help on Thyroid and other bloods results - Thyroid UK

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help on Thyroid and other bloods results

Pascha1 profile image
20 Replies

On NDT , anyone know if these results are good, Please ignore the TSH it’s been stuck at 0.004 for years , it was even like that on mono T4 Levothyroxine

Cortisol low on two occasions

What does high lymphocytes and high platelets mean ?

Is iron ok as ferritin looks a little low it says normal but what the Drs say and what is normal is two different things.

Vit D is good I think

Thank you for any help or advice in advance 🙂

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Pascha1 profile image
Pascha1
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SlowDragon profile image
SlowDragonAdministrator

Yes ferritin is low

Eating liver or liver pate once a week, plus other iron rich foods like black pudding, prawns, spinach, pumpkin seeds and dark chocolate, plus daily vitamin C can help improve iron absorption

FERRITIN and hypothyroidism

healthunlocked.com/thyroidu...

drhedberg.com/ferritin-hypo...

restartmed.com/hypothyroidi...

Post about iron supplements

healthunlocked.com/thyroidu...

Is vitamin D result 151nmol?

If so this is good. Are you supplementing?

No B12 and folate results?

When were these cortisol tests done?

Have you seen an endocrinologist to discuss results?

Pascha1 profile image
Pascha1 in reply toSlowDragon

Vit D is 181, the GP said it was ok as gets toxic at 300,, I will just not take so many Vit D supplements and with it being summer :)

liver and liver pate it is then :)

THank you

Darceydoo profile image
Darceydoo in reply toPascha1

What strength do you take and how often? Thank you😊

Pascha1 profile image
Pascha1 in reply toDarceydoo

I was taking Dr Bests 5000 gels about twice a week and the NHS adcal D daily, I will cut back a bit though as it looks like a good summer. :)

SlowDragon profile image
SlowDragonAdministrator in reply toPascha1

Essential to test B12 and folate

What supplements do you currently take apart from vitamin D (which you need to reduce dose of)

Pascha1 profile image
Pascha1 in reply toSlowDragon

I am on folate 400 mcgs per day and get two weekly B12 injections form my GP and i self inject every day or other day, which I have been on about 6 -8 weeks now , which also helped a huge amount. :) I wont get them tested on NHS again as they may stop me getting the injections 2 weekly, I think I have been very lucky to get them that often no point testing when on B12 shots as will be over the amount I take,, GP said fine he knows I self inject the days he doesnt give me them and said B12 isnt toxic so can take as much as i like ,, Found a great GP at last :) x

SeasideSusie profile image
SeasideSusieRemembering

Pascha1

On NDT , anyone know if these results are good

That's really a question only you can answer, because it's a case of how do you feel?

The FT4 is very low in range and the FT3 is slightly over range. If that's where you need your levels then it may be OK for you. Some people would say FT3 should stay in range. Some people would need a higher FT4 and couldn't function with it that low.

Serum iron is recommended to be 50-70% through it's range, with the higher end for men. Yours is 48% through range.

Your ferritin level is low at 39 (10-204). It's said that for thyroid hormone to work properly (that's our own as well as replacement hormone) ferritin needs to be at least 70, preferably half way through range and I've seen it said that for females 100-130 is a good level.

You can help raise your level by eating liver regularly, maximum 200g per week due to it's high Vit A content, also liver pate, black pudding, and including lots of iron rich foods in your diet

apjcn.nhri.org.tw/server/in...

A couple of articles that explain raised platelets

verywellhealth.com/things-t...

labtestsonline.org.uk/tests... -click on "What does the test result mean"

Lymphocytes can rise after an infection as they help to fight disease.

Vit D is good I think

The Vit D Council recommends a level of 125nmol/L and the Vit D Society recommends a level of 100-150nmol/L, and the NHS lab which does tests for the public say that above 220nmol/L is considered high and increases the risk of toxicity.

Cortisol low on two occasions

Maybe discuss with your GP.

Pascha1 profile image
Pascha1 in reply toSeasideSusie

Thank you for advice will read articles a bit later, , Liver for dinner again , good job I like it ,

That is 1st blood test on full NDT, I do feel better than when i had Levothyroxine in my body

, The Lab range has gone lower recently which I take is from the locals around here Im sure they all have low T3 as they are manana style and all on go slow mode so wouldnt expect the average T3 is very high roundmy way :) , I see londons ref ranges go uo to 6.8,, so think this being slightly over probably isnt a problem, my T3 6 weeks ago was 4.1 as was on half grain less but was very sleepy.. I still get bad days but I think by looks of it could be the ferritin and low cortisol.. I will work on my iron levels and I see my Endo in next few days so will know more about Cortisol then as dont really know much about it tbh..

although GP did say something and said I can have a trial of hydrocortisone if i wanted but I really dont want as know will be on them for life and could do without another poison going in body I have only just got rid of Levo T4 out system which probably was the cause of cortisol becoming low as never felt right on that...

Thank you for all advice x

pinkjess17 profile image
pinkjess17

That cortisol looks like addisons level, have you had a synacthen test? Low cortisol will cause your thyroid medication to pool in the blood stream.

Pascha1 profile image
Pascha1 in reply topinkjess17

I am having ACTH as sent my Endo the result of Cortisol having that done this week,,,,what ever that is !

The GP offered me a trial of hydrocortisol if I wanted it, but tbh I dont want steroids i will get fat on them..

but thank you for answer as would explain why I havent been getting 100% on NDT if thats whats happening, I get some very bad days where i can not get up and lack of any sort of motivation, ,, hopefully not Addisons

, Is there something more natural to take other than steroids for low cortisol >? or if i have addisons will I have to take steroids ?

Thank you

pinkjess17 profile image
pinkjess17 in reply toPascha1

Ok good I think there is something definitely wrong with your cortisol levels. If you do have addisons it is hydrocortisone I’m afraid. Have you had any other cortisol blood tests before or just these? There are adrenal glandulars but they are much weaker than HC, although they do contain cortisol on varying amounts. If you are taking NDT, the t3 will rapidly eat up the small amounts of cortisol you make so you need to be careful with the dose. If you have a thermometer you can track the adrenals with your core temperature 3 times a day. It should remain stable. Here is some very useful information on the adrenals-

drrind.com/therapies/metabo....

Pascha1 profile image
Pascha1 in reply topinkjess17

Thank you very much x

Pascha1 profile image
Pascha1 in reply topinkjess17

No. Blood tests before, Just befoe I had saliver test, not even sure why i did it but the morining one was way off scale I showed GP and he tested the cortisol serum and he called me up when result came in, he seemed quite shocked it was so low, he said that it may be all my problems, he wanted me to do it when having a bad day, but to be honest on a bad day I couldnt make it in to surgery so these were both done on good days, and whilst I was waiting to try get in on bad day I emailed the Endo im seeing on thyroid the result of cortisol and I got a call back saying to make my next appointment an early one , as he would do ACTH testing , so thats what Im doing soon,, I didnt think he would take much notice of it tbh , but at least havent had to wait to long to get it sorted, hes not a adrenal specialist , but he has been good with my thyroid and I havent had to wait long at all for test, as I go see Endo then straight down for ACTH test.... I was left untreated Hyper years ago for years with a pulse of 180bpm till went into thyrod toxic storm then had sub total and now seen medical notes and i was left un treated hypoi for years and then under treated then discovered i have the dio1 dio2 genetic faults so T4 never really worked on me, the fact that I felt worse when i started taking it makes me wonder if its my life of not having proper treatment, the GP thinks it could be that,,So probaly is why I have worn out adrenals as wouldnt suprise me one little bit TBH . I should think my adrenals have been on overtime most of my life,, I suppose every thing gives in the end.. so hopefully I wont have addisons,, all scary stuff really, But at least will know soon if i get the results quickly,

If i dont hear anything from NHS it is normaly good news

but if its bad news they are in touch a bit rapidly..

But have discovered dont trust them as they could just be just in range and they forget 5% each way you could still have problems... I dont trust them anymore, I will ask them to either call or send me the results or I can phone the endos secretary up to give me results.. I dont sit waiting these days after reading my medical records.......

pinkjess17 profile image
pinkjess17 in reply toPascha1

Ok hopefully you don’t have addisons but for sure you probably have weak adrenals. Yes I don’t trust them either, when it comes to thyroid/adrenals they are useless.

SlowDragon profile image
SlowDragonAdministrator

Just read your profile......Heterozygous DIO2

If you were doing better on T3 you should still be prescribed T3

Yes many of us can't change brands. Took me about 4 months to get use to Morningside Healthcare brand, after MP T3

Essential to stick on same brand at each prescription. You need helpful pharmacy and note added to prescription, Mercury Pharma Liothyronine only

Pascha1 profile image
Pascha1 in reply toSlowDragon

SlowDragon I still get 20Mcgs T3 on NHS I now get the german brand thybon, its much stronger, I used to take 30mcgs but had to reduce it since taking Thybon,,

I also now take NDT 1 and half grains , which I do feel better on , at least hair on head stopped dropping out at an alarming rate :) eyes stopped puffing up quite a few improvements but still not 100% yet .

The Endo has seen my genetics the Dio1 and Dio2 gene and said I will need extra T3 with NDT so at least he thinks outside the box :)

I think my problem now is the low cortisol :( you get sorted out one way and they give you some other problem,, I think my cortisol may have been low since starting T4 years ago I was definitly worse with it all before i got T4 Levo switched to NDT .. X

SlowDragon profile image
SlowDragonAdministrator in reply toPascha1

Assuming you are not taking any B vitamins......you should get B12 and folate tested

Vitamin D, folate, ferritin and B12 all need to be optimal

Pascha1 profile image
Pascha1 in reply toSlowDragon

I also take methyl B complex by Thorne as well, , Selenium, Zinc , Magnesium, Vit D, . I am up on most of vitamins just not iron as was scared to take that incase it went over, Thank you

SlowDragon profile image
SlowDragonAdministrator in reply toPascha1

Yes both vitamin D and iron are toxic in excess

Too much B6 can cause problems too

Pascha1 profile image
Pascha1

Thank you xx

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