I've now had it up to here with my mum's GP - she's now a walking skeleton with not an ounce of fat left on her and has started struggling to get to work.
This has been going on for months and the GPs etc are totally incompetent. She was initially sent for urgent referral and had a colonoscopy although I shouted at them explaining the pain is within an hour of her eating so not going to be the blinking colon! They said that was all the referral was for and she'd have to go back to GP and start again. They have still refused to do an endoscopy. She's been waiting months again and got sent for just an MRI scan which apparently found nothing and another locum turned round today and categorically stated there's nothing wrong with her and won't refer her again. Not once in all this time has she actually seen a specialist or consultant so hasn't even been able to explain the problems she's having and the GPs are not listening so are not passing the correct information obviously.
She can't eat one tiny amount of fat - literally nothing apart from coconut and I sure it's the pancreas but this diet is not sustainable and cannot go on much longer. It's not even as if she could just wolf down a load a fat and deal with the pain (which is unbearable) as this just seems to stop her digesting anything at all. They've done none of the tests required for chronic pancreatis o reven looked at other issues. She has always been a size 16/18 and now's she's literally a skeleton with size 8 clothes hanging off her - and the GPs (edited) say there's nothing wrong with her - I'm fuming so apologies for the language. She looks soooo ill now and no fat left on her body at all.
Can anyone please tell me the best way to make a complaint for negligence or what I should do next?
None of the tests that might help are ones that we are able to just pay for or do ourselves to bypass them and prove anything so I really need help in kicking up a fuss.
Many thanks for any help, I really need it as so worried for her now and at a dead end.
Previous posts about this are here:
Even though she's gone from size 18 to -8, they haven't even rechecked her thyroid labs. I got them tested a couple of months ago and they were on the high side so told her to reduce her dose but apparently she went back to full dose without telling me as she was feeling so tired so I've told her unlikely to be her thyroid anyway and best to be low than high at the mo with the weight loss so she's back on slightly reduced dose and will recheck at the end of January.
Only other labs at the time unusual a few months back was that B12 was well over range (she's normally low) and folate was deficient. stopped b12 and put her on folate and will recheck.