range 3.1 - 6.8

ferritin 44 range 15 - 150

folate 4 range 2.5 - 19.5

vitamin d 36 25 - 50 insufficiency supplementation is indicated

vitamin b12 I don't know

tpo antibody 275 range <34

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Sakura_ profile image
Sakura_
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21 Replies

Hi, welcome to the forum!

Before anyone can help in any meaningful way, can you share your latest test results with us?

TSH

T4

T3

Ferritin

Folate

B12 and

Vit D

:)

Sakura_ profile image
Sakura_ in reply to

tsh 6.7

free t4 13

free t3 2.6

in reply toSakura_

Even without ranges it's obvious you're very under-medicated. You need an immediate increase in your levo.

Aim is for TSH to be around 1. Certainly no higher than 2.

Sakura_ profile image
Sakura_ in reply to

I added them now i take 100mcg levo and 12.5mcg t3

Sakura_ profile image
Sakura_ in reply to

ferritin 44

folate 4

vitamin d 36

vitamin b12 I don't know

in reply toSakura_

Likely vit D and folate are deficient. Can you add the ranges please?

If you're deficient, insist on loading doses from your GP.

Sakura_ profile image
Sakura_ in reply to

ferritin 44 range 15 - 150

folate 4 range 2.5 - 19.5

vitamin d 36 25 - 50 insufficiency supplementation is indicated

vitamin b12 I don't know

tpo antibody 275 range <34

in reply toSakura_

Ok, so folate not deficient but low.

Vit D deficient. GP should prescribe. I tend to just buy my own as it's easier though.

Sakura_ profile image
Sakura_ in reply to

I take 800iu vitamin d only and I was advised to increase to twice a day but I don't think that will help me because I was on that before and it didn't work

in reply toSakura_

800iu is a really small dose. 2000iu is a much more common maintenance dose. Loading doses can be as high as 10,000iu!

When my Vit D was low I took 4000iu a day.

When taking Vit D you should also be taking magnesium and K2, to make sure the body can use the vit D properly.

Sakura_ profile image
Sakura_ in reply to

ok my gp and endo didn't tell me about adding the magnesium and k2 so i will buy some thanks

in reply toSakura_

That's because the don't know very much about vitamins. Hence why you've been left on 800iu when you're deficient. 🙄

I am bordering on out of my depth here so I'll tag SeasideSusie . She might pop along to give you more detail. Or maybe have a look at some of her posts about supplementing magnesium and K2. :)

There are various types of magnesium so best to pick one that suits your needs.

PurpleNails profile image
PurpleNailsAdministrator

Hello & welcome

Do you have copies or online access to your blood test results?

Sometimes GP test TSH only, but for full thyroid function you need TSH, FT4, FT3. TPO, TG antibodies, B12, ferritin, folate, vitamin D.

What have you had tested?

Sakura_ profile image
Sakura_ in reply toPurpleNails

tsh 6.7 range 0.27 - 4.2

free t4 13 range 12.0 - 22.0

free t3 2.6 range 3.1 - 6.8

ferritin 44 range 15 - 150

folate 4 range 2.5 - 19.5

vitamin d 36 25 - 50 insufficiency supplementation is indicated

vitamin b12 I don't know

tpo antibody 275 range <34

PurpleNails profile image
PurpleNailsAdministrator in reply toSakura_

Please add range as they vary between labs.

Sakura_ profile image
Sakura_ in reply toPurpleNails

I added them now

PurpleNails profile image
PurpleNailsAdministrator in reply toSakura_

tsh 6.7 range 0.27 - 4.2, above range, aim for 1

free t4 13 range 12.0 - 22.0. just in range, needs to aim for top third of range.

free t3 2.6 range 3.1 - 6.8 UNDER range

Useful calculator to see where you are in range

chorobytarczycy.eu/kalkulator

Was this a private or NSH test ? Is this recent test? With these results you should have had dose increase, usually 25mg per day & retest after 6 weeks.

ferritin 44 range 15 - 150 too low above 80

folate 4 range 2.5 - 19.5. Low

vitamin d 36 25 - 50 insufficiency supplementation is indicated, has GP prescribed loading dose. You will also need co factors Magnesium and K2

vitamin b12 I don't know. Ask for test.

tpo antibody 275 range <34. Positive for hashimotos known as autoimmune thyroiditis did you know this?

Have you ever tried gluten free diet?

Do you take replacement in morning on empty stomach?

Do you always test in same way? ie time of day & fasting except water, after taking dose or delay until after?

Sakura_ profile image
Sakura_

my endo says my tsh shows I am under medicated but my ft4 is normal and I am to increase my t3 to 18.75mcg and my levo to 100mcg

PurpleNails profile image
PurpleNailsAdministrator in reply toSakura_

What was your original dose? By how much or an increase is this. Current dose - new dose. Has the doctor scheduled a repeat test?

Do you always get same brand of replacement?

greygoose profile image
greygoose in reply toSakura_

Your endo is an idiot - bet he's a diabetes specialist with only the vaguest notions of how the thyroid works! He certainly doesn't know how to interpret blood test results. The ranges are to wide and are only rough guides. A euthyroid FT4 would be at least 50% through that range. But, hypos usually need it higher.

That said, your FT4 is going to be lowish because you're taking T3. But, on T3, the TSH should be a hell of a lot lower. So, I'm wondering if you have absorption problems. Certainly, your low nutrients suggest you have.

You have Hashi's, and Hashi's people often do have absorption problems. They are often gluten-sensitive - or could even have Coeliac Disease. Have you been tested for that? Have your stomach acid levels been tested? Hypos often have low stomach acid which makes absorption difficult.

But, how do you take your hormone? Do you take it on an empty stomach, with water, leaving at least one hour before eating or drinking anything other than water? Do you take any other medication or supplements at the same time as your hormone?

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