Advice on latest blood test. Do I need need T3? - Thyroid UK

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Advice on latest blood test. Do I need need T3?

Wilby23
Wilby23

Please can you help. I was on T3 just over a year ago, then new Endo said I didn't need it despite not doing a T3 Test. He did order test but lab kept ignoring. Now just on 100mg T4 a day and still feeling rubbish.

Finally got the lab to test T3 and the Endo now wants to have a telephone call on Wednesday. I would like to know if you think I really don't need T3 or I am just being stroppy because he has said I can't have it! I would like to be as informed as I can be when I speak to him. I don't want it if I don't need it but don't want to be denied because of cost

TSH 0.103 miU/I (0.04 - 4.5)

Free T4 19.6 pmol/l (9.00 - 25.00)

Free T3 5.0 nmol/l (3.5 - 7.8)

Vit D3 86 nmol/l > than 50 adequate

B12 395 ng/l (150 - 900)

Folate 15.2 ug/l (3.1 19.9 )

Ferritin 59 ng/ml (12-280)

I take BetterYou Dlux Vitamin D3/K2 oral spray 10,000IU a day, This seems to have helped in bringing my level up. I have also just started taking BetterYou B12 boost 1200ug a day.

3 Replies
oldestnewest

How long had you been on T3 before the change to T4 and were you well on it? Patients on T3 for a considerable time adapt to this - the body slowly changes the way it works to accommodate the treatment for best outcome. To suddenly switch to T4 only is brutal and simply wrong - your body has to readapt all over again, and maybe this could take years if it happens at all. The basic idea medics have, that the human body is like a car which can switch between diesel and petrol "just like that", is the most ignorant, damaging, outright stupid physiological mistake made in thyroidology. It has caused and will cause more misery as the CCG's in the UK misinterpret the guidelines and forcibly remove T3 from those who have been perfectly well on it.

SeasideSusie
SeasideSusieAdministrator

Wilby23

Good conversion takes place when the FT4:FT3 ratio is between 3:1 and 4:1 and yours is currently 19.6 : 5.0 = 3.92 : 1

Looking back at your previous post from last year when you were started on T3, your results were

Free T4 14.7pmol/l (7.00 - 16.00)

Free T3 5.3 nmol/l (3.5 - 7.8)

so your ratio was 14.7 : 5.3 = 2.77 : 1 which does make one wonder why you were prescribed T3 as your conversion was good.

What I take from your current results

TSH 0.103 miU/I (0.04 - 4.5)

Free T4 19.6 pmol/l (9.00 - 25.00)

Free T3 5.0 nmol/l (3.5 - 7.8)

is that you are undermedicated, your FT4 could be higher in range and that would raise your FT3 as well. The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it needs to be for FT4 and FT3 to be in the upper part of their respective reference ranges when on Levo if that is where you feel well.

So maybe an increase in our Levo is what's needed at this stage.

Also, you need to optimise your nutrient levels for thyroid hormone to work properly

Vit D3 86 nmol/l > than 50 adequate

- needs to be 100-150nmol/L according to the Vit D Council, the Vit D Society and Grassroots Health

B12 395 ng/l (150 - 900) - needs to be at least 550, preferably at the top of the range according to

Folate 15.2 ug/l (3.1 19.9 ) - this is fine

Ferritin 59 ng/ml (12-280) - recommended is half way through range

shaws
shawsAdministrator

diogenes is a researcher and expert on T3. Also contact your MP to complain that it was withdrawn without any notice at all. TUK have an ongoing connection with the Lords and there was a Debate in the Lords a couple of weeks ago and it was relayed on the internet. It was very positive and lasted from about 3 p.m. to around 7 or longer p.m.:_

healthunlocked.com/thyroidu...

Write to your local MP complaining that your T3 was withdrawn and you feel very unwell now. It was pointed out by Lord Hunt that the cost of T3 has risen by 6,000% and I think there will be an investigation.

When we first heard to other companies were applying (before the debate) to supply T3 we were hoping against hope that there price would be reasonable and so disappointed that it was around the same between all three suppliers.

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