Also have raised thyroid antibody levels, no idea why. I supplement vitamin D 800iu since 2013, getting iron infusion for ignored below range ferritin, getting B12 injections. Next one due August. Have had 3. Thank you!
APR 2018
FERRITIN 12 (30 - 400)
VITAMIN D 40.2 (25 - 50 DEFICIENT)
VITAMIN B12 201 (190 - 900)
FOLATE 2.2 (2.5 - 19.5)
TPO antibodies? It means you have Hashi's. Do you know what Hashi's is?
APR 2018
VITAMIN D 40.2 (25 - 50 DEFICIENT)
I supplement vitamin D 800iu since 2013
5 years of supplementing Vit D and you're still deficient. Your GP is very negligent. What was your level when you were originally diagnosed? If it was less than 30 you should have been given loading doses of 300,000iu over a number of weeks.
As it is your level is very poor and 800iu will never raise it sufficiently to that recommended by the Vit D Council which is 100-150nmol/L.
If you want to help yourself then you need to buy your own supplement and as you have Hashi's the best one is an oral spray such as BetterYou. It comes in 3000iu dose and you could use 6000iu daily for 6 weeks then reduce to 3000iu daily for 6 weeks then retest, privately if necessary with a home fingerprick test from City Assays which is an NHS hospital lab which offers the test to the general public for £29 vitamindtest.org.uk/
Your doctor wont know, because they are not taught nutrition, but there are important cofactors needed when taking D3 as recommended by the Vit D Council -
vitamindcouncil.org/about-v...
D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.
Magnesium helps D3 to work and comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds
naturalnews.com/046401_magn...
Check out the other cofactors too.
VITAMIN B12 201 (190 - 900)
FOLATE 2.2 (2.5 - 19.5)
How are you between injections? If necessary you can self inject or use sublingual methylcobalamin.
What about your folate level? It is below range. Have you been prescribed folic acid?
Thanks. My level of vitamin D when diagnosed was 31.3 (25 - 50 deficient)
I get a bit of energy between B12 injections. I did not feel at all well on methlycobalamin 1000mg supplements which I took for 2 years and haematology said maybe B12 injections would give me more of a boost. Folate I do not take anything for it.
Babette
You need to speak to your GP about your Folate level, under range means you are deficient. B12 and Folate work together. Folate helps B12 to be absorbed so it needs to be at a good level.
As for your Vit D, your GP could have given you more than 800iu originally, or at least have told you to buy your own at a decent dose. I suggest you follow the doses I mentioned in my reply above.
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's
Essential to test vitamin D, folate, ferritin and B12.
Clearly your vitamin levels are all extremely low so your gut is badly affected
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ideally ask GP for coeliac blood test first
amymyersmd.com/2017/02/3-im...
chriskresser.com/the-gluten...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
drknews.com/changing-your-d...
thyroidpharmacist.com/artic...
Your TSH (on older post) is far too high
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at
tukadmin@thyroiduk.org
Plus request list of recommended thyroid specialists
Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine
(Many of us need TSH nearer 0.2 than 2.0 to feel well)
See box
Thyroxine replacement in primary hypothyroidism
800iu of vitamin D is a maintenance dose for someone who has a good level already. it will not (as you have discovered) raise levels if you are deficient. You need at least 2000iu a day until vit D is around 100, then probably 1000iu. Ferritin, B12 and folate are also dreadful. B12 needs to be over 500 and folate half way up range. You probably need to start supplementing methylfolate after you've had your B12 injection, Iron infusion should help, but I'd ask for a referral to gastroenterology to make sure that there is nothing wrong,
New vitamin levels 
Vitamin levels
Vitamin and mineral levels
Vitamin levels 
