Update to is it in my head: I was asked to write... - Thyroid UK

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Update to is it in my head

mikkymouse profile image
29 Replies

I was asked to write the range numbers.

TSH 3.61(0.32-5.04)

FreeT3 13.8. (10.6-19.7

FREE T4. (2.5-5.80

B12 410 (150-600)

Ferritin 268 (15-225)

I don’t have any others but I took 4000mg of Vit D all winter and B12 every day

I also took Magnesium, fish oil, B complex and probiotics until I ran out Same with zinc

My GP doesn’t ever order tests unless I ask and then only a few. I have never been monitored either zI have to ask for a TSH Not complaining though It may not sound like it but he a good caring dr When he heard I was in hospital he called the house to see how I was doing.

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mikkymouse
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radd profile image
radd

mikkymouse,

I have taken your FT4 result of 3.5 from your previous post as you have mistakenly omitted it.

FT4 is 30.30% through range, FT3 is 35.16% through range. These are both miserably low.

Your TSH is too high for someone medicating Synthroid because your pituitary is working hard desperately trying to encourage more hormone from the thyroid gland. Many medicating T4 feel best with a TSH of around 1.0

Your doctor is failing in his duty of care by not testing your thyroid hormones annually and keeping you symptomatic by under dosing Synthroid. It may be that you don't need NDT but just a Synthroid dose raise.

You are taking supportive sups. VitB12 looks good on those ranges but ask your doctor to test folate.

VitD always confuses me. Hopefully others will comment. 🙂

mikkymouse profile image
mikkymouse in reply to radd

Thanks so much Radd. Others have told me my TSH is too high. I went to my GP two weeks ago and literally begged him to raise me from 75mg to 88. He relented but then I felt bad for arguing with him and shredded the requisition. This was all before I joined this site. Damn! Oh well. I will try the NDT just to make sure it’s not the Synthroid making me feel sick. I hope I’m one of the lucky ones.

radd profile image
radd in reply to mikkymouse

mikkymouse,

Your doctor's lackadaisical approach to treating thyroid disease doesn't inspire confidence in his presumed knowledge of NDT.

As said in a previous post, the T3 (in NDT) will need to be introduced slowly enough for your body's complete acceptance but quickly enough to keep TSH suppressed in the presence of thyroid antibodies. Members will be happy to advise on dosing.

mikkymouse profile image
mikkymouse in reply to radd

I hope members do help me with siding advise. I will of course listen to my naturopath because she is very knowledgeable regarding thyroid and I have faith in her. It will be interesting to see if she thinks like the members. Tomorrow should tell. That is when I pick up the med.

greygoose profile image
greygoose

FreeT3 13.8. (10.6-19.7

FREE T4. (2.5-5.80

I think there's something wrong, there. I think you've inversed FT4 and FT3. Should be:

Free T3 3.5 (2.5-5.8)

Free T4 13.8 (10.6-19.7)

You would never get an FT3 range going up to 19. :)

You are extremely under medicated.

mikkymouse profile image
mikkymouse in reply to greygoose

Hi GG

NO, I checked and that is what the numbers should be according to the lab results.

Strange. I agree with everyone here. I do think the TSH is too high. When I was in the hospital they wanted to up my med from 75 to 88 but my dr didn’t agree. Why are they so pig headed. Like the old joke. What’s the difference between a dr and God? God doesn’t think he’s a dr. I love that one

bantam12 profile image
bantam12 in reply to mikkymouse

Agree with GG those T3 and 4 ranges are wrong.

greygoose profile image
greygoose in reply to bantam12

Not just the ranges, also the results.

Sorry, mikkymouse, but those ranges/results are just not possible. There is a mistake somewhere. :)

bantam12 profile image
bantam12 in reply to greygoose

Yep you're right 🤔

mikkymouse profile image
mikkymouse in reply to bantam12

The only thing I can think of that Canada uses a different way of measuring. I double checked and that is what the report says.

greygoose profile image
greygoose in reply to mikkymouse

Not that different, it's just not possible. We see labs from all over the world on here, and plenty from Canada, but they don't look like this. The thyroid produces more T4 than T3, so obviously the ranges is going to be wider.

Someone in the lab must have made a mistake. How did you get those results? A print-out from your doctor? Or directly from the lab?

mikkymouse profile image
mikkymouse in reply to greygoose

I will point that out next month when I go again. Actually I just had an idea. Going to check way back and see what they said the range was. I got them online from the lab.

mikkymouse profile image
mikkymouse in reply to greygoose

I just checked old reports and they were measured entirely different than. Like roughly five to ten for T3 instead of roughly 10 to 19. Same with T4 Not sure what’s going on. I would assume my naturopath will puke up on it and question it.

greygoose profile image
greygoose in reply to mikkymouse

The ranges are dictated by the calibration of the machine they use to do the analysis. So, if they change machines, they change ranges. That means nothing. The point is, the range for an FT3 - and make sure it is Free T3, because the ranges for TT3 are totally different - the range for an FT3 usually is something like 3.something to 6.something. And, for T4, the range is much broader, going up to 19 to 22, or something like that.

Plus the results are wrong. If you had an FT3 of 13.8, you would either be very hyper or over-medicated. Associate that with an FT4 of 3.5 and it would suggest that you, are on T3 only. It's far more logical that your FT3 is 3.5 and your FT4 is 13.8. That's the sort of results we see on here all the time.

On the other hand, a TSH is always a TSH. No matter what the range, we know that a normal TSH in a euthyroid person is under 2, usually around 1. My TSH is totally suppressed because I've been on a high dose of T3 only for a long time. It doesn't matter. I have no thyroid so I don't need TSH to stimulate it, and as I take T3, I don't need to convert. TSH itself doesn't make you feel anything. It's T3 that causes symptoms if it's too high or too low. And, an FT3 of 3.5 is low, so that is more than likely why your TSH is high and why you don't feel well.

Confusion is indeed a symptom of hypo/under-medication. That would tie in with all the rest. The brain needs a lot of T3 and if that is low, you will get all sorts of metal symptoms.

To see other posts depends on how you access this forum. Are you on a PC or a telephone?

mikkymouse profile image
mikkymouse in reply to greygoose

Phone. An IPhone. I’m trying to make sense of everything you wrote here. I will just have to leave it in the hands of my naturopath and hope she is as smart as I think she is. Now I’m curious what she will have to say. It sounds as if there is a big chance that there is a problem and I will get better. I am pretty well house bound and spend days in bed because I’m so tired and dizzy and feel like hell. Five years of it is too long. Gotta go now and get ready for my stress test. I see the cardiologist and I now think my heart problems are at least partly caused by the thyroid. Thanks for taking the time to answer.

greygoose profile image
greygoose in reply to mikkymouse

I'm sure your heart problems are caused by your hypothyroidism. :)

mikkymouse profile image
mikkymouse in reply to greygoose

I just got back from my stress test and I have tachycardia. My HR. goes up to at least 136 beats when I stand up but the 24 hour holter monitor showed while walking it was more in the 168 range. No wonder I get pooped but still think thyroid is contributing to my heart problem.

I was supposed to get my prescription today but guess what. Never did! I’m upset. She promised me.

greygoose profile image
greygoose in reply to mikkymouse

Of course it's your thyroid. Your FT3 is low and the heart needs a lot of T3. Obviously it's going to have an effect. Why didn't you get your prescription?

mikkymouse profile image
mikkymouse in reply to greygoose

Don’t you sleep lol. It seems you are in here at all hours. Isn’t it 6:15 or so there. I guess like most of us females you can’t sleep late. I always wake up at 5:00 but am too tired to get up. Also with my problems right now I can hardly function so nothing to get up for.

I ended up getting it but only 28 pills and 60mg to be split in two. I’m to take 30 mg for 8 weeks. Sounds a bit to low to replace 75mg of Synthroid.

greygoose profile image
greygoose in reply to mikkymouse

Oh, I sleep a lot! But, today, we're off for a day out in Belgium, and I have to be round at my daughter's for 9.30, so had to get up early. It takes me so long to get out of the house, these days!

30 mg NDT is only 19 mcg T4 and 4.5 mcg T3. Even if we say that 1 mcg T3 equals 3 mcg T4, that still doesn't add up to 75 mcg! And 8 weeks is too long to wait for an increase. Normally, with NDT, we increase by 1/4 grain every two weeks. So, I think your doctor has just proved she doesn't know squat about treating thyroid. Given that you were grossly under-medicated on 75 mcg Synthroid, I think this is going to make you very ill. I don't want to be a scaremonger, but I think you should have a serious word with your doctor. This is not going to work.

mikkymouse profile image
mikkymouse in reply to greygoose

I feel that it is way too low but there is nothing I can do. You know how hard it is just to get anyone to agree to give it to you. I’ll see what she has to say in the morning. I’m very ill now so it can’t make me any worse. I hope. I’ll know soon enough how my body feels.

Have a fun time in Belgium. I wish we could just go to another country. We only have the States and we need medical insurance to cross the border and what with my cancer and my husband’s pacemaker it’s very expensive. Plus our dollar is terrible. And who wants to go and give Trump our money lol.

greygoose profile image
greygoose in reply to mikkymouse

Yes, but Canada is so big, you don't need to go to another country. :) Although, couldn't you go to Alaska? I'm not very good at geography.

mikkymouse profile image
mikkymouse in reply to greygoose

I was actually meaning for a day trip or maybe a weekend. Been to Alaska thee times but it’s a long ways away. We cruised there. Because West is the Pacific Ocean and south is the States we are limited. Our day trip last week was over 450 miles. Not km. Not a lot of toads like England has. Mainly just a highway that goes across Canada.

greygoose profile image
greygoose in reply to mikkymouse

I'm not in England, I'm in France. :)

As I said, I'm no good at geography. From where Iive, Belgium is about the only place for a day trip. Holland at a pinch. But Germany, Italy, Spain and further, would have to be for a longer visit, because too far away. But, many times we've driven to Brussels, just for lunch. And, a bit of shopping, maybe.

mikkymouse profile image
mikkymouse in reply to bantam12

Just wondering what your TSH is to compare to mine. Same for you GG. Radd said mine are too high. Could be the reason why I feel so darn sick!

mikkymouse profile image
mikkymouse in reply to mikkymouse

One more thing. Because I was so focused on my problem I didn’t stop to register that I don’t see anyone else’s posts. I surely am not the only one doing so. Could you please tell me how to see other ones. Thanks. Remember, this is the first forum or whatever it’s called that I have ever gone on before. A newbie and an old confused one at the best of times. Mind you, I did read that confusion is one side effect from too low of a dose

NWA6 profile image
NWA6 in reply to mikkymouse

Hey Mikkymouse. Welcome to the forum. You’ll get hit with loads of info, just take your time and first things first, message the admins or make another post asking for help with how you can see other posts.

Also have to agree with other replies that you’ve got your FT4 and FT3 results mixed up. Do you currently take Thyriod meds? Do you have a diagnosis? Either way, you would feel better introducing replacement thyroxine or increasing your current dose 🤗

mikkymouse profile image
mikkymouse in reply to NWA6

Thanks for replying Paula6 I am not mixing up the numbers. If you could post a picture on here I would take one of the results. I can only assume that the lab is the one that maybe mixed up the T’s with each other.

NWA6 profile image
NWA6 in reply to mikkymouse

You can for sure take a picture and edit your post to add it. Just make sure we can’t see any personal details, name, address, Dr ect

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