TT from papillary cancer and 2nd PTH op - Thyroid UK

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TT from papillary cancer and 2nd PTH op

Portiapuss profile image
4 Replies

Hi, I’ve just discovered this group from a very helpful lady. These are my recent results (Jan 19) post TT after papillary cancer and second parathyroidectomy in London in Aug 18. I’m not feeling great and have terrible gastric issues. Can anyone advise if the results look within range? I’m seeing medical centre doctor again in a few weeks. They are good at blood testing if asked to do so. Thanks.

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Portiapuss
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4 Replies

What dose are you taking and what are you taking at present. Your TSH is too high and your others FT3 and T4 also too low this may indicate that you require a higher dose.

What exactly did they do to your parathyroids and how many have you got left.

You could have your Vitamins and Minerals tested also vitamin D you will then receive more answers. Your calcium seems to low but I had a job to read the ranges relating to this.

Portiapuss profile image
Portiapuss

I’m taking 100mg of thyroxin and alternate days a high dose of alfacalcitol. I’ve had 2 parathyroids removed and a TT. I’ll ask for blood test next week. Thanks.

pennyannie profile image
pennyannie in reply to Portiapuss

Hello Portiapuss

I think, when you go for your blood tests next week, ask for TSH, T3 and T4 tests along with ferritin, folate, B12 and vitamin D. If vitamins and minerals are not optimal your ability to covert the T4, Levothyroxine into T3, which is what your body runs on, can be compromised.

Just as a point of reference a fully functioning working thyroid would be supporting you daily with approximately 100 T4 + 10 T3.

I simply think that if here has been a medical intervention and the thyroid surgically removed or ablated with RAI that both these vital hormones should be on the patients prescription for and when required.

Some people can get by on T4, Levothyroxine alone, some people simply stop converting the T4 into T3 at some point in time, and some people simply need both these essential hormones dosed and monitored independently to bring them into balance and to a level of wellness acceptable to the patient. Generally this will result in both T3 and T4 being in the upper quadrants of their relevant range.

The thyroid is a major gland responsible for full body synchronisation including your mental, physical, psychological, emotional and spiritual wellbeing. The thyroid is the conductor of your main body parts, when functioning optimally it regulates your metabolism and your central heating system.

You might like to take a look at a book :-

Your Thyroid and How To Keep It Healthy is written by a doctor who has hypothyroidism.

It's an easy, insightful, sometimes funny book on all things thyroid, and as we now don't have this major gland, we need to know this stuff so we can compensate accordingly.

Portiapuss profile image
Portiapuss in reply to pennyannie

Thanks for the info; that’s very useful. I will def get the book and blood tests.

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