Fizzing Joints

[suecom]

Good Morning.

It's a change of weather here in the UK. I have Hashimotos and seem to be getting a flare up in my joints and lots of horrible " fizzing" in my arms and legs, plus the joints in my hands and wrists ( and now feet ) are aching much more than in the summer. Rather like someone has stuck the kettle on for a brew... It takes me a good hour in the morning from waking to being up and about and able to get dressed. I work midday to late evenings.

I haven't bothered with the GP on this subject as I've had other more pressing things like surgery in the past four years, but to be honest I don't want to take a load of commercial meds.. I'm post menopausal.

Anyone else get this ?

I'm taking levothyroxine 150 daily, Candestartan for BP, vitamin D prescription ( I have increased/ supplemented my dose per a helpful reply on here ).. I've refused statins as my cholesterol was sky high before hypo diagnosis but is gradually reducing through diet/ levo. Blood sugar average is below diabetic range. I'm not overweight ( but at the upper edge of 'normal' ).

Jointace Collagen with glucosamine ( just started)

Dead Sea Magnesium Oil spray for knees at night.

Naturelo Vitamin B Complex

Occasional paracetamol, and very occasional ibuprofen ( which I'm not supposed to take ). Happily I came off very strong painkillers for back pain/ surgery as soon as I could last year. I don't want to go down that road again ☺

Any suggestions gratefully received, or is this just the way it is with hypothyroidism?

The problem is, to know whether it is just all part of the landscape, or a separate issue. I feel like I'm moaning and I don't want to, but positive thinking about my joints isn't helping much at the moment ....

Take care everyone, and have a good day. Sue x

[SlowDragon Administrator]

8 months ago you were extremely hypothyroid with high TSH

healthunlocked.com/thyroidu...

Presumably you had 25mcg dose increase in Levothyroxine?

Bloods should have been retested 6-8 weeks after change in dose

Was this done?

Add results and ranges if you have them

Likely to need new blood test now

Presumably you were negative for coeliac?

Are you now on strictly gluten free diet?

Operations can significantly deplete B12 levels

b12deficiency.info/signs-an...

[suecom in reply to SlowDragon]

Hello SlowDragon, no retests, I'm going to purchase on Thyroid Thursday. GP commented on the fact I had paid before and said that they tested, i didnt need to pay, however they don't, and have never tested anything apart from tsh. I had no idea I had an autoimmune disease. Will follow up at the docs. Mainly gluten free ( 90%) but I know it has to be 100%. I'm going to have to ask yet again for annual blood tests and thyroid.

Thanks

Sue

[SlowDragon Administrator in reply to suecom]

GP absolutely definitely have tested 6-8 weeks after dose increase

But I agree you would most likely only get TSH - virtually useless

You could see GP and ask for Full testing but even if GP requests this NHS often refuses

[SlowDragon Administrator in reply to suecom]

Come back with new post once you get results

[Mouldyoledoll]

Yes! I’ve asked this question before, I thought I was going a bit mad! My arms and legs “fizz” also my face, but I’m not sure if it’s some kind of inflammation or fluid retention, it’s a horrible feeling, and it usually happens when I’m having some kind of flare when I also feel awful with it (tired, brain fogged, generally unwell) I’ve no idea what this is linked to, as I have a few things being investigated health wise atm, all I do know, is it’s horrible, and can wake me from my sleep sometimes. I get some “ relief “ if my husband gently squeezes around my joints/ muscles, sounds totally weird but it helps whist he’s doing that

[suecom in reply to Mouldyoledoll]

Yes, hello there, it's worst in the early hours and wakes me up. Disgusting feeling and yes, goes with the tiredness and fogginess. I mentioned it to a GP once and he just looked at me, and laughed in a kind of " is this woman in front of me completely mad ?" kind of way and said " oh well I've never heard of that before" and changed the subject. I think it may be food related e.g. sulphites, or some kind of processing agent. However, it could be anything ,sigh, who knows? If I find out I will be back on here xx

[Mouldyoledoll in reply to suecom]

Ah yes, one of those looks, I’ve had many from various medical professionals, then the next question from them is “How is your mood?”

[nightingale-56]

Have you had Adrenals checked?

[suecom]

Hi no I haven't I've always thought mine were overactive when I was young...as in overreacting to startles etc. I think I'm going to have to broach the gps again. My mood is mostly okay. Occasionally vety low for no apparent reason but passes quickly. Thanks for all your replies , very helpful. I will order some tests x