Very conflicting results: Hi All I'm really... - Thyroid UK

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Very conflicting results

Annoynomice profile image
6 Replies

Hi All

I'm really confused. I had a bluecrest work medical and as a result, it came back with a tsh level of 12. Because I didn't even realise I had an issue, my doctor retested and it gave me a tsh level of 8. So, put me on a dose of 50 Levo.

3 months later, i had another test and it showed that I had a tsh level of 0.44 (5th July) Apart from a less swollen face, didn't really notice any difference in how I felt.

Having lurked on this forum, I thought I would get my vitamins checked and went private with medi checks (1/08)

Why are they so different? I can understand slight variations. Has anyone else had this. I'm female, 51. Thoughts gratefully received.

Note all tests were on an empty stomach, early appointment before 9.30 and no Levo taken until afterwards (I take mine first thing, then wait to eat/drink coffee for an hour)

The results were

Tsh 16.8

Free thyroxine 9.78

Free t3 3.2

Thyroglobulin anti body 189

Thyroid peroxide antibodies 246

Active b12 62.1

Folate 3.23

25 oh vitamin d 65.5

Crf 1.18

Ferritin 52.1

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Annoynomice profile image
Annoynomice
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6 Replies
Treepie profile image
Treepie

You need to put the ranges in as ranges differ from different labs

From your antibody results It looks like you have Hashimotos which can cause flare ups and different results.On the face of it you have been caught early before more symptoms appeared.

Annoynomice profile image
Annoynomice

Hi Treepie

Thank you for your swift reply.

Ranges are

TSH 16.8 range 0.27 - 4.20

Free thyroxine 9.78 range 12- 22

Free t3 3.28 range 3.10 - 6.80

Thyrogl anti body 189 range 0- 115

Thy peroxi 246 range 0- 34

What causes flare ups, how long do they last nd what do people medicate to, is it a question of retesting.

SlowDragon profile image
SlowDragonAdministrator

What's the range on the vitamins?

NHS guidelines saying standard starter dose is 50mcgs

beta.nhs.uk/medicines/levot...

Your NHS test must have coincided with a Hashimoto's flare.....which causes temporary high levels of thyroid hormones as thyroid cells break down

Your Medichecks test shows you need 25mcg dose increase asap and bloods will need retesting in 6-8 weeks

Dose is increased in 25mcg steps retesting 6-8 weeks later each time, until TSH is around one and FT4 towards top of range and FT3 at least half way in range

Your vitamins look low. Especially folate

Ferritin needs to be half way in range. Eating liver or liver pate once a week should help improve

Vitamin D would be better towards 100nmol. Not low enough for GP to prescribe. Just get yourself some vitamin D to self supplement

Vitamin D mouth spray by "Better You" is good as avoids poor gut function. Suggest you supplement 1000iu for 2-3 months and retest. It's trial and error what dose each person needs. Once you Improve level, very likely you will need on going maintenance dose to keep it there. Retesting twice yearly via vitamindtest.org.uk

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

Your high antibodies confirm you have Hashimoto'. More commonly called autoimmune thyroid disease by GP

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Annoynomice profile image
Annoynomice

Hi slow Dragon.

I've booked an appointment the doctor.

Vitamin ranges are

B12 62.1 range 25.1 - 165

Folate 3.23 range 2.91 -50

Vitamin d 65.5 range 50-200

Ferritin 52.1 range 13.00 - 150

Thank you very much for the reading

SlowDragon profile image
SlowDragonAdministrator in reply toAnnoynomice

OK so folate and B12 are low, but within range. (Active B12 under 70 is considered suspect)

Keep an eye on them next test. You might want to consider adding a good quality vitamin B complex, one with folate in not folic acid

But only ever make one change or add one supplement at a time

Most important is to get dose of Levothyroxine increased. Likely to need several increases. Dose should only be increased in 25mcg steps. We usually can't cope with larger increase

GP very unlikely to consider vitamins are low at all, as they are in range

Vitamin D is the most important, most of us with Hashimoto's find higher dose of vitamin D is needed. At least 80nmol, but 100nmol may be better

Low vitamin D and low B vitamins may be linked

drgominak.com/sleep/vitamin...

Then after improving vitamin D, look at B vitamins

Then lastly gluten free diet if symptoms not improving

Annoynomice profile image
Annoynomice

Thank you so much

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