Help Please, blood results

[SPD1]

Hi All,

could i kindly ask for comments regarding my last blood tests which were carried out by Medi Checks, i didnt realise it was as long ago as 11 months, i need to point out though that i take my Levo dose every night of 150mcg at around 11.30pm to 12 midnight, the blood draw on that particular day was at 10am so far less than 24hrs but it was fasted, i imagine as less than 24hrs it wont be an accurate reflection? But just wondering if it possibly indicates being over medicated with conversion that could be better?bearing in mind that at less than 24hrs i assume it will have created non genuine higher T4 and the same with lower TSH, not sure how it will have affected the T3 though so not sure how far from an accurate indicator it will have been.

On other posts i have detailed the symptoms i have been suffering since a head impact and whiplash at football followed by a serious car accident and whiplash 4 months later and that it could be that the incidents have affected pituitary or thyroid or it could be coincidental.

I changed from Actavis which i had been on for over 10 years to Mercury Pharma 6 months ago just to check in case i had started reacting to Actavis for some strange reason, symptoms seem to be less severe on MP but are transitory, i do actually feel that possibly MP are slightly less potent than Actavis.

The symptoms started about about 12 months ago so about a month before this set of blood results.

Arm and leg tremors, leg weakness, palpitations, blurred vision, visual disturbance (weird floaters) woozy/light headed, unnatural fatigue, alarming hair loss issues, significant thinning of head, eyebrows, under arms, pubic, legs, arms, chest and notable less re growth in all mentioned.

Medi Checks

TSH 0.017 (RANGE 0.27 - 4.2)

FREE T3 4.35 (RANGE 3.1 - 6.8)

FREE THYROXINE 22.30 (RANGE 12 - 22)

CRP HS 0.07 (RANGE 0 - 5)

THYROGLOBULIN ANTI BODIES 10 (RANGE 0 -115)

THYROID PEROXIDASE ANTIBODIES 9 (RANGE 0 - 34

FERRITIN 150 (RANGE 30 - 400)

VIT B12 active 135 (RANGE 37.5 - 188)

FOLATE serum 16.72 (RANGE 3.8 - 19.45)

VITAMIN D 42.6 (RANGE 50 - 175)

I know i'm low on Vit D.

I obviously need to have a new test done but one that accurately reflects the genuine position rather than trying to achieve the highest TSH for GP purpose

Bearing in mind i take Levo every night at between 11pm-12 midnight what is the best time to organise a blood draw to gain as close to an actual "real" reflection as i am very much aware now that there should ideally be 24 hours between medication and draw.

Any comments or advice will be very much appreciated indeed.

Thank you.

Steve.

[SlowDragon Administrator]

Levo at night

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

These results show low Ft3

Obviously vitamin D very low

How much vitamin D have you been supplementing?

Should test twice year when supplementing...certainly until you work out how much vitamin D you need to maintain vitamin D at least around 80nmol and around 100nmol maybe better

vitamindtest.org.uk

Come back with new post once you get results

[SPD1 in reply to SlowDragon]

Hi slowdragon,

do you think the fact that i took medication approx 10 hours before blood draw would have made a great deal of difference in that set of results? obviously i need to try and get as accurate a picture as possible in the next test. I suppose its difficult to know if the T4 is actually really as high as that given time of medication but would those results perhaps indicate over medication on T4 which could be causing my symptoms. not easy to say i suppose.

If my T3 conversion is not good how do i improve it other than to add T3 separately which there is no chance of me getting that on NHS and it appears lots of people are having difficulty sourcing from other means.

I tried supplementing on 2000iu D with lemon drops from nutri advanced but they triggered my symptoms again, i then tried 1000iu Vit d in tablet form from Solgar but they triggered symptoms as well so i havent really tried since, i was thinking of trying 1000iu vit D spray from Better You to see if i get the same reaction again, its baffling why i cant seem to tolerate supplements anymore..

many thanks for your help..

[SlowDragon Administrator in reply to SPD1]

Have you had the list of recommended thyroid specialist endocrinologists who will prescribe T3 from Dionne at Thyroid UK ?

[e-mail]

Obviously difficult/long wait on NHS

Seeing endocrinologist off private list could get private prescription for T3 for initial trial

Private prescription enables access to cheap T3 from EU

Assuming trial goes well, with perseverance you may get T3 on nhs

Roughly where in the UK are you ....some CCG areas are worse than others (post code lottery)

What vitamin supplements are you currently taking?

Are you taking any magnesium

B12 and folate are looking pretty good - are you supplementing? vitamin B complex?

[SPD1 in reply to SlowDragon]

Hi,

yes i have had the list from Thyroid UK but i'm a bit too financially challenged at the moment to see anyone on it

I am south Manchester, 5 minutes from the airport.

I am taking a good quality B complex daily but the levels are not particularly high, i have taken it for years, i have tried to double up on the daily dose but it makes me "woozy and a bit light headed" i take a high strength fish oil capsule daily, a zinc and copper supplement daily, i tried taking a magnesium supplement of 100mg daily for a few days but it made me tired during the day so i stopped. It shouldn't make me tired during the day?

I will buy a Vit D spray in the next couple of days, will have to start with 1000iu to test if i get a negative reaction before increasing strength. I know it's important.

Thats the problem, i seem to have developed an issue with taking supps so i can't top up to the extent i probably need too..

I dont know what to do for the best now, obviously something is out of sync with all the symptoms i'm experiencing and the serious loss of hair and lack of re growth all over, not sure if my medication needs have altered organically or as a result of thyroid and or Pituitary being affected after the two significant incidents i suffered, particularly the head impact which was sickening, surprised i wasn't knocked out.

I am frightened that if i go to GP she will just focus on TSH and not look at the bigger picture, they only test for TSH in my surgery! I have had to argue a few times with her to stay at the same daily dose so i am extremely concerned she will just use the further symptoms to increase the pressure to reduce dose without being diligent and carrying out further tests.

Many thanks SlowDragon..

[Lora7again]

You should not have to pay to see a Endocrinologist with your symptoms. I would insist your GP refers you through the NHS and I would ask members to recommend someone who can help you.

[SPD1 in reply to Lora7again]

Many thanks Lora.

the other concern i have seeing an Endocrinologist is that at the local hospital their are 4, i know someone off here who actually paid privately to see him, she was seriously unimpressed, gave her far less time than she had been told she would get by his P.A and he wasn't really interested in how she was feeling or T3 or T4 results but greeted her with "I like to see TSH not a great deal under 2" !! so you can imagine my concern if i get to see him with my TSH at 0.01.. Plus if he is the lead i would imagine that the others may very well have a similar philosophy on TSH ? its a gamble, i am worried they will just make an immediate assumption that i'm over medicated rather than carry out further testing. I'm in a right hole with this

[Lora7again in reply to SPD1]

You can go anywhere in the UK to see a Endocrinologist. I wouldn't want to see one in my area because quite frankly they are rubbish. I have sent you a pm.