I've now had it up to here with my mum's GP - she's now a walking skeleton with not an ounce of fat left on her and has started struggling to get to work.
This has been going on for months and the GPs etc are totally incompetent. She was initially sent for urgent referral and had a colonoscopy although I shouted at them explaining the pain is within an hour of her eating so not going to be the blinking colon! They said that was all the referral was for and she'd have to go back to GP and start again. They have still refused to do an endoscopy. She's been waiting months again and got sent for just an MRI scan which apparently found nothing and another locum turned round today and categorically stated there's nothing wrong with her and won't refer her again. Not once in all this time has she actually seen a specialist or consultant so hasn't even been able to explain the problems she's having and the GPs are not listening so are not passing the correct information obviously.
She can't eat one tiny amount of fat - literally nothing apart from coconut and I sure it's the pancreas but this diet is not sustainable and cannot go on much longer. It's not even as if she could just wolf down a load a fat and deal with the pain (which is unbearable) as this just seems to stop her digesting anything at all. They've done none of the tests required for chronic pancreatis o reven looked at other issues. She has always been a size 16/18 and now's she's literally a skeleton with size 8 clothes hanging off her - and the GPs (edited) say there's nothing wrong with her - I'm fuming so apologies for the language. She looks soooo ill now and no fat left on her body at all.
Can anyone please tell me the best way to make a complaint for negligence or what I should do next?
None of the tests that might help are ones that we are able to just pay for or do ourselves to bypass them and prove anything so I really need help in kicking up a fuss.
Many thanks for any help, I really need it as so worried for her now and at a dead end.
Previous posts about this are here:
Even though she's gone from size 18 to -8, they haven't even rechecked her thyroid labs. I got them tested a couple of months ago and they were on the high side so told her to reduce her dose but apparently she went back to full dose without telling me as she was feeling so tired so I've told her unlikely to be her thyroid anyway and best to be low than high at the mo with the weight loss so she's back on slightly reduced dose and will recheck at the end of January.
Only other labs at the time unusual a few months back was that B12 was well over range (she's normally low) and folate was deficient. stopped b12 and put her on folate and will recheck.
Has she had her gallbladder checked?
Hi grey goose - she's had scans and gall bladder problems are more likely to show up on basic scans than pancreas so am just assuming more likely to be pancreas. Gall bladder showed up no stones etc - either way all they've done is colonoscopy, ultrasound of gallbladder and mri and now stated it's IBS!!
OK, just sounded like gallbladder, though.
Yes that what I thought initially but have now ruled that out. I wish it had of been to be honest. I've never been referred to a specialist/consultant without having actually seen them or had an appointment and two have done this now so I'm just shocked at this If they saw her, they'd prob see how ill she is!!!
Yes, but doctors don't look at patients anymore. They think they can tell everything from a computer screen, like some sort of crystal ball!
A few years back I had acute pancreatitis and found to have gallstones, a small one of which had slipped into the pancreatic duct and caused the pancreatitis. Acute pancreatitis is life threatening , and can be diagnosed from blood tests. (I was blue lighted to another hospital) . I later had my gallbladder removed. I think pancreatitis is unlikely as she would be acutely I’ll by now, but it does sound like gallbladder problems....
There's acute pancreatitis and chronic - the second of which is less acute and can be there for quite some time and this is the one I believe to be more likely