Results Query: I recently got a copy of my... - Thyroid UK

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Results Query

Soupp profile image
6 Replies

I recently got a copy of my results with everything they tested.

There is currently a fully solid cyst in that little butterfuly, so its been worrying my doctor and I.

Is it possible that anyone could make sense of them or give me some advice on next steps to take (waiting on an appointment for biopsy on a 3cm solid cyst). Iodine supplements burn the hell out of my thyroid for some reason as well, could anyone tell me why, by the way?

Results:

Free Thyroxine - 21.93pM

(11.5 - 24.5pM normal).

Free Triiodothyroxine: 4.91pM

(2.0 - 8.0mL normal).

TSH: 0.93 mIU/L

(0.30 - 4.00 normal).

Anti-TPO: 6.34IU/L

(<40 Negative / >1.5 Positive).

TSH Receptor Antibody: 0.46IU/L

(1 - 1.5 grey area/ >1.5 Pathological).

hTg - 9.79ng/mL

(2.0 - 70.0ng/mL normal).

hTg recovery: 94%

(70 - 130% normal).

PTH Intakes Parathyroidhormone: 25.24pg/mL.

(10.0 - 77.0ng/mL normal).

Calcitonin: 2.65pg/mL

(0 - 20.0 Women / 0 - 40pg/mL Men normal).

25(OH) Vitamin D: 19.65ng/mL

(20 -30 adequate levels. 30 - 100 optimal levels).

I am taking supplemental Vitamin D for the low levels stated.

I was just wondering if these readings could explain why I feel so crap? I've fainted already from stress, breathlessness, fatigue and weakness in my body.

The air I grasp is like there's nothing of sustainance in it. Has anyone else experienced this?

My strength is nearly gone in my arms while I'm struggling not to pant like a dog while walking at a normal pace.

I understand some of this is probably my Vitamin D levels, but could it be the entire issue as I've never collapsed or felt this awful from a Vitamin D deficiency in the past. Anaemia is not present either when tested, although my cyst has grown in size. I don't feel the cyst press so much into my windpipe terribly much however but could that also be causing this?

The words for my appreciation towards any help could never be found.

This is hell so far and no one seems to have a clue really as how to help with the symptoms? Or what to do as my next approach?

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Soupp profile image
Soupp
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6 Replies
SlowDragon profile image
SlowDragonAdministrator

You also need B12, folate and ferritin tested

Air hunger can be low iron or ferritin

Your low vitamin D certainly won't be helping

How much are you supplementing?

Do you have any gut issues?

Might you be Coeliac or gluten intolerant?

Never supplement iodine unless confirmed as definitely deficient

How long since stopped iodine?

drknews.com/iodine-and-hash...

thyroidpharmacist.com/artic...

Iodine use to be Treatment for hyperthyroid patients

Soupp profile image
Soupp in reply toSlowDragon

I actually don't have a record of my B12, folate or ferritin. I was only told how those were normal.

A blood test was drawn just yesterday for iron levels and to test my thyroid as well just to have another quick look at things. I can try and grab those when they come back.

Right now I've been given 2 month 800IU Vitamin D supplements by my doctor which I've been taking.

As for iodine, I stopped that around a year ago now but never found any info online about why it made my thyroid burn like it was on fire. So I asked for curiosity's sake more than anything.

I came back negative for Coeliac Disease, but I don't know if I have any sensitivities for gluten.

Digestive issues have been an issue since my thyroid problems began at 16, mainly nausea from the most basic things, even salads with a little dressing.

Honestly there is a 50/50 chance of just about anything making me feel nauseous or like (TMI) I might vomit.

That's all I have to go on though.

Lessening meat intake helped a little and not eating until full. But I have no idea about gluten intolerance etc. as everything can be quite sporadic although I do eat gluten very regularly.

I really don't know which direction to head in with the latter question because I'm rather in the dark about it due to the sporadic issues I get with digestion.

I can't take a lot of anything acidic or highly concentrated in regards to juices as I get acid heartburn from them, but digestion times can fluctuate as well?

Sometimes it can take 4 hours to digest a meal or sometimes I'm waiting from 3pm until 10pm until I feel "empty" in my stomach.

With anything I have written, can you get any info out of this, or some general advice? Thank you for your response!

SlowDragon profile image
SlowDragonAdministrator in reply toSoupp

Getting all four vitamin levels tested and supplement to bring optimal is first steps

Vitamin D too low, so work on that

800iu is only a maintenance dose though. You probably need at least double that

Retesting after 3-4 months

Iron waiting results

B12 and folate need testing or get copies of your previous actual blood test results and ranges

Come back with new post once you have results and ranges

Slow gut function is common hypothyroid symptom

Low stomach acid common issue

thyroidpharmacist.com/artic...

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

Littlebowpeep profile image
Littlebowpeep

Dear soupp, I am so sorry to hear of the difficulty that you are having right now. I feel that more will come to light after your biopsy. If you have a solid cyst on your thyroid, that could be part of the problem. Iam not saying you have cancer, Iam not a Dr. by any means, but, speaking from my own experience, Iam recovering from having papillary thyroid cancer. If they find this to be what you have, dont worry, this kind of cancer has a good outcome. Its very slow growing, and very operable. I wish some one would have talked to me from experience when I was diagnosed. Iam telling you this so you wont worry. Cancer is a big concern for many people, but thyroid (papillary) cancer is very operable. If, and I say IF, this turns out to be the reason for your symptoms, having treatment to get rid of the cancer will make you feel so much better. Cancer runs in my family, and I know that talking about it diffuses its power. My prayer for you would be that the biopsy would clearly show the Dr. whats going on(if anything), and that he would know the next tests to run, and find out whats making you feel this way, so that you can start feeling better as soon as possiable, blessings, ❤, littlebowpeep

Soupp profile image
Soupp in reply toLittlebowpeep

I am so sorry that you had to experience capillary cancer, littlebowpeep. I wish you a speedy recovery and that the process is not more of a burden that it needs to be. I am also happy to hear that you're recovering.

Thank you for writing about this from your own experience, the cyst turned solid in a matter of 4 short months which has been worrisome.

I'm glad thus type of cancer is very operable, my doctor and I are just still trying to remain optimistic I suppose since all was benign in the past.

Treatment this time around has just been very slow as it occurred in the right side of my thyroid, not the left like 11 years back with same symptoms funnily enough.

I'll keep everything you've written in mind, your information has also diffused some fears I had about papillary cancer.

Littlebowpeep profile image
Littlebowpeep in reply toSoupp

Dear soupp, to hear that this has happened before is quite reassuring, many prayers for a good result. Also, thank you for your kind words, and Iam glad I was able to help out a little, ❤, blessings, littlebowpeep

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