This is my 1st post so maybe a little back story will help in February 2015 at age 44 I had a spinal lumbar fusion and 2 weeks later I suffered a Stemi ( fatal heart attack ) while an inpatient , thankfully as that saved my life , I was on beta blockers double dose of aspirin and statins I returned to work 3 mths later , I was very bloated from meds at the time and gained weight after a year I was taken off beta blockers , had some cervical injections for a bulged disc and life went on , in December 2016 I noticed that I had zero energy , no appetite and weight gain was different to that from after my surgeries I went to my gp who did blood tests rang me back same day said I had an under active thyroid and was prescribed 25mg of eltroxin with no information
Not one to lie under things I wanted to be the slim person I was before my surgery I joined a gym lost 33lbs had my bloods checked regularly and all the time my eltroxin was increased at this point to 100mg while I ate a balanced diet or so I believed.
In May this year I felt I was getting those tiredness bouts again and decided I would pay privately to see an endocrinologist as I felt no one was explaining anything to me or treating my symptoms specific to me
Bloods were done my gp phoned and said to take folate , which I didn’t , the past few weeks I have been feeling so fatigued while forcing myself to get to the gym as the thought of putting back on weight is not an option yet some days I can barely function from the tiredness and other days I have lots of energy anyway to cut a long story short my endocrinologist sent me a letter ( 6 mths later ) saying I have auto immune disease and has increased eltroxin to 125mg twice a week and 100mg 5 days plus folate. Which I’ve been taking , I mentioned my concern to endocrinologist about bloating she said I might need to see a gastroenterologist!!!!
Since then I’ve been reading about lots of ppl suffering bloating , horrendous constipation which is another thing yet not one doctor explained these were side effects I feel the longer this issue goes on the worse I am getting and very little information from doctors I don’t understand all the medical jargon of my free T4 my TPO my TSH it’s a mine field yet all I want are answers to why I’m feeling so lethargic no interest or energy levels like before I feel I was left too long to be told to up my meds , I am now going into hospital for an op on a trigger thumb I spoke with a nutritionist the other day who said auto immune disease is inflammatory hence the bloating , the infmmation in my thumb which now needs surgery I feel docs are dismissive and I’m lost as to who to turn too as I feel it’s spiralling out of control where I was so active and healthy I’m now constantly burned out and I’ll be damned if I’m going to let all my hard work at the gym go to waste , I’ve introduced gluten free to my diet and omitted broccoli I have to have bloods repeated in 5 wks but I’m afraid they will just keep fobbing me off like before