Need advise please before endo call as T3 above... - Thyroid UK

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Need advise please before endo call as T3 above top range

elsaldo profile image
9 Replies

Good Morning, I hope everyone is enjoying the holiday season.

I am looking for some advice before I speak to my endo in January.

Approx 4 months ago my T4 levels were low. My levo was increased from 50 to 75 mcg daily.

I will post my blood results from last week too, my T3 is now higher than the range.

4 months ago : Thyroid meds:

Midnight = 10mcg Liothyronine + 50mcg Levothyroxine

Noon = 10mcg Liothyronine

Blood results (no levo for 24hrs + no lio for 12 hrs)

TSH = 0.05 Range (0.27-4.20)

T4 = 10.4 Range (12-22)

T3 = 6.7 (3.1-6.8)

Current Thyroid Meds:

Midnight = 10mcg Liothyronine +75mcg Levothyroxine

Noon = 10mcg Liothyronine

Blood results (no levo for 24hrs + no lio for 12 hrs)

TSH = <0.05 Range (0.27-4.20)

T4 = 15.5 Range (12-22)

T3 = 7.7 (3.1-6.8)

I feel tired, unmotivated and get a racing heart from the smallest of activity.

Any advice on what I should try next is greatly appreciated.

Thanks, Elsaldo x

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elsaldo
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SlowDragon profile image
SlowDragonAdministrator

Do you always get same brand levothyroxine at each prescription

Same brand T3

suggest you reduce 2nd dose T3 by 5mcg and retest in 6-8 weeks

Meanwhile ESSENTIAL To test vitamin D, folate, ferritin and B12 at least annually

When were these last tested

What vitamin supplements are you currently taking

elsaldo profile image
elsaldo in reply to SlowDragon

Hiya

Yes I always get Aristo and Roma as both are lactose free.

I take my usual supplements of Vit D(K2) spray and iron spray, magnesium and a brazil nut (lol)

Also have hypoparathyroidism and take alphacalidol for that too.

I will need to get vit levels checked again but my Vit D was 84... 1 month ago.

Thanks slowdragon, I shall ask to reduce my second dose.

Elsaldo :)

SlowDragon profile image
SlowDragonAdministrator in reply to elsaldo

So are you currently on dairy free diet too

And gluten free?

Yes will need new prescription for 5mcg capsules as you can’t (easily) split capsules

You might find it better to take 3 x 5mcg doses T3 spread through the day at roughly equal 8 hour intervals

elsaldo profile image
elsaldo in reply to SlowDragon

Hi, no I am not dairy or gluten free, I take lactose free meds as I was getting a rash with all others.

Yes I will ask for the 5mcg doses and try spacing it out as you said.

Do you know the cost differences? I am on 10mcg capsule lio as surgery said tablets were more expensive.

Thanks again :)

SlowDragon profile image
SlowDragonAdministrator in reply to elsaldo

3 x 5mcg capsules will be a little more expensive than 2 x 10mcg capsules

But cheaper than 10mcg or 5mcg tablets (which aren’t lactose free)

3 x 5mcg capsules = £165

2 x 10mcg capsules = £130

1 x 10mcg and 1 x 5mcg = £120

Post I made with current prices

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

Are you still taking vitamin B complex

Did you remember to stop taking this 5-7 days before test

Are you still only on Aristo levothyroxine

Is T3 also lactose free

Have you had coeliac blood test done

Have you tried strictly gluten free diet or dairy free diet

tattybogle profile image
tattybogle

from a quick look at your history in profile ( very helpful :) ) i'd say ,as often happens , your endo reduced your Levo by more than was necessary, and added to much T3 to start with . Starting straight in with 20mcg T3 is always a bit rash .. you probably don't need that much. many people only need a lttle bit.

elsaldo profile image
elsaldo in reply to tattybogle

Yes thats sounds logical, same advice as slowdragon so I shall try the reduction in T3...

Thanks :)

SlowDragon profile image
SlowDragonAdministrator

FT4: 15.5 pmol/l (Range 12 - 22)

Ft4 only 35.00%

You might eventually need slight increase in levothyroxine

But only change one thing at a time

Suggest reducing T3 first - retest after 6-8; weeks

Then try splitting as 3 doses and retest again

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