I have 3 nodules, one on the left and 2 on the right side. The right side has a nodule that is suspicious u3. And after 2 inconclusive FNAs, the surgeon has decided to remove the right side of my thyroid.
Before I even knew I had nodules I've had symptoms of being hypo. I suffer with extreme tiredness, hair loss, can't loose weight, depressed etc.. I asloo have type 1 diabetes, PCOS, and waiting for biopsy results for celiac disease.
Apparently my TSH levels were normal but can that happen if your hypo? Do u ask for more blood tests I've seen like the T3 and T4? Or do I wait and see what happens after my surgery because half may compensate for side getting removed? But I reckon I'll still feel like I do now.
Any advice would be greatly appreciated
Becky xoxo
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Beckstar88
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Ideally you would get FULL Thyroid and vitamin testing before operation and at least 6-8 weeks after ....perhaps a bit longer
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water . This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.
Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .
PCOS is strongly linked to having autoimmune thyroid disease also called Hashimoto's
If you have Hashimoto's then strictly gluten free diet frequently helps
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
good you are getting coeliac blood test from GP
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
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