Help with result

[Dils]

t3 1.65(.08-3.14(

T4 9.52 (5.5-12)

Tsh 4.78 (0.4-4.2)

[shaws Administrator]

Dils, it would be helpful if you put a short history into your profile so that members can read without asking you repeat questions.

Your TSH is a bit high, the aim is 1 or lower. Your tests, I believe, aren't Free T4 or Free T3 and it is these two that are more informative than just T4 and T3 and these latter ones coulld be a little higher as well. I shall give a link and read why the frees are informative.

thyroiduk.org.uk/tuk/testin...

thyroiduk.org.uk/tuk/testin...

The T3 could be higher. Mind you rather than blood tests it is how 'we feel' on particular doses which are the best guide, i.e. free of clinical symptoms and feel well.

[Dils in reply to shaws]

Itd my first time fssting test befr was tsh 0.008 sumthng.. And my dr dont prescribed me for ft4 and ft3 and i made it on my own...

And others test were too xpensive so i culdnt aford it...

[shaws Administrator in reply to Dils]

That's the problem when we have ill-health and not recovering as we should is that we are forced to pay for tests which should be automatic.

He should give you more levothyroxine to bring your TSH to 1 or lower. Some doctors make the mistake of thinking that a very low TSH is wrong but around 1 or lower is fine - it shouldn't be higher if we are taking levothyroxine.

If he tells you that your blood tests are fine tell him you have to get your TSH to 1 or lower. He, like many, might believe that anywhere up to 4 (top of your range) is fine but it isn't once diagnosed.

Yours is too high so he should give you an increase of 25mcg levothyroxine. Some doctors don't know very much at all and think that if our TSH is very low we are taking too much thyroid hormones but that's not true. Try to get it to 1 or lower and tell him you've taken advice from the NHS forum for help/advice on problems with the thyroid gland.

[Dils in reply to shaws]

Iam going to see endoon monday... But whenevr i increase my dose my leg is strt to.pain very severly like sciattic pain and fatiue at peak.. What shoild.i do i dont understand and swelling is every where.

[TSH110 in reply to Dils]

Shaws is right that you are not optimised yet you need more thyroxine to get TSH down to less than one. I would feel quite unwell with those numbers - everyone is different, how are you feeling? A bit better I hope but there is room for lots of improvement still which is good news.

[Dils in reply to TSH110]

Iam not feeling well.. And no 1 understand me iam doing my effort on my own... Alot of dizziness and swelling blank mind leg pain...

[shaws Administrator in reply to Dils]

We understand completely, you should have 25mcg of T4 added every six weeks after a blood test until TSH is 1 or lower.

The symptoms are horrible but as you increase your dose I do hope your symptoms are relieved. I shall give you a list and you will realise how very unwell we can be as there are so many symptoms and I doubt a doctor knows one of them.

Swelling is very common but keep reading posts and you will soon more than your doctor and an endocrologist.

Members will support you as we all seem to have horrible experiences and those who do well on levothyroxine - thousands do - but they wont be on this forum.

It has taken years before we are diagnosed so it will take some time to gradually improve.

We have the commonest form of an autoimmune disease and ask doctor next time if he will test thyroid antibodies. You know more than doctor as you now know TSH is to be 1 or below. Not higher.

[Dils in reply to shaws]

My thyroid antibodies result is in pending i will post it later... Thanku for ur and understanding and help...

[shaws Administrator]

This is what you do to get the best results is:-

Always make the appointment about six weeks before, so you get the opportunity to have the earliest blood test appointment.

It has to be at the earliest as TSH is higher then as it drops throughout the day, so if we get it at 9 a.m. it will be higher than at 5 p.m. it varies all day. It will also avoid the doctor reducing your dose.

You take thyroid hormones (levothyroxine) when you get up with one full glass of water and wait about an hour before eating. This helps the hormone to be absorbed into your body as food interferes with the uptake.

The day before the blood test and after your taken levothyroxine, move box somewhere else so that reminds you not to take levo until after the blood test and not before. This will give you the best result. If you have a mobile phone put an alert on it maybe night before as a reminder.

You will soon know more than your doctor and as your dose is increased the better you should feel.

Levothyroxine is also called T4. It is an inactive hormone and it converts to T3 - T3 is the Active hormone and it is this which is needed in all of our T3 receptor cells and we have millions so that's why it is best to have an early blood test and a gap of 24 hours between last dose and test and take afterwards.

Your head will now be spinning but don't worry it will become 'normal' and it wont bother you.

Ask GP to also test B12, Vit D, iron ferritin and folate before your next blood test so that you will only need one blood draw.

Get a print-out of your results with the ranges and put on a new post for comments.

[Dils in reply to shaws]

i have tried to do blood test of ferritin and folate vit d but these were xpensive so i couldnt do it.. And hope for imprpvment .... Struggling alot...

[TSH110 in reply to Dils]

I thought you might not feel great with those numbers. Did the doc up the dose by 25mcg after seeing them? That’s what you need to do then wait 6 weeks on the new dose have a blood test and see if things have improved. And keep going till the dose is as good as you can get. It is very tedious i’m afraid. It took 9 months to get mine sorted but I was at about TSH of 4 and it suddenly dropped down with one increase so it can happen like that. You know the dose when it was too much so you ought to end up on something between now and what that too high dose was. That is quite helpful information to know. Interested to see what the thyroid antibody test reveals. Keep strong!

[Dils in reply to TSH110]

My tsh was at firt 60 its drop down to 4.6 its been 7 months... I havnt seen dr.. I will go for it on monday..

[shaws Administrator in reply to Dils]

You should have had 25mcg increase every six weeks to bring your TSH to 1 or lower. That would make us feel much better as it is the symptoms which are awful and we feel so unwell. I think you need a new doctor.

[rosserk in reply to Dils]

I wouldn’t wait to see my doctor on Monday I would take an extra 25 mcg now and tell the Doctor at your appointment. I feel improvements very quickly after dose increase. Good luck hope you feel better soon 💐

[Dils in reply to rosserk]

My throid anribodies are 268 and thyroglubin 20.9

Are these dangerous?

[rosserk in reply to Dils]

Hi Dils sorry I’m no expert I’m new myself. I think a higher dose will help in lowering your antibodies antibodies. My antibodies are really high, increasing you Levo won’t make them any worse.

[Dils in reply to rosserk]

Ookk.. But whenevr i get high dose my legs strt to pain and alot of fatiqueness

[TSH110 in reply to Dils]

it just shows that your hypothyroidism is due to an autoimmune reaction ie your body’s immune system is attacking your thyroid and killing it gradually it will destroy your thyroid so the levothyroxine is important to replace what the damages thyroid can no longer make. If you can get TSH to well under 1 the antibodies should reduce and you ought to feel much better. Don’t worry about the antibodies that is just the course of the disorder. As you can’t easily go gluten free getting the TSH down by a dose increase is your best way to try and reduce the antibody attacks.

[Dils in reply to TSH110]

Okk thaannkkuuu...