Sorry, just a bit of a frustrated rant...
So I tend to avoid the GP as I can't stand going through the rigamarole of explaining I have a thyroid problem, not a CFS problem. My last post was asking if its possible to remove incorrect diagnosises from my medical records (or a least resolved) as it seems to complicate/confuse any appointments I have. (separate story)
It was pointed out on here, that I had actually done quite well from my appointment; as I left with a new blood test booked (for TSH, B12, folate and ferritin – although I had gone in with a private blood test showing all of this plus much more...), a new prescription for an increase in levo and a referral to an endo, and potential B12 injections, and that I should keep my diagnosis of CFS on my records.
However, today I learnt, that my 'new' prescription, was actually the same as what I am already on, on (a repeat – that confused the pharmacy), I am not getting B12 injections – but I might get pills if I am in the deficient category (<150) dependent on their own test results when they come back (even though I have pins and needles and insufficient B12) and I haven't been referred to the endo as my TSH was just within the range)
I have spent 2 days ringing the reception, prescriptions, office and walking to and from the pharmacy to see if there was a mistake. The surgery now think I made it all up, as there were no notes on my medical records about an increase in Levo or PA testing.
So I am actually no better off. I have to wait another week to see if my B12 is deemed low enough for perhaps pill treatment. I am none the wiser about PA. They only tested my TSH, so that will probably amount to zilch. I wish I had never gone because now I am back on their radar!
I think the worst thing is the hope you feel when you think something is going to happen and then the realisation comes crashing down when you realise, once again no-one really hears you and its all the about numbers that they want to monitor!
Rant over, thank you.
(I think its time to go private)