On going thyroid issues since 1996-RAI-2000. Had issues in 2016 but sought advice here and was back on track.
November 2019-Started to feel Very tired and not much interest in anything apart from sleep.
March 2020-Had Shingles for 11 weeks and felt lousy-also began being Tachycardi.
From July-December 2020 lost 2 stone/hair falling out, anxiety issues and still needing more sleep and rest than would be thought “Normal”.
As usual contacted the DR and expressed my concern over my thyroid-blood test completed, was told all was normal!!
In October started a very sore throat which then developed into a feeling of something being stuck in my throat with a constant sick feeling plus a feeling of fullness in my neck, not to mention the sheer lack of energy and feeling of being unwell.
December 2020-rushed to hospital with suspected heart attack: Not a heart attack but spent 32 hrs there having numerous tests; thyroxine reduced from 125mg to 100mg daily, added beta blockers 20mg 3 x daily.
Now waiting on a scan for my thyroid and heart, still feeling ill and i have not been to work, since i was rushed to hospital, but my heart rate now normal with the beta blockers.
I have my latest results from medichecks as my GP Surgery seem offended if i mention having copies of the bloods they have taken. I would appreciate any input as i have been unable to see an endocrinologist but have been seeing an ENT, who is acting as an intermediary but is unable to answer any questions i may have.
Thank you ALL in advance and Kind Regards to everyone.
The only supplements i take are D and B12. The blood was taken at 07.00am and was 24hrs after my last dose of levothyroxine.
Thank you.
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Simone6red
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December 2020-rushed to hospital with suspected heart attack: Not a heart attack but spent 32 hrs there having numerous tests; thyroxine reduced from 125mg to 100mg daily, added beta blockers 20mg 3 x daily.
Exactly what date was dose levothyroxine reduced
Exactly what beta blockers?
Exactly what date were these Medichecks tests done?
Vitamin D and B12 are too low
Folate is deficient
Your high TSH shows you’re under medicated and Ft4 and Ft3 are too low
Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)
Or Thorne Basic B is another option that contain folate, but is large capsule
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
With such low B12 result taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.
I am not surprised, your blood results look dreadful. Hopefully the knowledgeable people on this site will be able to help you.
Here is a link to Elaine Moore's site ... she has really helped me a lot. Just to add Elaine had RAI and then started a support site for other Graves' disease sufferers.
The doctors are not interested in even looking at anything other than TSH!! This is their God!!!Actually you recommend Vitamin D to me back in 2016 and i have been taking ever since.
Took me 20 years to make progress....only after joining this forum, seeing just how common low vitamin levels were and how critical that they are optimal
Well I too have had RAI thyroid ablation for Graves and the blood tests may well " look normal " but it doesn't help you understand what's going on.
I read primary hypothyroidism caused by RAI is more difficult to treat and that RAI trashes vitamins and minerals - and can confirm I've had experience of those two issues.
Looking at your blood test result, your ferritin looks a little high, similar to when you last posted, a few years ago, has this ever been investigated ?
From experience I now know I need to maintain my ferritin at around 100 , my folate at around 20, my B12 active at around 70 + ( serum B12 500+ ) and my vitamin D at around 100. for optimal conversion of T4 into T3.
No thyroid hormone replacement works well unless your core strength is strong and solid, so looking at your vitamins and minerals there is some work to do there - but you may find that you need to supplement these yourself if you do fall into the ranges as detailed
The conversion ratio when on Levothyroxine only is said to be 1/3.50 - 4.50 T3/ T 4 with most people preferring to be under around 4 : so if we divide your T3 into your T4 we get 4.70 showing poor conversion of the T4 into the T3 which is the active hormone that the body runs on and is said to be about 4 times more powerful than T4.
Your T3 is coming in at the bottom of the range whilst your T4 is coming in at just around 35% through the range and we generally feel better when both these vital hormones are in the top quadrant of both ranges.
Your TSH is too high and you will feel better when this drops down to around 1 or under which may happen with a dose increase, or two , in levothyroxine but since you are not converting the Levothyroxine well, the obvious solution is to introduce a little T3 - Liothyronine into the mix to balance these two essential thyroid hormones and lower the TSH.
The thyroid is a major gland responsible for full body synchronisation including your mental, physical, emotional, psychological and spiritual well being, your inner central heating system and your metabolism.
A fully functioning working thyroid would be supporting you daily with trace elements of T1. T2 and calcitonin plus a measurable dose of T3 and T4 said to be around 10 T3 + 100 T4 .
Some people can get by on T4 alone, some people just seem to just stop, at some point in time being able to convert the T4 into T3 as well as they once did, and some people simply need both these vital hormones dosed and monitored independently to bring them back into balance and to a high enough level in the ranges to offer the patient back their previous wellbeing.
Personally I think if there has been a medical intervention and the thyroid surgically removed or burnt out in situ with RAI thyroid ablation that both T3 and T4 should be on the patient's prescription for if, and probably when, both these vital hormones will be need to prescribed to restore the patients QOL.
If you don't know of the Elaine Moore Graves Disease Foundation you might like to dip in. Elaine has Graves and went through RAI and finding no help with her continued ill health started researching this poorly understood and badly treated autoimmune disease herself.
I purchased her first book when I couldn't get better through the NHS and started my journey on here back to better health.
I also found this book written by a doctor who has hypothyroidism a valuable go to :
Your Thyroid and How To Keep It Healthy by Barry Durrant - Peatfield.
We may not now have this amazing little but vital gland but we do need to know what it does so we can try and compensate accordingly.
I was refused both Natural Desiccated Thyroid and Liothyronine through the NHS so I now self medicate with NDT which has a fixed ratio of T3 and T4 in each grain/tablet and am much improved.
Thank you for your support and advice. I just let Slowdragon know in my replies that i have just received an appointment for Ultra Sound Guided Biopsy for my thyroid, not sure what this will prove?
Since Nov 2019 I’ve felt ill and it just seemed to come to a head in Dec 2020, i just kept working and carrying on until i was rushed to hospital.
I can’t understand how or why the consultants don’t or wont pick up on the obvious and we are all left to our own devices; THANK GOODNESS for this site where advice and support is openly given.
I have recently been looking at Elaine Moores site and will be buying her books.
The ENT i have seen and is acting as a go between for the endocrinologist is very approachable and seems genuinely interested i may well ask about NDT.
Elaine trained as a medical technologist prior to her diagnosis of Graves and I found her book writing a little challenging - but tried my best. I am dyslexic and was with reduced cognitive function anyway and have since found her website less daunting and in smaller " chunks " :
The book of hypothyroidism is relatively easy to read and available on the Thyroid uk website as is " Tears Behind Closed Doors -sorry forgot to mention that one !
Depending on who you see I think NDT is less prescribed than T3 - Liothyronine.
It does seem to be a bit of a postcode lottery. Thyroid uk hold a list of " sympathetic endos " so worth getting and checking who you might be within a sensible distance for you and able see.
If you go into - openprecribing.analyse - you should get a screen up where you can see by CCG and surgery how active your area is in prescribing - just put Armour in as the drug for NDT and obviously Liothyronine in for T3.
I trialled both, and I saw immediate relief with T3 but I couldn't continue the same brand and the bulk brand replacement product I purchased gave me horrible headaches so I then decided to try NDT and it fits with me very well.
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Help with T3 how best to take
Help please 
Help with blood results please 
