new results after 50mcg for 8 weeks.. - Thyroid UK

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new results after 50mcg for 8 weeks..

Fakrah profile image
16 Replies

Hello all. I am back. These are my most recent reults and they have upped my dose to 75mcg of levo. Can i ask about the anti tpo as what do my results shown if not hashis..many thanks

Tsh- 11.5(0.27-4.2)

T4- 9.2(11-26)

Freet3- 3.8(3.1-6.8)

Anti tpo- 6(below 34).

B12 -619(191-663)

Vit d -34 (above 50)

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Fakrah profile image
Fakrah
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16 Replies
Myalikki profile image
Myalikki

Hi Fakrah,

I'm certainly no expert but was here posting my own bloods for advice so figured to offer a reply.

The levo dose increase seems clearly needed so glad you've got it! I hope you'll have some incremental improvement from it.

Your vitamin D is low (I'm sure you realise this). When mine was at 17, on advice of this forum I showed my private test result to my GP and they gave me a loading dose for 6 weeks which helped hugely.

Your B12 looks okay but is not the active B12 test. Knowing your active B12 might give a clearer picture if you are symptomatic. You also haven't had folate (B9) tested so that might be something to consider too.

As for the TPO result, I can't tell you what it means, only that it's not the only antibody that is relevant and you might still test positive for TgAb. Antibodies also fluctuate all the time, and studies have shown some people (about 20%) have Hashi's (proven by scans) but never seem to test positive for antibodies. Other people have another reason, or many reasons, for their thyroid dysfunction but the cause is irrelevant and the treatment is all the same - replace the hormones adequately (ideally optimally) and the thyroid shutsdown in it's function. I am a year on from my hypo diagnosis and 2 tests of TPO and TgAb have been negative. I've really struggled with this; feeling like I am "making it up" or somehow breaking my thyroid with poor lifestyle/diet/choices etc. I am trying to accept I have a chronic illness that needs treatment regardless, and many say the antibody tests are there to help get the diagnosis and treatment in the first place and after that, don't worry too much. Sorry it's not really an answer for you, but reading these things helped me a lot, so maybe they help you!

So pleased you've got a dose increase at least!

Fakrah profile image
Fakrah in reply toMyalikki

Hi. Many thanks for the reply. I will be going ahead and getting private testing too for folate and anti tg. Yes i do think treatment is required no matter the results. Lets hope i feel better with the dose increase.

The vitamin d has been presribed and i did the loading dose and now i take it twice a week.

Fakrah profile image
Fakrah in reply toFakrah

I was also considering using thyroid s as it has t3 and my t3 measured barely at the staring range. Anyone with any advice?

SlowDragon profile image
SlowDragonAdministrator in reply toFakrah

Far too soon to consider anything apart from increasing levothyroxine and improving vitamin D levels

Essential to test folate, ferritin and TG antibodies

Which brand of levothyroxine was 50mcg

Which brand do you have for 75mcg

Retest thyroid levels in 6-8 weeks

Likely to need further increase (s) over coming months

Dose levothyroxine is increased slowly upwards in 25mcg steps until TSH is around 1, Ft4 towards top of range and Ft3 at least 60% through range…..and symptoms resolved

Fakrah profile image
Fakrah in reply toSlowDragon

What if i dont want to take levo?

I have the orange box for the 50mcg and will be picking up the 75mcg. I really wanted to steer away from synthetic forms of levo.

helvella profile image
helvellaAdministrator in reply toFakrah

Have you really questioned why you want to do this?

There is plenty to question about how natural any desiccated thyroid product is - given the processing and additional ingredients.

We have members on a wide range of regimes - some synthetic only, some desiccated thyroid only, some combining. I'm not arguing against any of them. But I think the most important issue is whether it works for you rather than whether the name includes the word "natural".

Indeed, there have been some who tried desiccated thyroid and ended up preferring just levothyroxine. Sometimes after years.

Fakrah profile image
Fakrah in reply tohelvella

Yes i have questioned it. And it really does come down to how a individual feels on them. I will see how the 75mcg goes and judge by that. The reason NDT is appealing is due to the small amount of t3.

helvella profile image
helvellaAdministrator in reply toFakrah

I very much appreciate that small doses of T3 might make a big difference. And lack of very small dosages is a problem.

RedApple profile image
RedAppleAdministrator in reply toFakrah

' NDT is appealing is due to the small amount of t3.'

It's actually not a small amount of T3 in comparison to the T4 it contains. For a lot of people the ratio of T4 - T3 is paramount to how effective the medication is for them. Some people taking NDT still have to add some levo to get the right ratio that works for them.

An advantage of 'synthetic' levothyroxine, is that you can add in some liothyronine and thus more easily fine tune the doses of each to get your personal optimum. Always remember that what works for one doesn't necessarily work for another.

Lalatoot profile image
Lalatoot in reply toFakrah

You can add small amounts of t3 to levo. I am prescribed 5mcg tablets of t3 which allows me to dose 2.5mcg if I needed that.

Fakrah profile image
Fakrah in reply toLalatoot

Who prescribes that? My gp is a no no for anything other than levo

Lalatoot profile image
Lalatoot in reply toFakrah

T3 has to be prescribed by an endocrinologist to begin with. They prescribe it for a defined period and oversee your care then they return the care to the GP and tell them to continue the prescription.

Jaydee1507 profile image
Jaydee1507Administrator in reply toLalatoot

This member needs to get to an optimal Levo dose in the first instance before thinking if anything else might be needed.

Fakrah profile image
Fakrah in reply toJaydee1507

Yes will be working on 75mcg until 8 weeks and we retest

Jaydee1507 profile image
Jaydee1507Administrator in reply toFakrah

One does need to be realistic and GPs are often short on specifics. It can take many months to feel better and you need to get to a good dose plus have your vitamins at optimal levels too.

Have you had bloods done for ferritin, folate, B12 & D3?

Dalias profile image
Dalias

Hello Fakrah,

I am sorry but I never had all these test done so I could not help as I do not understand.

I take 75mcg a day but do not feel good always because I suffer with menopause symptoms it gets confusing as some symptoms cross over.

I hope someone else can help you.

Kind regards

`V

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