help and advice welcome

[SueHL]

SueHL

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I am new to the site. I would like advice in relation to digestive problems since taking levothyroxine. In September 2012 I was diagnosed with a multi nodular goitre and thyrotoxicosis. I was treated with Carbimazole for about 2 years. In September 2015 I had radio-iodine treatment and since then my thyroid has been under-active and I have taken levothyroxine. When taking about 100mg a day I feel reasonably well but usually I am recommended to take a lower dose of about 75mg when I begin feeling tired put on weight. Also I developed constipation and indigestion /acid reflux since the radio active iodine treatment. In August 2019 my blood results were T4 22.5 TSH 0.10 when I was taking 100 mg daily. I reduced the dose then to 100mg 5 days a week and 75mg 2 days (weekends). January 2020 blood results are T4 23.30 and TSH 0.79. My GP has asked me to reduce dose to 75 mg a day which I have done. I have had various other blood tests done

B12/Folate (LASA)- normal - no action Plasma vitamin B12 level 754 pg/ml range 197.0-771.0pg/mL

serum folate 15.4 ng/mL range 2.90-26.8ng/mL

serum ferritin (LASA) normal 38 ug/L range 13.00-150.00ug/L

serum amylase level (RASH) sl raised 127 iu/L range 28-100.00iu/L

serum C reactive protein level (RASH) 0.6 mg/L range 0.00-5.00mg/L

serum iron tests (RASH) normal

Serum lipids

serum cholesterol 5.7 mmol/L range 2.5-5.00mmol/L

serum triglycerides 1.7mmol/L range 0.40-2.30mmol/L

serum HDL cholesterol level 2.3 mmol/L range 1.20-1.70mmol/L

non HDL Cholesterol 3.4

Some other blood results but I think they are not relevant. serum gamma GT, bone profile, liver function, renal function NRBC count and white and red blood cell count.

I have not yet discussed the results with the GP.

Any suggestions would be welcome. I keep very fit and eat a pretty healthy diet. However I have not tried a gluten free diet which I think some people recommend on this site. Nor have I tried T3. Thanks for any tips.

[fuchsia-pink]

Hi Sue

Welcome to the forum. Can you please add the lab ranges to your blood results - these vary from lab to lab - so we can see where you sit within the various ranges.

You can edit your post with the "more" button on the right.

[SueHL in reply to fuchsia-pink]

Thanks - I have added the ranges now.

[butcher3]

Hi Sue , I came off Levothyroxin asap it never worked for me. I take a mixture of NDT & T3. Many patients with thyroid issues also have gut issues. Many do well GF as it can drive autoimmune issues & feed unwanted bacterial overgrowths. I found my GP useless. Took my Health care into my own hands. Patients have found slow motility on Levo & as I understand it fail to resolve their gut issues without some T3. I would start also looking at your gut for various issues SIFO SIBO LIFO Bacterial overgrowths & infections

[SueHL in reply to butcher3]

Thanks for this. I seem to be reasonably OK on levothyroxin except for my digestion issues. My GP is taking some interest in my chronic indigestion so I will wait to see what she suggests before I do anything too radical in relation to my medication. After this I may get private blood tests done and and try T3 and reluctantly will try gluten free (I love good sourdough bread!).