Lifelong Hashimoto's, but never offered synthet... - Thyroid UK

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Lifelong Hashimoto's, but never offered synthetic hormone

I'm 59, had Hashimoto's all life, and in last year, after abdominal surgery, my osteoarthritis has really flared up in hands and knees. Finally got doctor to test my vit.D - 23!! So supplemented now.

But still have so many hypothyroid symptoms I begged doctor to do thyroid tests - came back TSH 1.28, (so lab wouldn't do T4 or T3, unless TSH is v.high).

And thyroid peroxidase 191. Doctor just said results were completely normal, so no hypothryoid problem. Would you feel that '191' suggests my thyroid does probably needing supplementing? Many thanks for your time and experience.

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dinahnow

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10 Replies

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greygoose6 years ago

No, an antibody result of 191 does not suggest a need for thyroid hormone replacement. The antibody level has nothing to do with the need for exogenous hormone, it merely tells you that you have Hashi's and probably will need it one day.

It's very wrong to just test the TSH, because that could be fine but your FT4 and FT3 still be too low. And it's those tests that telly if you need thyroid hormone replacement. Many people have them tested privately for that very reason.

SeasideSusieRemembering6 years ago

Dinahnow

Well that's very strange. When you joined the forum your first two posts told us that you were diagnosed with hypothyroidism and prescribed Levo.

healthunlocked.com/thyroidu...

BBBOA• in reply toSeasideSusie6 years ago

And 66 years old.... Maybe been cloned.

On a different note I have thyroid antibodies of 1000+ and not on anything yet.

SlowDragonAdministrator• in reply toBBBOA6 years ago

BBBOA

Presumably this is high TPO antibodies ?

Looking at your posts would suggest you need full Thyroid and vitamin testing

Have you tried strictly gluten free diet?

6 years ago

Can you take your pulse and temperature as these are a very good guide to thyroid health and also can you give us a list of symptoms.

SlowDragonAdministrator6 years ago

This post says you had thyroidectomy a year ago

healthunlocked.com/thyroidu...

SeasideSusieRemembering• in reply toSlowDragon6 years ago

dinahnow

The post that says you had a thyroidectomy also says that you are in the USA yet another post says you used Thriva - a UK company - for private blood tests and the sample was sent to Guildford in Surrey.

You also don't seem to know how old you are.

This current post says you are 59 years old yet in this post you say

I've recently been put on a brand (first time ever, I'm 66)

healthunlocked.com/thyroidu...

If you genuinely want help, maybe you can clear all this confusion up.

• in reply toSeasideSusie6 years ago

Maybe somebody is posting on behalf of other people they know.

6 years ago

You have stated before that you have no thyroid, you require either NDT, or T3 to help you. Why are you not taking any of these?

6 years ago

That's fairly typical, they are a good guide as to not very good practice.