I had a hysteroscopy, biopsy and mirena coil fitted over 3 weeks ago ,I had thickening of uterus lining due to imbalance of HRT I think.So mirena is supposed bro correct this Only problem is It seems to have triggered thyroid symptoms, terrible fatigue,aching joints ,feel cold in afternoons.Also feel like have constant PMT .In wondering if it's these proceedures have triggered these symptoms or the mirena coil,I was wondering if extra progesterone has triggered some thyroid symptoms.Seriously considering having it taken out Has anyone else experienced anything like this?
Feel I'll after mirena coil: I had a hysteroscopy... - Thyroid UK
Feel I'll after mirena coil
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caroash
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Hi Lorna thanks for this information,I too have lost hair, alopecia aeratia and feel very down,also been craving rubbish food.Whenbthey fitted it it was all done quickly and the nurse bn the room said she had one and gushed about how great they were for HRT.I questioned whether a localised progesterone could affect me so much.I feel like I've been poisoned or got an on going virus. Did you feel better once it was out?
Yes they were pushy with it,it's a good job you had it taken out .I am post Menapausal so wasn't having periods,but have had spotting every day since having this fitted.The progesterone tablets weren't great Utogesterone,but at least they were Bioidentical.I suppose bits cheaper for NHS to fit coil than give tablets m
Thanks yes it does supposed to thin it out,Ithink I wasn't taking enough progesterone to oestrogen ,should have had 2 tablets,but only had 1 as can't tolerate progesterone ,the oestrogel is great though. Might just go down herbal route ,but would misss Oestrogel.
Sorry to hear that about your mother,sounds like you've done the right thing.
Herbs won't stop bone loss or protect your heart as oestrogen can. I could not get on with Utrogestan orally, but was fine with taking it vaginally every night except that I was bleeding all the time due to a polyp as it turned out. I had the polyp removed, a biopsy and the Mirena fitted at the same time and I felt great. No more bleeding. Just a bit of spotting for a few weeks. When I had the coil for birth control in the past it took about 4 months for my body to work out what was happening and become OK with it, so give it enough time. I can honestly say it's the best progestin or progesterone I've ever tried for HRT.
There are a lot of scare stories around about it, but for everyone of those there are thousands of perfectly happy women using the coil. The amount of progestin emitted it tiny.
Don't jump to a rash decision based on fear.
Ahh that's good to know you don't have the gene,that means healthy lifestyle makes all the difference.and having regular mammograms is reassuring too.
I went through the same procedures after an extremely heavy period lasting 35 days. I was awaiting a call for a blood transfusion but they decided to use norithsterone to stop it. This was on the February and in October/ November I was diagnosed hypothyroidism. The hypothyroidism could have caused the heavy bleed not just menopause .
Stick with the mirena it does get easier. Like me you could just be unfortunate to have the double whammy of perimenopause and hypothyroidism x
Tibolone. That's all I will say about HRT.. except it is wonderful. And it has been used by women for many decades, I believe it became available in the 80's.
Hey, I had it fitted in July due to being really u well every time I had a period - up to 2 weeks of flu like symptoms, pain & nausea. I’m low in oestrogen as well. As a migraine sufferer (visual as well) I am reluctant to take HRT. Had hysteroscopy they found inflammation but decided coil best. Since then I’ve bled for 95% of the time. On top of other illnesses it’s doing me in!! Last doc I saw was super empathic & said it doesn’t work for everyone so give it another couple of months & get referred fro surgery. Would be either hysterectomy or ablation. I’m 42 with grown up kids so will prob go for hysterectomy. I’m constantly unwell & hormonal & weight gain, hair loss & My downy peach fuzz seems to be getting longer so I’m really done with this coil!! X
Ah wow! I can’t wait for that.. it just makes me so unwell. Will get in to see her over the next month & get referral in place as that can take months anyway. The ablation seems to have a ‘works for some’ attitude around it as well. I’m peri-menopausal anyway, so I may as well go the whole hog & try and just get through it as quickly as my body allows me..!
Ablation has a very high failed rate about 50 % and increases over time do not have the ballon type ablation Hologic is the safest or best of a bad bunch and do not have it in outpatient the pain is much worse than child birth it not safer that a hysterectomy eather but you do get to keep your cervix that is the only plus side
I had a mirena coil around about 2008/9 and I believe that's what made my hypothyroidism worse. At this point I didn't feel great but became quite unwell with a catalogue of symptoms including right up to 'moon face'. I had mine removed with some difficulty as it had imbedded in the side wall of the uterus so had to go in hospital for removal. I am not medically trained but I would not recommend a mirena coil purely on my own personal history with one.
That sounds awful , what a terrible thing to go through,my face gas gone puffy and eyes look like had no sleep for 3weeks.Im having it taken out at sexual health clinic as they're booked up at gynae and theyll try talk me out if too.No as asked at s health clinic ,just want it out.
That's what happened to me with the coil I had for contraception.
Sorry to hear you had that too.
It's a long time ago and the general anesthetic made me feel fantastic.
It was around 2009/2010 if I remember correctly. I had it done without anaesthetic which I didn't find out until later was unusual, it was at my own request. Consultant agreed as I had tolerated her pre-theatre attempts of removal.
I had a general as the doctors attempts at yanking it out previously had me screaming and passing out.
I was very fortunate to have a gentle experienced female Consultant, perhaps it helped that she had a uterus herself.
Mine was female, but coil was really embedded - I was threatened with hysterectomy! Apparently, if you yank the threads it should just come out - unless ...
Mine was also embedded in the side wall although I was fortunate they got it out. Certainly wouldn't recommend the Mirena coil to others. It was suggested that they release the hormone gradually, I suspect not.
I didn't realize they could get stuck,it's bad enough having them put in.It was a 2 minute job pulling it out,she just said cough and our it was.The worst thing was the hysteroscopy, biopsy as they blow up your uterus ,hurt like hell and a young dishy make medical student was having a good old look🙄
That sounds awful
Yes it was,it all took about half an hour with only local anaesthetic into cervix,but could still feel it.Then when finished showed me into next room an I was asked to get dressed,no recovery time I walked out to the car park and was sick and then in agony . Luckily my husband was driving me home.I did read in literature after that your supposed to have half an hour in a recovery room.To be honest felt a bit traumatized.It sounds sill at 53 to feel so embarrassed with the young medical student,but I felt so uncomfortable with him there.The nurse asked if I minded him being there,and I said I felt uncomfortable with it and she said don't worry he'll only be looking at the screen,he was looking at more than the screen ðŸ¤
ncbi.nlm.nih.gov/pubmed/129...
The possible relationship between menorrhagia and occult hypothyroidism in IUD-wearing women.
Just read also that synthetic progesterone affects beta arrestin 1 a protein in brain cells that affects mood,this is one of reasons for depression. I also read that Device Welch went to see top Gynae professor John studd as she had suffered depression for 20 years and he said first thing I'll do is remove your mirena coil as some women are progesterone intolerant and your one of them.She said it completely changed her life. I have arranged to have it taken out today ,so desperate to get it out.My wnilwbody feels I lnflammed and I can't even fill a simple form in I suppose everyone is different, but I think I a progesterone intolerant.
The mirena didn't agree with me at all,my doctor recommended it for my heavy periods and fibroids.I had it in for a year and I had a lot of pain,stabbing pain in my pelvic area every day.It also triggered off really bad depression and I had suicidal thoughts.One day I had horrendous pain and I was writhing about with what I can only describe as labour pains I had enough.I had it removed after asking several times and then telling me to give it time to settle.
Oh I'm sorry you too had a bad experience,they love telling you that it's only localised progesterone to the uterus,but I read it does go into your bloodstream,it's bound to as uterus is blood rich and it's bound to cross Into your system.Hiw else would you feel so I'll and have all those symptoms if it was just localised.Even on literature about it bad side affects ate listed.
It's not well absorbed through the skin and it's not a licensed product in the UK. Not recommended.
No, it's not my opinion, it's medical fact. Progesterone is not well absorbed through the skin. That is why there is no licensed cream or gel based progesterone available.
But you can get it on private prescription. Being licensed isn't proof of efficacy or the opposite as we know from NDT.
In the U.S. there is an FDA approved progesterone gel -- Crinone 4%Vaginal gel.
wellsprings-health.com › pages › serenity-natural-progesterone-...
Wellsprings Serenity Natural Progesterone Cream ...
Natural Hormone Replenishment Wellsprings Serenity has been helping relieve the symptoms of menopause for thousands of women since 1997. The active ingredient in Wellsprings Serenity is Natural Progesterone which is bioidentical to your body's own progesterone. * Every woman is unique. Your results may vary.
I'm not saying it suits everyone. I'm saying it is unwise to make a rash decision based on fear drummed up by people telling horror stories. It suits a lot of women. And when it does it's a great device. But like those doing well on thyroid replacement, we don't hear about those. Only the ones that don't do well.
Who? Me?
So, so. But that's been the case for years now. Since before HRT and long before the coil.
And I'm sharing mine, with a few factual things thrown in. You are being just as argumentative. It doesn't do worried women any good to have horror stories pointed out to them without some success stories to balance them.
Hi there, first off I would say you do unfortunately need to wait a lot longer than 3 weeks before you have a good idea of how the Mirena will suit you long-term.
I had constant bleeding for at least a month after mine was fitted, and spotting for another month after that. It's only been in the third month that I am starting to feel the long-term benefits (i,e. no periods, more stable hormone patterns etc).
You're right to say that it can change your overall hormonal profile though. I did notice a difference straight away that has stayed with me to an extent, but is starting to level out now. I don't know how it has affected my thyroid as haven't had a test yet, but I am due one and think my dose may need to be altered.
This is kind of at odds with what doctors tell you about the mirena - like you, I suspect, I was told it was entirely 'local' and would not affect my hormones on a systemic level. This is clearly not true - but for me, I still feel that the overall levelling out of my hormones and the lack of periods is a fair price to pay.
So I would give it a few more weeks before you reach any conclusions and if you need to get your thyroid dose tweaked, do that asap. HTH!
I had Graves DECADES before I started using a Mirena so there was no relationship whatsoever. Mirena greatly lessened my heavy periods and I had no ill effects - I've actually gotten 2 Mirenas since then (they only last so many years) and they are also good during menopause.
I had the Mirena fitted in 2010 under sedation. When I woke I felt terrible. I could hardly walk and just felt like I was Hypo (as I now know). I felt so ill. 10 days later got a rash from head to foot. Then a really oozing sore on my forehead at 3rd eye which would not heal.
Doctors tried me on lots of different things. I came to the conclusion that it was the Mirena. I prayed to God to get it out of me. The following morning it ejected into the toilet. The sore started healing instantly. Doctors said it was a rare form of Acne Rosacea caused by the Progesterone in the Mirena.
But I have had virus after virus since and Hypo now.
God that's sounds awful,its like being poisoned isn't it. I think it triggers an auto immune response in some people . My daughter had CFS/M E and she was found to have had 2 viruses cytomegalovirus and EBV ,the amino acid Llysine really helped as is anti viral with Vit C too.
Well actually, that's the one thing that's not going so great for me. They've disappeared. I'm hoping they are just hiding...
Oh no! That's awful...yeah I'm going to have to get mine checked out because it's not ideal to have it go missing in action, but fingers crossed it's just the strings that are hiding.
Regarding the side effects I'm not denying them for a second and I know that they can be awful. I was just under the impression that any side effects you might get in the first 3 months are likely to be initial effects that will settle down, so tbh I sort of ignored them until I reached the 3 month mark which was when I'd been told I could start to get an idea of how it would suit me (or not) long term.
In terms of my own side effects I also had acne and a HUGE increase in appetite, so I know they exist. But they are improving, and again for me, just so much better than constant bleeding and mood swings. Like anything in medicine it's a trade-off.
It could be, this is true - and it could also be the cause of the brain fog we're currently chatting about on the thyroid board! That is, if I've got some sort of awful perforation...not sure I want to consider the other possibility.
I'm not sure if that or pregnancy would be worse for me at the moment...anyway, various appointments booked for next week so fingers crossed!
What do you know of symptoms of hypo, hyperthyroid, lack of iodine and consequences? Wolfs of headache, hair loss, painful cystic ovarian, prolonged painful periods .... endometriosis, .... 500 symptoms .... cancer of ovarian , breasts are hiding in that bus h. It is in family, heritage, genes. Sadly in my too. Two female passed, I'm disabled. If I would be female would be dead 20 years ago. After removed uterus, hair loss, depression, hair loss, painful cystic ovarian, prolonged painful periods, ruined quality of life. After at least three surgeries and many chemo therapies... Sorry for unpleasant words. Sometimes this life is rud and a man in his peace in long nights become little sad.
For headaches bad teeth root can be cause. Show slide to 3 o 4 dentist. If any say it is bad take it out. No mercy. Afer 35 years peace, no headaches. Especially if pain come out from 15 years of age...
I would rather say, that it is coming spring, birds are singing in the early mornings, flowers will bloom, there will be a lot of sun and girls of all ages will be beautiful and full of energy and love. Especially those with lack of thyroid stuff connected effects.
Well wretched thing is out now,feel better already.The nurse at the sexual health t said she takes lloafs of them out. I had too many bad symptoms to give it any longer Loads of hair on bath too🙄 My headache going already,I just do t think it was for me Need to do g alternative progesterone now. Will try and find a good cream.
Also feeling so depressed especially in January was soo hard,I think you can cope with pain and other things,but when your mood is so low everything is difficult m
Mine just got gradually thinner as I got older even with HRT. That's what's supposed to happen. I get a pelvic scan every year just to check.
Apparently, fake progesterone acts more like testosterone in the body, which is why it gives some people acne etc.
No idea, sorry. Haven't had one for about 40 years. Don't get mammograms either. No point me taking up the appointment times when I am going to refuse treatmentif there is anything wrong
Ahh yes I considered behaving to wrench the thing out myself,but good old sexual health clinic obliged,no qs asked. The GP said they don't do it and no reply from gynae,the funny thing was sexual health clinic us right next to gynae section of outpatient vdept at hospital I did lie and omitted fact that is had hysterooy ect,but knew just wanted out My body told me.Ibthink also that in Menapause our body's need oestrogen,for so many reasons,but progesterone is a pain in the arsenoe should I say uterus 🙄
Just reading earlier comments,not sure how things took a turn to the dark side.But wanted to say we are all different,but we are all human too and should be kind and respectful no matter what we are going through and we all comment and share to support each other . Everyone has different experiences which they can share and we can take away asuch or as little as we wantbir need to. Also must want to say my decjsi to have coul taken out was not through anyone else's horror story,but from a careful informed decision based on basically feeling so bloody crap for 4 weeks .x
As you can see progesterone has affected my eyes , apologies for mis typos 😊
Good girl... Well said x
Hi well I really have appreciated your advice and was so glad you responded to me in the first place and enjoyed chatting with you.People can get uppity ,I dont know why.As you say we can only talk about our experience and it's up to people what they think/do.Thats good you are feeling so.much better too.I do believe things are absorbed through the skin I e Oestrogel and patches.I think if the cream has enough progesterone in and is in a form that's absorbed well I can see it would work.
It goes to every 5 years at our age. I dont think they stop.
The four UK health services say very similarly except the highlighted bit (in bold):
When you'll be invited for cervical screening
25 to 49. every 3 years.
50 to 64. every 5 years.
65 or older. only if 1 of your last 3 tests was abnormal. Information: You can book an appointment as soon as you get a letter. If you missed your last cervical screening, you do not need to wait for a letter to book an appointment.
nhs.uk/conditions/cervical-...
All women aged 25 to 64 in Scotland are invited for cervical screening. Women aged 25 to 49 are invited every three years and women aged 50 to 64 are invited every five years. The test can pick up changes to the cells in the cervix which if left untreated could develop into cervical cancer.
healthscotland.scot/health-...
Search Results
Featured snippet from the web
Northern Ireland Cervical Screening Programme
Women aged between 25 and 49 are invited every three years and women aged between 50 and 64 are invited every five years.
nidirect.gov.uk/articles/ce...
All women in Wales aged 25 to 64 who are registered with a GP are automatically invited for cervical screening (every 3 years if you are 25 to 49 and every 5 years if you are 50 to 64).
U had similar but stuck with it as my periods were debilitating to the point having had double dose iron for 2 weeks my iron had dropped further. On my first blood test my depleted ferritin was 6 .
After the 35 day bleed on top of many severe periods I was given the mirena.
I spotted for about 10 months and it finally settled. My womb was still thickened and would have continued to bleed. The mirena ha settled this. I guessed the cervix was probably agitated as it got use to this foreign body.
The thyroid issue I doubt is anything to do with the mirena . Both my dad and my aunt is hypothyroidism.
Since mirena I have no hormonal spots that I got on my chin and I'm sure the levo has contributed to my hair growth.
I cant say I like the mirena but it has helped my situation. I at one point would have had it removed but now my body seems to have accepted it.
My hypothyroidism was diagnosed Oct 18 . I'd had the merina fitted March 18. I could say the same but both my aunt and dad have it. My friend has been diagnosed hypothyroidism same time as me no coil but perimenopausal. It happens to many women facing menopause. ( I'm sure I've read that) .
Have you had a blood test regarding your thyroid?
Hi well not for a while now,but I have just had blood tests last week at the GPs with feeling so I'll ,I asked them to test me for lupus so I think it was a full blood count too,with thyroid,so I'll see what comes back,thanks for asking x
Next time you have thyroid request 1st appointment of the day and treat it like a fasting blood test. Best results for thyroid regarding levels x
I'm sure its pushed because it's the cheaper option and less invasive. Ablation and hysterectomy being the other options.
You had a bad experience. Many haven't. Everyone is different. I would have had mine taken out but I left it. I no longer have spotting , I have other symptoms but they are perimenopausal/ menopausal issues.
Your cervix was inflamed and you had biopsies taken but did they swab for infection?
It isn't progesterone, that is the problem. It is a synthetic progestogen,many of which have nasty side effects. Natural progesterone doesn't have side effects. Uterogestan pessaries should be o.k.
Hi yes I read on a Menapause site that women used Utogesterone internally,and I tried it and I had a small period for first time since being on her,but that led to me having procedurebcos the GP thought abnormal post Menapausal bleeding and found uterus was 7mm ,which is too thick.But now coil out I'm gonna go back to doing that as I think it's better to have some kind of bleed to thin uterus. Also feeling much better now coil out,I can think straight, filled form in and my eyes normpuffy nowx
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