The Dr is going to give it a try! Started Synth... - Thyroid UK

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The Dr is going to give it a try! Started Synthroid yesterday!

Tice profile image
Tice
22 Replies

Hi everybody, I’m new here and I posted 3 weeks ago saying that my dr didn’t want to give me Synthroid, but now he will! 👏🏻👏🏻👏🏻

Long story long, I was diagnosed with Hashimoto 15 years ago when I was 27 and never did anything about it. After reading a LOT here I realize that I’m not feeling good for the last 4 years at least, not only 2 years as I originally thought.

In 2016 my daughter was 6 months old and I couldn’t loose the weight I gain during pregnancy. I was extremely tired, sleepy and with mood changes. That never happen in my first pregnancy so I went to the doctor at the time and she said I was anxious and a little bit depressed. She gave me an anti depressed med that I took for 6 months and didn’t help at all! So I decided to stop.

Them I tried to do many things to loose weight and did loose doing the zero carb diet. The problem is, when you eat carb again you get all the weight back.

In 2018 I was still feeling bad, went to another doctor that said I had to exercise more and eat less and gave me ok to start taking Iron because I’m always a little bit anemic (since I can remember my levels for iron are bad). I started to walk more than an hour everyday and eat 1200 calories/day. Didn’t help at all for the weight loss but the iron did help a bit for the energy.

In 2019 I was feeling really bad, a little bit better on energy because of the iron but still cold all the time, gaining weight, confused, moody, sleepy and with memory lost. Went to two different doctors, the first one said for me to exercise more and eat even less (again). The second said I had to take Synthroid 25mcg to start the treatment but she was extremely rude the way she explain things so I’m never came back to her.

At the time a was afraid because nobody ever told me to take this and I didn’t know anything about thyroid except that I have Hashi.

So, I decided to work out more and eat less and don’t take the med.

Now I’m 42, work out 6x a week, I run 3x and have a personal trainer other 3x. I still eat less than 1200 calories/day and I’m still gaining weight like crazy and feeling bad with all the symptoms you can possibly imagine for hypo. I’m always cold, gaining weight, confused, moody, sleepy, hair lost, upper back pain and with memory lost.

Like I said the other post I take a lot of supplements but after some explanation in the other post I changed some things. Now I only take probiotics in the morning. I take the iron with Vit C two hours after lunch. At night I take Vit D, Vit K, magnesium, omega 3 and boron.

Yesterday I went to another doctor and told him I want to give Synthroid a try. Because my TSH is under the normal level, he will give me only 25mcg and after 6 weeks I’m going to test again and see if I can to go to 50mcg.

The pic that I posted have my records and the ranges since 2016. At some point the numbers for iron, vit D and other are better because I’m start taking supplements.

The anti body change the range in 2020 because it was in a different lab, so I put the “new range” beside the number.

I just really hope this will help me because if it’s not this, I really don’t know wants wrong with me.

Any thoughts would be appreciate! 😉

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Tice
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22 Replies
shaws profile image
shawsAdministrator

Unexplained weight gain is the commonest question hypothyroid people have. They have the same diet as always and are really puzzled why weight is gaining.

If the person hasn't hypothyroidism, weight is reduced by a diet.

If hypothyroid, weight can be difficult to lose as our metabolism has become so slow due to being hypo (low) thyroid. When the person has thyroid antibodies in their blood, the condition is the commonest form of hypothyroidism and it is due to the antibodies that attack the thyroid gland - the antibodies wax and wane until you are hypothyroid.

In the UK, for some unknown reason to me, the medical professionals will only prescribe if the TSH (thyroid stimulating hormone) reaches 10, even though we might be quite symptomatic. In other countries I believe the person is diagnosed if TSH is above 3+.

This is the method for more accurate blood tests. As the TSH is highest early a.m. and drops throughout the day, we advise that blood draw should be at the very earliest possible, fasting (you can drink water) and if taking thyroid hormone replacements - don't take dose of levothyroxine until after the blood test. This will give a more accurate picture of your blood test results.

Also request Vit D, Vit B12, iron, ferritin and folate to be tested too at the next blood test.

Always get a print-out of your results for your own records.

We aim for a TSH of 1 or lower and a Free T4 and Free T3 in the upper part of the ranges. (free's are different from just T4 and T3).

Ask for B12, Vit D, iron, ferritin and folate to be checked at next blood test, if not already tested.

Tice profile image
Tice in reply to shaws

Thank you! I live in US but I’m from Brazil. Both of them the range is up to 4.5 approximately, after 4.5 you are supposed to start treating. The closest I got was 3.4 but I have all the symptoms and Hashi. That’s why I think I’m hypo.

By the way, I literally tried ALL diets you can possibly imagine and NONE of them worked except zero carb. Unfortunately I don’t find zero carb something I can handle in the long term.

shaws profile image
shawsAdministrator in reply to Tice

We cannot lose weight until we're on the right dose of thyroid hormone replacements. Unexplained weight gain is the commonest query on the forum.

Hypothyroid slows our metabolism right down so that's the reason for weight gain.

The aim, once diagnosed as hypo, is a TSH of 1 or lower with both Frees (FT4 and FT3) in the upper part of the ranges.

stopthethyroidmadness.com/h...

Tice profile image
Tice in reply to shaws

So I think what I’m doing is right?

I insist with the doc to at least try to give me Synthroid for 6 months.

He finally agreed and we started yesterday with 25mcg...in 6 weeks I’m going to do another blood test and see if he can give me 50mcg...

Yesterday I had a blood test (before taking the first Synthroid) and I will update here once I receive the results.

Do you know how long does it take to feel the difference after start taking Synthroid?

I’m so hopeful that I finally going to feel good again...

jimh111 profile image
jimh111

The only way to find out is an incremental trial of thyroid hormone. Do you get better or start to show signs of hyperthyroidism? Your blood tests indicate that your thyroid is pretty healthy, so any problem would lie elsewhere.

Thyroid hormone action can be affected by endocrine disrupting chemicals (EDCs) endocrine.org/topics/edc . EDCs can cause hypothyroidism in peripheral tissues without affecting the pituitary and so give normal blood test results. If this is the problem you will need high hormone levels that suppress your TSH. If you start to show signs of hyperthyroidism you probably don’t have a thyroid disorder.

Tice profile image
Tice in reply to jimh111

Thank you! That’s is exactly what I’m trying to do. I started the 25mcg yesterday and I’m going to do a new blood test in 6 weeks, then I’m going to see if the TSH went down...if the TSH go way down it will mean that I’m not hypo?

What are the signs for hyper?

jimh111 profile image
jimh111 in reply to Tice

Hyper presents with a tendency to sweat, difficulty getting asleep, sometimes vertigo, a quicker pulse and a fine tremor in your fingers when you hold your hands out in front of you.

If your TSH goes down it does not mean you are not hypo. If you start to develop hyperthyroid signs and symptoms it will mean you are not hypo. TSH can be a really good indicator for a failing thyroid but it does not help with other forms of hypothyroidism such as endocrine disruption. It will be really difficult but you have to persuade your doctor to give priority to your signs and symptoms and response to thyroid hormone.

Tice profile image
Tice in reply to jimh111

So if I became hyper I will definitely know! I don’t sweat...I run 10k fast and my face is tomato red but I’m just a little bit sweating...and also I’m able to sleep every time a sit, anywhere, anytime...😆

jimh111 profile image
jimh111 in reply to Tice

Hyper is sweating under mild exertion, not running 10k!

Tice profile image
Tice in reply to jimh111

Exactly! Since I don’t sweat at all, if I begin to sweat I will definitely notice!

Thenightowl profile image
Thenightowl in reply to Tice

A lack of magnesium can cause a lack of sweating. I've had this, and my mum could never sweat, it's not a great thing as sweating is the bodies natural way of getting toxins out.

I used to run 10k regularly many moons ago, and people in my running group commented that I never looked like I'd done anything.

Sweat plenty nowadays!

Tice profile image
Tice in reply to Thenightowl

I take magnesium supplement daily at night since the beginning of 2020...but I never sweat... I know it’s weird but I’ve always like this...

Thenightowl profile image
Thenightowl in reply to Tice

I also did far infrared cocoon therapy, that and the magnesium seemed to kick-start it, although always so cold at the moment brrrr.

Tice profile image
Tice in reply to Thenightowl

What is this therapy? Never heard about it...

Thenightowl profile image
Thenightowl in reply to Tice

If you Google 'Get-fitt' you'll find info, I bought a cocoon 10 years ago as I had previously had a lot of toxic chemical exposure to farm chemicals and was quite poorly with chronic fatigue etc.

The sweat smelled very chemically for a few months when it started, and the following few years after using it were the most healthy ones I've had! I was also doing quite a few other dietary and supplement things so I'll never know exactly what helped the most, and I'm medically complicated.

FAR infrared is pretty amazing, for many issues I think. I gave it to a friend with MS for a long time, I have it back now but haven't used it for years. Waiting to see what happens about my upcoming thyroid testing before I start using it regularly again.

KristinCC profile image
KristinCC in reply to Tice

I was diagnosed hypo in 2002 and I am the exact same way. I never sweat and only have the hot tomato face under physical exertion.

KristinCC profile image
KristinCC in reply to Tice

Sorry, my reply went somewhere else 😄. I am the exact same way. I have hypothyroidism and I never sweat. I get the red, hot tomato face too when exercising.

Cola4444 profile image
Cola4444

25mcg is too low to start IMO given you are under 60 and athletic.

If you proceed on 25mcg you will make yourself very ill - even without exercise. I hope not !

My advice is to start on 50mcg and take it slow. Even 50mcg may make you more hypo until you body gets used to it and ready state for another 25mcg increase.

25mcg for 4 weeks made me very ill for 4+ months... giving the body less gas than you would normally need by far. 25mcg is not a top up... it's more of a replacement of the 100+ that your body is operating on a daily basis now.

Go careful !

Tice profile image
Tice in reply to Cola4444

I told the dr that I wanted to start with 50mcg but he said no because my TSH is “normal” and according to his protocol he was not supposed to give me at all.

Then I negotiate that I would take 25mcg for 6 weeks and do a new blood test to see if he could change to 50mcg (first he didn’t want to give me the med, then he wanted to wait 8 weeks to test, and I asked if it could be 6 weeks).

Now there’s nothing I can do...I’m going to have to wait and see how my body adapt for this 6 weeks...

How long did you took 25mcg? You felt bad even after going to 50mcg?

Cola4444 profile image
Cola4444 in reply to Tice

I took 25mcg for only 4 weeks because I was so hypo I had to take more before the 6 weeks was up (50mcg after 4 weeks).

Severe migraines, severe fatigue, muscle & joint aches.

However, I was so poorly (hypo) after these 4 weeks... even the 50mcg did not put me right ... & eventually NDT after some 3 months on has thankfully 'started' to make me feel semi normal again.

Note: My TSH was between 2.72 & 5.55 a few months prior. So normal in the Doctors eyes.

Good luck...

Tice profile image
Tice in reply to Cola4444

Now you feel good?

I know this next months are going to be difficult until I find the right amount I’m supposed to be... I didn’t think I could feel worst than I’ve already feel or gain more weight than now...

I’m going to keep an eye on this and see... today is only the third day and I don’t feel any changes yet... if by the second week I’m feeling bad, I’m going to try to talk to the Dr.

Thank you!

Cola4444 profile image
Cola4444 in reply to Tice

Slowly getting there.

Will follow your progress.

All the best...

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