Finally got results, can somebody have a look? - Thyroid UK

Thyroid UK

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Finally got results, can somebody have a look?

Dicky-ticker profile image
8 Replies

These were my full blood screen results in January 2020

TSH 2.05miu/L. (0.3-5.0)

Sodium. 141mmol/L. (133-146)

Potassium. 4.6mmol/L. (3.5-5.3)

Urea level. 6.4mmol/L (2.5-7.8)

Creatinine. 67umol. (40-95)

Calcium. 2.47mmol. (2.20-2.60)

AST serum. 18iu. (7-40)

Ferritin. 235ug. (10-291)

Vitamin B12. 270. (170-730)

Vitamin D. 31.3. (50-250)

In August 2020 thyroid bloods were taken, but not full bio screen. Just been diagnosed with non toxic multi nodule goiter.

TSH level is 1.48 (0.3-5.0)

TPO. 4iu. (0-24)

All I'm taking is 20,000iu vitamin D3 supplement 1 x weekly capsule.

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8 Replies
SlowDragon profile image
SlowDragonAdministrator

Just testing TSH is completely inadequate

Results are pretty useless

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin D and folate levels

On vitamin D supplements you should test twice yearly

Are you currently taking any magnesium or vitamin K2 mk7?

B12 is very low. Request testing for Pernicious Anaemia before starting any B12 supplements

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays

Dicky-ticker profile image
Dicky-ticker in reply toSlowDragon

I'm banging my head against a brick wall. I'm taking nothing but vitamin D.

I'm surprised my TSH has gone from 2.05 to 1.48 in 7 months and each time GP said normal range.

I'm going to contact Blue horizon and have full blood analysis done privately.

I'm knackered, gained 2 stone in weight (in a year) have severe hairloss, suffering brain fog, dry skin and ridgy nails, constipated, feel like I've swallowed a marble, gravelly voice, palpitations, nasal drip...the list is endless!

And all you get is "the results are normal range" 😠😳😠

SlowDragon profile image
SlowDragonAdministrator in reply toDicky-ticker

Improving low vitamin levels is frequently first step

This then either improves thyroid results....if problem was due to low vitamins rather than malfunctioning thyroid

If the thyroid is misbehaving.....Improving low vitamin levels will often then increase TSH so that it’s recognised that you do need treatment

Getting bloods done as early as possible in morning before eating or drinking anything other than water will help push TSH up

Also being busy and active in week before test

SlowDragon profile image
SlowDragonAdministrator in reply toDicky-ticker

Post nasal drip is frequently lactose intolerance

Very common with Hashimoto’s and gluten intolerance

thyroidpharmacist.com/artic...

drhedberg.com/avoid-dairy-h...

Lactose intolerance often improves on gluten free diet

coeliac.org.uk/information-...

SlowDragon profile image
SlowDragonAdministrator in reply toDicky-ticker

Vitamin D

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Calculator for working out dose you may need to bring vitamin D to

40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

With your Vit D, are you also taking it's important cofactors - magnesium and Vit K2-MK7?

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

Magnesium Citrate can help improve constipation

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Dicky-ticker profile image
Dicky-ticker in reply toSlowDragon

Only on HuxD3 20,000 capsules initially 1 capsule twice weekly for two weeks, then 1 capsule a week as maintaining dose.

I'm not too trusting of the NHS currently, been on a nightmare journey for 16 months now. You're turning into my saviour slow dragon.

Thanks for your advice

SlowDragon profile image
SlowDragonAdministrator in reply toDicky-ticker

You need to test vitamin D

Some people find they don’t need high dose for long...others need more than average

Vitamin D is toxic in excess

Important to test twice yearly, especially while working out why you personally need....it may vary summer and winter

SlowDragon profile image
SlowDragonAdministrator

NHS will only test vitamin D once every 2 years

NHS Postal kit here

vitamindtest.org.uk

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