The Results Are In Judges! πŸ’ƒπŸ»πŸ€ͺ: Finally got my... - Thyroid UK

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The Results Are In Judges! πŸ’ƒπŸ»πŸ€ͺ

Aslangal profile image
Aslangal
β€’22 Replies

Finally got my private Thyroid Blood Test result back. I can only add one photo here??

Thyroid levels were reasonable but my oh my ... look at my antibodies!!

Accompanying Doctor’s letter said there is an indication that an autoimmune disease is the basis for my thyroid dysfunction. What could that be?

Readings:

CRP HS. 2.69mg/L (range <5)

Ferritin. 167ug/L (range 13-150)

Folate. 2.27ug/L (range >3.89)

B12 active. 45.300 pmol/L (range >37.5)

Vit D. 24.7nmol/L. (Range 50-175)

Thyroid

TSH. 0.862 mIU/L (range 0.27 -4.2)

Free T3. 4.62 pmol/L (range 3.1 - 6.8)

Free Thyroxine 23.200 pmol/L (range 12 - 22)

Thyroglobulin antibodies: 1090.000 kIU/L (range <115)

Thyroid Peroxidase Antibodies: 57.4 kIU/L (range <34)

Any comments welcome?

Thanks in advance.

πŸ€”

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Aslangal profile image
Aslangal
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22 Replies
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Aslangal profile image
Aslangal

@pennieannie I got that book you recommended thanks πŸ˜€

Treepie profile image
Treepie

Well the antibodies show you have Hashimotos or auto immune thyroiditis.

Your folate and vit D are too low ,not sure about active B12 but looks low even if in range. I presume you are taking levo .Hashimotos has the same treatment but many on this site think gluten free helps.

Aslangal profile image
Aslangalβ€’ in reply toTreepie

Thanks πŸ˜€

SeasideSusie profile image
SeasideSusieRemembering

Yes, you can only post one photo, and only in the first post in a thread.

Your raised antibodies confirm Hashi's. No treatment for it, it's the resulting hypothyroidism that is treated. Some members have found that a gluten free diet and supplementing with selenium l-selenomethionine 200mcg daily helps.

Ferritin is over range, are you supplementing? If not it can be raised due to inflammation or infection, Hashi's can cause inflammation.

Active B12 below 70 suggests testing for B12 deficiency.

Do you have any signs? Check here:

b12deficiency.info/signs-an...

If you do have any, list them and ask your GP to test for B12 deficiency and pernicious anaemia and use the following to support your request

viapath.co.uk/our-tests/act...

"Reference range: >70*; * between 25-70 referred for MMA"

Folate is below range so you have Folate deficiency. See your GP you should be prescribed folic acid. Do not start the folic acid before further testing of B12 has been carried out as it masks signs of B12 deficiency and skews results. B12 injections or supplements should be started before folic acid.

Vit D is below 25 therefore Vit D deficiency. See your GP who should prescribe loading doses totalling 300,000iu over a few weeks.

See NICE Clinical Knowledge Summary about Vit D Deficiency

cks.nice.org.uk/vitamin-d-d...

Refer to this if GP doesn't offer the loading doses.

When loading doses have been completed it's important to retest so that you know what dose to take next. If GP wont retest then do it privately with an NHS lab who offers a home fingerprick test for Β£29:

vitamindtest.org.uk/index.h...

Come back with new result after that test for further help and information.

TSH is good.

FT4 is over range.

FT3 is low in range.

Conversion of T4 to T3 could be better. Your dire nutrient levels are probably causing this. Optimise your nutrient levels and see what your thyroid results are like then.

Aslangal profile image
Aslangalβ€’ in reply toSeasideSusie

Thank you Susie I will do all that πŸ˜€

Aslangal profile image
Aslangal

The viapath link won’t let it print by the way

SeasideSusie profile image
SeasideSusieRememberingβ€’ in reply toAslangal

It says there are technical difficulties and they're working on it so all you can do is keep checking back.

Aslangal profile image
Aslangal

If I had radioactive iodine treatment - can I still develop Hashimoto’s??

SeasideSusie profile image
SeasideSusieRememberingβ€’ in reply toAslangal

I'm no expert but your antibodies are suggesting Hashi's. Maybe something you can look into. You could start here:

ncbi.nlm.nih.gov/m/pubmed/2...

Aslangal profile image
Aslangalβ€’ in reply toSeasideSusie

Interesting! Printing that off thanks. πŸ˜€

Aslangal profile image
Aslangal

My cortisol test results indicated an adrenal problem so we shall see what GP says

pennyannie profile image
pennyannie

Hello again Lynn

As I understand things, the RAI is a slow burn, and the amount given not necessarily exacting, in that you may still have some thyroid gland function left, which would now appear to be showing these very high levels of antibodies.

Your ratio of T3 to T4 is coming in at just over 5 - ( divide the T3 into the T4 result ) -

Most people feel well when this ratio is around 3.5 - 4.00 -

Your T3 is 40 % through its range whilst your T4 is over range at 110 % - ideally both these results should be balanced and in the upper quadrants of their relevant ranges.

This could be done by reducing some Levothyroxine to bring the T4 back down into range but this action will also reduce your T3 even further.

The solution then is to add a small amount of T3 independently to bring it up the range and into the upper quadrant, and to a level that you, the patient, feel comfortable and well with.

This action will reduce your TSH but I wouldn't be concerned as why would you want to continue to stimulate a gland full of RAI and antibodies ? The gland has all but been burnt out and rendered disabled, defunct and dead, leaving you hypothyroid.

Your vitamins and minerals need working on as already detailed and they can make a big difference on your ability to convert T4 into T3.

However having had RAI treatment it is well documented that the patient may " do better " on a T3 and T4 combination.

You may be able, through your doctor, to get a referral to an endocrinologist and succeed in getting a trial of T3.

I was refused a NHS trial of T3 so purchased some myself.

It worked for me, but I wasn't able to maintain the supply chain.

I also trialled Natural Desiccated Thyroid and am happy to write that this total thyroid hormone replacement works well for me. It is pig's thyroid dried and ground down into tablets, referred to as grains, and it contains all the same known contents of that of a human thyroid gland, namely T1, T2, T3, T4 and calcitonin.

Well done in getting the book - it does make sense - I know if with brain fog it's a struggle, but it's worth it.

Donna5658 profile image
Donna5658β€’ in reply topennyannie

Just wondering which brand NDT you are taking?

Thanks!

Myro profile image
Myroβ€’ in reply topennyannie

I agree with You. It is so complicated. Tests show how it is. Except Hashimoto which I ignore. I think that in worse case antybodies will shrink and demolished thyroid gland. Like RAI do or what is done with surgery TT.

Roughly dose is prescribed by doctors on base of tests and symptoms. But fine tunning should be done by pacient on the base of symptoms. And needed dose could and do change trought time, expecially seasons.

Change should be done by small doses every few days. 1/10 of change at time if troubles 1/20 and wait to unpleasant symptoms go away and after that do change. Crash tablet by two spoons and make needed doses by dividing in same amounts by eye. Then symptoms went out. Do tests, expecially FT3 is important. Where on normal range is it good for you? You would have reference and starting point. Write down symptoms and doses daylly.

To read of symptoms of hipotiroditis hipertiroidis and lack of iodine and conseqvences of each. It is good to know them. Needed to manage dose.

Adding NDT is good option becouse of other things in it and availablity. Doctors steel think if TSH is well, everything is well. Goodbye, next please! Obviously you don't convert T4 in T3 propperly. It is not so rare but doctors are behind moon. In 60 % by some research is good to add T3 ...

Other good things has been mentioned, I would stress low carb, no gluten, nothing sweet even sweeteners. Ever with some fat and other food. Avoid goitrogen food and chemicals. Preservatives, additives ... Non rafinered oils are for energy.

Roadrunnergreg profile image
Roadrunnergreg

High antibodies, you need to find out which critter is out of control ie the main ones are candida or EBV that's attacking the thyroid, get that under control and in most cases the thyroid can resolve itself.

You need dark coloured fruits n veg ie red blue purples and oils like coconut, olive, black seed oil, these are critter killers. These foods have natural critter killers in them to protect themselves from critter invasion. Incorporate these into a low glycemic diet either vegetarian or paleo. Also optimise stomach acid and digestive enzymes

Hope that helps...

reneeh63 profile image
reneeh63β€’ in reply toRoadrunnergreg

Please tell me what a "critter" is!

Roadrunnergreg profile image
Roadrunnergregβ€’ in reply toreneeh63

A critter is a word that covers all bugs like Bacteria, viruses, etc. saying a critter is you've got one of these that's overpopulated, say if you already know you have one if these, your half way there knowing, if not you need to find out which you have.

Using the vegetarian or paleo diet doesn't feed them, the oils and dark coloured blues and purples have the most critter killers in, you can even massage them over the thyroid area on the neck... just need to cut out simple carbs like white bread biscuits n cakes etc...

Optimising stomach acid kills the ones ingested on contact...

Hope that helps

Aslangal profile image
Aslangalβ€’ in reply toRoadrunnergreg

Thanks I tend to follow a low carb Keto diet

SlowDragon profile image
SlowDragonAdministrator

approx 5% with Hashimoto's (or in your case post Graves) are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under Β£20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet




(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)




Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

Aslangal profile image
Aslangalβ€’ in reply toSlowDragon

Thanks for all that!

SlowDragon profile image
SlowDragonAdministrator

For Levothyroxine to work well all four vitamins need to be optimal

Following SeasideSusie vitamin advice and trying gluten free diet (after coeliac blood test)

Getting bloods retested 6-8 weeks minimum after adding vitamin supplements

Lora7again profile image
Lora7again

I take a vitamin D spray for my low vitamin D it is absorbed easily.

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