Hello my friends just spoke to my doctor about all the blood tests he did, liver , kidney blood count Diabetes and of course my TSH t4 t3 B12 , Folate
tsh -0.67 ( 04- 5)
t4 - 16.23 ( 9.-19)
t3 - 3.2 ( 2,6-5)
b12 438
he told me everything was normal ,so i asked 'ok so where do we go from here with my symptoms ' he said ' I don't know its hard when you get so many general symptoms its anxiety, but your symptoms out of your head your weak legs and arms brain fog and tiredness ' I ask him to repeat his diagnosis ,he said it again and added also your fibromyalgia . So as I see it I have to join all you lovely people in actually taking my own health into my own hands. I never thought i would be writing this but yes i am. I am already a week into alternating my dose of levo 100 /125 . If i am wrong and i need to take125 every day i will make that decision. I am also going to be following you all to blue horizon blood tests . I want to thank you all for your advice because without you guys i would not be here , you all give me hope and faith in myself
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wendypartridge
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I know you said you feel more comfortable with TSH between 1-2 but you really don't feel anything with TSH and it is FT3 you need to take note of. FT3 3.2 is low in range and that is probably why you have the symptoms of weakness, fatigue, brain fog and fibromyalgia. Raising dose to 125mcg daily will raise FT4 and FT3.
Thankyou Clutter, when i was first diagnosed with GD and my TSH was gone 000 I was in so much unbearable pain ,I started carb and as my TSH started to raise the pain started to go. then when they stopped the carb and my TSH fell again the pain returned and again when my TSH began to raise it would become better not gone just manageable. So when it returned a few weeks ago i knew something will have dropped and sure enough, the tsh had gone from 3.33 to 0.67 after upping levo to 125 a day. It's on this slightly nutty evidence that I choose to alternate 100 to 125 any info you can give me on Tsh would be great i feel like a hamster on a wheel going round and round
Just educate your GP by handing the copies of the links below into the Surgery.
Ask him why your T3 is near the bottom instead of nearer 5. Tick off your clinical symptoms and you can state you've had information from the NHS Choices Healthunlocked Thyroiduk.org.uk about dysfunctions of the thyroid gland:
Your T3 is too low and should be towards the upper part of the range. It is T3 which runs our whole body from head to toe. If we don't have levo converting to sufficient T3 we will remain unwell with symptoms. Very basic and they don't even recognise this.
Why they cannot prescribe NDT which many patients improve upon I don't know. Why give us cheaper hormones when we have to have 'additional prescriptions' for the remaining symptoms. Probably costs more in the long run instead of patients still having disabling symptoms.
I found this very interesting with the high/low part of the ranges of T4 & T3 versus the TSH ..... I'm still learning. Clutter shaws Where did you learn all your vital knowledge that most endocrinologists do not comprehend?
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