Hashimotos, levels out of range are these aches connected?

[Molly139]

I’ve been under the GP and now an endocrinologist. My levothyroxine was dropped from 125mcg to 100mcg then to 75mcg. I’m now back to 100mcg and due another blood test mid November. I’m struggling daily with intermittent neck, shoulder and back of the head aches. My last TSH was 12 and that’s when these aches started. I’m gluten and dairy free and have high antibodies. Do you think it’s connected to my thyroid?

Thyroglobulin antibodies 958 (0-115)

TPO antibodies 60 (0-34)

Active b12 139 (37.5-188)

[Marz]

Your TSH is far too high for someone on medication. Upping and downing your dose really is not good for you or your body - so confusing !

How are your VitD levels ? If low that can cause pain ...

Do you have results for T4 and T3. Also anti-bodies ?

[Molly139 in reply to Marz]

I feel like I’ve been messed around for years 😢 Ive been supplementing vitamin D and it is 78 now from 40. My previous results are on past posts if you’re interested

[Marz in reply to Molly139]

You do not have to agree with an increase or a decrease - especially if the GP does not consider ALL the results - TSH - Ft4 - FT3.

Why not ask here first !

How much VitD are you supplementing ? You have a way to go !

Sorry couldn't find your results - can you link the relevant post ?

[Molly139 in reply to Marz]

I’m supplementing with 2000 vit D and 200 K2-MK7, 4g of Mag365.

[Marz in reply to Molly139]

You could double VitD through the winter 🌻

[Molly139 in reply to Marz]

I’ll definitely look into that. I’ve added results to my original post. I couldn’t attach more than 2 photo.

[Marz in reply to Molly139]

grassrootshealth.net for VitD info and

vitamindcouncil.org

[SlowDragon Administrator]

What were test results that caused level thyroxine be reduced from 125mcg to 100mcg

Bloods should be retested 6-8 weeks after each dose increase in levothyroxine

Do you always get same brand of levothyroxine

What vitamin supplements are you currently taking

Remember to stop taking any supplements that contain biotin a week before ALL BLOOD TESTS

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies....OR especially if have been left under medicated as you have

Ask GP to test B12, folate and ferritin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

[Molly139 in reply to SlowDragon]

Yes I followed all instructions. My results are added to my first post. I just wondered if you’d heard of these aches before with Hashi or levels being way off

[SlowDragon Administrator in reply to Molly139]

Yes frequently

Your vitamin D is far far too low

How much vitamin D are you currently taking?

GP should prescribe 1600iu everyday for 6 months, but likely better off just self supplementing

Vitamin D

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

With your Vit D, are you also taking it's important cofactors - magnesium and Vit K2-MK7?

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...