I ve had the Mirena for 3 years when I had my son in 2021 and before that I had it for 4 years .
Results said i have hyperthyroidism,see below.
I read that Mirena can cause it, but I have never had no issues with Mirena.
A few weeks ago I started having heart palpitations,also felt like my heart was missing a beat like when you are nervous
Other symptoms I always feel extremely tried and when I have coffee I would have tremors and shakes a few hours after, I thought that was normal but I know it one of the symptoms
I have started taking carbimazole a week ago 5mg twice a day, I feel better but I have also changed what I eat ,I feel much better I do get heart palpitation for only a few seconds
I want to stop taking carbimazole, I don't want to take it for 12-18 months, I read taking it long term is not good
I took another blood test for antibiodoes or something like that but I have not got the results
I think you have posted a similar question a few days ago. You developing hyperthyroidism is very likely coincidental and unlikely to be related to the Mirena coil.
There is no scientific evidence that the Mirena IUD or other contraceptive methods cause thyroid problems in people without an underlying thyroid issue. However, hormonal birth control can affect thyroid function tests, as they could lower your circulating thyroid hormone levels.
Thyroid diseases (hyper and hypothyroidism) are autoimmune diseases, which means that the body produces antibodies that attack the cells of your thyroid, and in response they produce either too much or too little thyroid hormones. In your case, your thyroid produces too much thyroid hormones, therefore you were given carbimazole to deal with this. You should be monitored regularly to follow your progress. It is quite important to check your free hormone levels (T3 and T4) to see where they are, as you don't want to go too low either. T3 especially is an important thyroid hormone, too much can give you palpitations and a racing pulse, but very low levels can make you feel awful too, and you need a decent T3 level to feel well. It may take a while for your T4 to get lower, as it is quite high at present, hence it would be interesting to see what your T3 levels are. I would do a full thyroid test with TSH, T4 and T3 and I would also test antibodies for Graves and Hashimoto's.
I developed hypothyroidism and was on thyroid replacement medication long before I had the Mirena coil inserted (for contraception and now for HRT), but I noticed that I needed to slightly increase my dose of levothyroxine (T4 treatment) whilst having the coil.
I had the Mirena coil for birth control for many years before I developed hypothyroidism. There's no link to suggest it was the fault of the coil. Likewise I know a lot about HRT now and I've never heard it discussed as a potential problem for hyperthyroidism.
I think it's purely coincidental. As we get older we develop hormone imbalances and antibodies for various things causing issues. Go with your endocrinologist's advice on the Carbimazole. It might just be a passing issue for you, that can happen.
Unless you have obvious signs and symptoms of a swelling around your neck area where the thyroid is located and or having difficulty swallowing or breathing - there are 2 main reasons why you have a low/suppressed TSH and over range T4 reading -
and if not taking any form of thyroid hormone replacement -
we are looking at 2 Auto Immune diseases that attack the thyroid - Graves and Hashimoto's -
and we need to know which AI disease you are dealing with - through a further analysis of the original blood sample -which appears to be happening -
The antibodies will be written as TPO - TgAB - TSI - Trab - or wording such as TSH Thyroid Receptor ab - with either a range or single digit and cut off number :
In the meantime you have been prescribed Carbimazole to alleviate symptoms being tolerated and to make you feel more comfortable -
and all this drug does is semi-block your new, own, daily thyroid hormone production while we wait for your immune system to calm back down again -
and your over range T3/T4 levels will slowly fall back down into range with your symptoms alleviated.
The most recent research we have is detailed below :
If with Graves - this AI disease is said to be life threatening if not medicated - and with the medication being an Anti Thyroid drug - such as Carbimazole - which is perfectly safe to stay on longer term as detailed in the research paper above.
I have no experience nor knowledge of a Mirena coil causing an episode of hyperthyroidism.
Hi becky, the biggest cause of thyroid problems in UK (both hyper and hypo) , is autoimmune disease . but since no one knows exactly why/ how autoimmune disease happens yet, you will probably never have any certainty about why your body chose 'now' to become hyperthyroid.
i have never seen any credible evidence that mirena coil causes/ triggers hyperthyroidism .. or hypothyroidism . Obviously you will come across a few people who genuinely believe it did cause theirs , because thyroid problems and using the mirena coil are both extremely common in women. The internet is great , but it's also great at making mountains out of molehills. ( not to mention american layers trying to make money out of it)
all sorts of things are known to increase the occurrence of hyperthyroidism eg . pregnancy , stress, viruses such as covid and others , and many other things , and there is proper research evidence to show this, but there is none to show any increase in thyroid problems associated with mirena coil use as far as i know .
My thyroid went wrong (autoimmune hypo, probably triggered by pregnancy) several years before i had a mirena fitted, mirena made no difference to my thyroid , I had previously used several other kinds of contraception including the DepoProvera injection,
But whatever triggered it to happen to you now , the fact is , it has done, and even if you could know for certain what triggered it , it makes no difference . You are where you are , and you need to deal with 'now' , not 'what if's' that you can do nothing about.
When you get the TRab ( antibody)results , they will show if your hyperthyroidism is being caused by Graves disease ( autoimmune hyper) . There are a few other reasons that are not autoimmune . ie. a 'hot' nodule on thyroid producing too much.
if it is graves disease that is causing yours (which we don't know yet), what is happening is that some specific antibodies are 'asking' your thyroid to make more T4/T3 than you need, making your whole body go too fast. In graves these antibodies can go away after a while , allowing the thyroid to go back to normal production of T4/T3 ( remission) . Some people will stay in remission forever , some only for a few months / or several years , then relapse again.
So it is worth trying for remission, hopefully you can end up there , and hopefully it stays that way . If it doesn't , or you keep relapsing , then the other solution is to remove / or destroy the thyroid gland with radiation, which (usually) makes you hypo, and then ( usually) need to take replacement thyroid hormone (usually Levothyroxine) daily for life.
Carbimazole is given to temporarily stop your thyroid being able to make so much T4/T3 while you wait to see if you go into remission. The dose of carbimazole needs to be correctly adjusted so you have enough T4/T3, but not too much . The higher the dose of carbimazole, the less T4/T3 the thyroid is allowed to make.
i was about to find you the paper that shows that the longer you stay on carbimazole the better the chance of remission , but i see pennyannie has already done it in her reply above.
If you come off carbimazole before the antibodies that cause the thyroid to produce too much T4/T3 have gone away , you will just become hyper again straight away .
Yes it's a serious drug , yes it can have serious side effects , it is not prescribed lightly , and no one wants to take it for longer than they need to , so your concern about taking it is completely understandable , but hyperthyroidism is very dangerous and even potentially fatal if left untreated, so you do have to do something.
There are a few herbal things that can help slightly reduce high thyroid hormone levels , but from examples i've read on here over a few years , they wouldn't usually work well enough by themselves to deal with properly hyperthyroid levels . So be careful what you believe .
Whatever caused it , you now have a problem , and you need to treat it.
i have found this forum a reliable place for getting accurate information and for reading about other peoples experiences , and also this canadian website which i have found to be trustworthy and factually correct when i want to try and understand anything technical about thyroid disease: thyroidpatients.ca/blog-pos... there is a lot of terminology that you won't understand at first reading , but also a lot of well presented simple explanations / graphs etc, so it's def worth having a poke around in there to check out whether something you have read somewhere is fact or fiction .
You've had some great answers so I'll just add a response to this bit...
"I want to stop taking carbimazole, I don't want to take it for 12-18 months, I read taking it long term is not good"
They have found that there is a greater chance of the thyroid calming down and resetting after 18 months of treatment and then hopefully you won't need ongoing treatment so don't be put off by this, as long as your levels are regularly checked and kept within range you should feel a whole lot better, taking this time to also change your diet is a great idea 😀
It would be really helpful if you were able to find the other antibody results
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How do my results look?
still tired 
Hyperthyroidism: Is my starting treatment correct? 
can anybody offer any words of support or positivity?
got my blood results for the last 5 years
