I’m absolutely fed up, exhausted of feeling so dreadful. I take one step forward and five back. At the moment I can’t see an end to this thyroid journey.
I don’t know what to do next, or who to turn too.
Brief history, you’ve heard it before, diagnosed with Hashimoto’s by a private Endocrinologist. He told me no medication would help. Parted company, after spending hundreds seeing him.
Tried to help myself, got vitamin levels up, gluten free etc.
Fast forward a few months later health deteriorating went to my GP surgery, GP said anxiety, I had been misinformed about Hashimoto’s, and how could she help if Endocrinologist said there was nothing that could be done.
I went away thinking it was all in my head and that was how my life was going to be from now on.
Fast forward to March 2018, could hardly walk, function hubby took me to see my allocated GP, never met him before.
Anyway, did full thyroid, a few days later I got a call to go back, TSH 12.2 and other results out of range.
I was started on Levothyroxine straight away, with guidance on here I started on 50mcg of Levothyroxine and had blood test first thing in the morning every 6 weeks, with increase of 25mcg each.
I never felt well on Levothyroxine despite increases, I got up to 125mcg.
TSH suppressed etc, GP got nervous about more increases, and decided after I couldn’t take the symptoms anymore to stop Levothyroxine and try self medicating on T3.
I decided on T3 as I was experiencing terrible joint pain that sounded similar to fibromyalgia, I had terrible neck stiffness which effected my mobility.
The difference after taking T3 was fantastic.
I Slowly increase to 37.5mcg by taking 3 dosage a day. 12.5mcg each dosage. I didn’t feel perfect on it, but I could think straight, no neck pain etc. I tried several times to increase the dosage, with negative results.
I have now started to go down hill, from my recent previous post, I am experiencing really bad blocked ears, ringing in my ears and really intense neck pain and sharp pain in my head. My scalp is really tender and my inner ears feel blocked. I have no pain from my ears, but my neck is so stiff and awful head pain when I move my head.
I was given antibiotics and this is not helping.
I have noticed a connection that when I take T3 after an hour or so the neck pain, and sharp pains in my head intensify so much so it’s stops me doing things.
I’m thinking that my body doesn’t like T3 anymore, any ideas?.
I’m going back to my GP tomorrow to ask for a different antibiotics as I go away on holiday Saturday.
I recently had a cortisol blood test and saliva test and it showed high cortisol
I have low DHEA and testosterone results. I’ve read Dr Peatfield book that until you sort out your cortisol problems no medication will help.
Blood cortisol taken 8am
Waking *23.800 (6.00-21.00)
12.00 *7.920 (1.50-7.60)
16.00 3.370 (0.00-5.49)
Before bed <1.5 (0.00-1.99)
I haven’t had a recent blood test on T3 as I read you can’t really go by bloods on T3.
I just want some guidance, I don’t know what to do, I think I may need to see an Endocrinologist, but after the last idiot, I’ve lost all hope.
Just wondering why my T3 is making me feel so bad, I’m certain the ears are connected to thyroid.