Hi, I'm new and I hope I'm doing this right. I'd like some advice/info and can't easily find it elsewhere due to concentration problems and fatigue.
As quick as possible overview. I am 41 and have been treated with levothyroxine for about 3 years now with absolutely no improvement in symptoms. I have a long term diagnosis of M.E.( Chronic fatigue syndrome) which I've had for 15+ years so it was hard even to get doctor to test thyroid because they blame everything on M.E. or my depression which I've had for 25 years.
I saw a endocrinologist 6 months ago because I had high cortisol and GP suspected Cushings. Endo thinks cortisol levels were from me being on the pill and wanted me to come off for a retest which has been done and an MRI to check for tumour on gland. She did note that my thyroid levels weren't optimal so recommeneded an increase from 100 to 125mcg levo. I've been yo yo-ing between 100 and 125 since I started treatment as they reduce it as soon as t4 reaches upper end of normal then it goes right down and so on. GP sent me for blood test to monitora couple of week ago and I've been told to reduce to 100 again. I've recently had some private thyroid tests including free T3. My TSH is low: 0.024 mIU/L (Range: 0.27 - 4.2) and T4 is high: 29.800 pmol/L (Range: 12 - 22) so it makes sense they're reducing dose but my T3 is low 2.84 pmol/L (Range: 3.1 - 6.8) .
OK, now the questions. Is this indicating that I am not converting T4 to T3? If so how can I get something done about it? I know the situation with prescribing of T3. What's the best way to bring this up with endo? My M.E. tends to have them seeing me as a hypochondriac who wants a magic pill but I just want to be as well as possible!
Hope this is ok I'm trying to gather as much info before appointment on Monday but I'm rather unwell at the moment.
thanks in advance